Search found 69 matches

by Sandiemac
Wed Aug 17, 2016 6:05 pm
Forum: Family, friends and carers
Topic: Our Journey without chemo
Replies: 261
Views: 91307

Re: Our Journey without chemo

Even though you have been expecting this on a daily basis it must still be a terrible shock for you but you can rest assured you did everything (and more) humanly possible to help him through this. I am full of admiration for you.

My deepest condolences.
Sandie x
by Sandiemac
Thu Aug 11, 2016 11:23 pm
Forum: Treatment & side effects
Topic: Best cream for itchy skin?
Replies: 7
Views: 16882

Re: Best cream for itchy skin?

After trying various creams (over the counter and prescription) my husband found best relief
from baby oil. Hope this helps.
by Sandiemac
Thu Aug 04, 2016 2:19 pm
Forum: Patient Experience Forum
Topic: Stephen's Story
Replies: 127
Views: 136847

Re: Stephen's Story

I was having a wobble about 10 days ago and started quite a long post, turned to something else, and then lost it! I was quite annoyed until I realised the act of writing it all down had helped and so it wasn't a waste of time after all. Things are going on quite slowly. The doc. decided to stop the...
by Sandiemac
Fri Jul 15, 2016 10:44 pm
Forum: Patient Experience Forum
Topic: Stephen's Story
Replies: 127
Views: 136847

Re: Stephen's Story

I thought I would get back to this as I haven't posted for a while, although I come onto the site on a daily basis to see how everyone else is getting on. Stephen had dose 3 of the 2nd cycle but it was getting more and more difficult to get him to eat anything and he was having naps or just sitting ...
by Sandiemac
Sat Jun 25, 2016 6:06 pm
Forum: Patient Experience Forum
Topic: Stephen's Story
Replies: 127
Views: 136847

Re: Stephen's Story

Just a quick update....the reduced dose (Abraxane & Gemcitabane) seems to be doing the trick. No more extreme reactions, just fatigue and loss of appetite which are liveable with. He had dose 2 of the 2nd cycle yesterday and seems quite happy to carry on with a third cycle in due course. We will the...
by Sandiemac
Wed Jun 08, 2016 3:01 pm
Forum: Patient Experience Forum
Topic: Stephen's Story
Replies: 127
Views: 136847

Re: Stephen's Story

Rachel and I have exchanged emails and it was very helpful. Our clinical trial nurse arranged for Steve to be seen by the doctor running the trial and his registrar this morning and they decided to make this week his rest week, rather than have the 3rd dose of the 1st cycle, and perhaps reduce the d...
by Sandiemac
Tue Jun 07, 2016 4:01 pm
Forum: Patient Experience Forum
Topic: Stephen's Story
Replies: 127
Views: 136847

Re: Stephen's Story

I seem to have spoken too soon in terms of side-effects. Following the first session (a Friday) Steve started uncontrollable itching on the Tuesday night and had a miserable night, with none of our range of creams and moisturisers having any effect. He has suffered from itching for some years and we...
by Sandiemac
Sun May 29, 2016 12:34 pm
Forum: Patient Experience Forum
Topic: Stephen's Story
Replies: 127
Views: 136847

Re: Stephen's Story

Thank you all so much for your replies. I really appreciate them. After hearing and reading so many horror stories about side effects we have been pleasantly surprised, although of course he has only had one session. He has had gem and cap (the ex-AIDS drug comes further down the line apparently - g...
by Sandiemac
Mon May 23, 2016 5:23 pm
Forum: Patient Experience Forum
Topic: Stephen's Story
Replies: 127
Views: 136847

Stephen's Story

Hello Everyone I have been reading this forum with much interest and thought I would join in on my husband's behalf. Background: He is 71 years old and never had a day's illness (not even had flu) until we were faced with a possible PC diagnosis when a blood test came back showing jaundice and diabe...

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