Search found 69 matches

by Sandiemac
Thu Feb 02, 2017 3:42 pm
Forum: Patient Experience Forum
Topic: Stephen's Story
Replies: 127
Views: 136847

Re: Stephen's Story

So here's more good news! We have just come back from the latest visit to the consultant following a CT scan 10 days ago. Stephen had a reoccurrence of the jaundice (knocked on the head with anti-biotics from the GP) which could have been caused with a problem with the stent so the scan was to see w...
by Sandiemac
Wed Feb 01, 2017 4:38 pm
Forum: Family, friends and carers
Topic: Thank you and our story... but we are not that far yet!
Replies: 433
Views: 150063

Re: Thank you and our story... but we are not that far yet!

This saga is beyond belief but thank goodness you still have your sense of humour! I wish you and your family all the strength necessary to cope with what is to come, good or bad. I too am checking in every day to see how you all are. Sandie xx
by Sandiemac
Sun Jan 22, 2017 5:14 pm
Forum: Family, friends and carers
Topic: Thank you and our story... but we are not that far yet!
Replies: 433
Views: 150063

Re: Thank you and our story... but we are not that far yet!

At least he is in the hospital and they can take the strain off you and your mum for a little while to give you chance to regroup and consider your next step, which, knowing you will be to
tear in guns blazing! Thinking of you and wishing you all good news.
by Sandiemac
Tue Jan 17, 2017 3:05 pm
Forum: Family, friends and carers
Topic: Thank you and our story... but we are not that far yet!
Replies: 433
Views: 150063

Re: Thank you and our story... but we are not that far yet!

I can't really add anything to what others have said but it goes for me too. Thinking of you and your dad and hoping for the best. One day at a time is the way through this.
xx
by Sandiemac
Tue Dec 20, 2016 4:06 pm
Forum: General chat
Topic: Hospital Diagnostics Review
Replies: 35
Views: 49264

Re: Hospital Diagnostics Review

What a star you are, Marmalade! Thanks to you there may be lives saved in the future and what a memorial this would be for Louis. My husband is another one where sudden onset diabetes occurred, and jaundice, with a normal blood test not long before diagnosis but fortunately we had a young GP who was...
by Sandiemac
Thu Dec 15, 2016 12:31 pm
Forum: Patient Experience Forum
Topic: Stephen's Story
Replies: 127
Views: 136847

Re: Stephen's Story

I've been quiet for a few weeks, despite lurking on the site on a daily basis keeping up with everyone's news, as there has been nothing to report. However, the CT scan duly took place and we had an appointment to see Dr M today for the results. Instead, he 'phoned to say no need to come in - he cou...
by Sandiemac
Wed Dec 07, 2016 12:24 pm
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 198448

Re: Mum of 42 recently diagnosed inoperable PC

Lost for words, but full of admiration. Love Sandie
by Sandiemac
Fri Nov 25, 2016 3:13 pm
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 198448

Re: Mum of 42 recently diagnosed inoperable PC

How lovely to have some good news for a change. Now have a lovely Christmas.

Love, Sandie
by Sandiemac
Sat Nov 12, 2016 1:04 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 766
Views: 337278

Re: Thanks for sharing your experiences . . .

And that's the thing, Mo. It's so easy to get scared (which is basically what you are), get reassured by those who have been there and done that and then calm down. You know that whatever happens now (and we all hope this is just a bump in the road) we are all here listening and empathising. You (an...
by Sandiemac
Thu Nov 03, 2016 1:05 pm
Forum: Patient Experience Forum
Topic: Stephen's Story
Replies: 127
Views: 136847

Re: Stephen's Story

Hello everyone. So....he is home! The consultant had a chat with us after the MDT meeting and the radiographer says there is a possibility the specks/marks on the liver could be abcesses due to the infection. However, his general condition was such that they would send him home with 2 more weeks of ...
by Sandiemac
Sat Oct 29, 2016 8:05 pm
Forum: Patient Experience Forum
Topic: Stephen's Story
Replies: 127
Views: 136847

Re: Stephen's Story

Thank you all for your words and hugs. It's so good to know you are there. Well no truer word was spoken than calling this whole process a roller coaster. Every day we were told something different at the hospital and yesterday I was actually in the room when the ultrasound was done. This showed the...
by Sandiemac
Thu Oct 27, 2016 9:14 am
Forum: Patient Experience Forum
Topic: Stephen's Story
Replies: 127
Views: 136847

Re: Stephen's Story

Hello Ladies It's been a terrible week. Last Wednesday night/Thursday morning Stephen had terrible diarrhoea, vomiting and falling over. We were due for radiotherapy at 11.45 so I rang and got it changed to late afternoon, and by that time he was feeling able to get up and go. Friday was OK. I went ...
by Sandiemac
Mon Oct 03, 2016 4:07 pm
Forum: Patient Experience Forum
Topic: Stephen's Story
Replies: 127
Views: 136847

Re: Stephen's Story

Hello everyone A further update....we duly had out little break (6 nights in Cromer) and felt so much better for it. Steve has now started the daily radiotherapy, together with the new chemo tablets and the ex-HIV drug nelfinavir as per the trial. Together with the indigestion tablets replacing omez...
by Sandiemac
Sat Aug 27, 2016 1:12 pm
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 198448

Re: Mum of 42 recently diagnosed inoperable PC

That's the thing, isn't it, Ruth. No-one knows. The specialists can only give you statistics - getting more and more out-of-date as survivals grow. Your particular cancer is applicable only to you so whilst encouraging stories are wonderful to hear there is no straight line that everyone's cancer fo...
by Sandiemac
Wed Aug 17, 2016 6:17 pm
Forum: Patient Experience Forum
Topic: Stephen's Story
Replies: 127
Views: 136847

Re: Stephen's Story

We got the scan results today. Good news! The tumour may have shrunk a little (they are unsure how big it was to start with) and it hasn't spread anywhere else! As this was his "rest" week the difference has been very noticeable in his energy levels. He has kept saying he feels fine. He starts cycle...

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