Search found 69 matches

by Sandiemac
Tue Oct 17, 2017 11:22 am
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 766
Views: 337268

Re: Thanks for sharing your experiences . . .

Yes, I remember Patience Strong. Bit too wishy-washy for me. Sounds like it's time for some me-time for you. Can you not leave Peter and have a spa day (or half day). Does your local hospice run what I used to call the playgroup where "people with life-limiting illnesses" can meet, socialise, have l...
by Sandiemac
Mon Oct 09, 2017 2:19 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 766
Views: 337268

Re: Thanks for sharing your experiences . . .

Oh Mo, I really feel for you. One day at a time, pet.
Yes, gin is an EXCELLENT idea! Or wine.

Love
Sandie xx
by Sandiemac
Mon Oct 09, 2017 12:36 pm
Forum: Patient Experience Forum
Topic: Stephen's Story
Replies: 127
Views: 136847

Re: Stephen's Story

Hello all my forum friends, I thought you may be interested in how I was getting on. I have just been re-reading your lovely comments made when Stephen first died and once again they bring tears to my eyes, not because of why they were written but because of the genuine empathy and concern they disp...
by Sandiemac
Mon Sep 18, 2017 10:06 am
Forum: Patient Experience Forum
Topic: Stephen's Story
Replies: 127
Views: 136847

Re: Stephen's Story

Thank you all. Because your comments come from personal knowledge they are all the more valuable to me. Because we are a Jewish family the funeral was yesterday and the previous two days were spent scurrying around getting the paperwork etc. in place and contacting people so not much time for it all...
by Sandiemac
Fri Sep 15, 2017 11:44 am
Forum: Patient Experience Forum
Topic: Stephen's Story
Replies: 127
Views: 136847

Re: Stephen's Story

He died at about 6.20pm yesterday. The palliative care team had been wonderful and fast tracked him for hospice at home. A hospital bed had been delivered on Wednesday afternoon and oxygen machines all set up. When we got to the hospital yesterday afternoon the pharmacist brought all the medicines (...
by Sandiemac
Mon Sep 11, 2017 7:48 pm
Forum: Patient Experience Forum
Topic: Stephen's Story
Replies: 127
Views: 136847

Re: Stephen's Story

Well, it's got a lot worse. He was transferred from the "pending" ward to a "frail & elderly" ward, where he has been ever since (it will be 2 weeks on Friday). He has now developed pneumonia and the course of antibiotics ends tomorrow. The doc said she would have hoped to see more of an improvement...
by Sandiemac
Mon Sep 04, 2017 7:17 pm
Forum: Patient Experience Forum
Topic: 36 yo adv pancr cancer patient treated in France
Replies: 172
Views: 183132

Re: 36 yo adv pancr cancer patient treated in France

Really rooting for you! I so admire your positive attitude.
Sandie x
by Sandiemac
Fri Sep 01, 2017 8:22 pm
Forum: Patient Experience Forum
Topic: Stephen's Story
Replies: 127
Views: 136847

Re: Stephen's Story

"Barring something catastrophic" I said, well how about a broken arm. No, we are not off to Bournemouth in the morning. Stephen fell at home yesterday evening and broke his humerus. Good news is it doesn't need plastering, it heals on its own like a collar bone. Bad news is it was his left shoulder ...
by Sandiemac
Sun Aug 27, 2017 1:08 pm
Forum: Patient Experience Forum
Topic: Stephen's Story
Replies: 127
Views: 136847

Re: Stephen's Story

Thank you for your responses. We will be going to Bournemouth, barring something catastrophic in the next week. When I mentioned cancelling Steve said we were going and that's that, because I needed the break probably more than he does. Use of painkillers has diminished in the last few days. The 2-h...
by Sandiemac
Wed Aug 23, 2017 12:33 pm
Forum: Patient Experience Forum
Topic: Stephen's Story
Replies: 127
Views: 136847

Re: Stephen's Story

Hi everyone Yet another update, although not much to report. Stephen is still attending the Wellness Centre most weeks, but not today. He is experiencing more pain now and the hospice suggested giving him pain relief every 2 hours rather than a double dose of paracetamol and Oramorph every 4 hours. ...
by Sandiemac
Wed Jul 26, 2017 2:15 pm
Forum: Family, friends and carers
Topic: The nightmare so far....
Replies: 40
Views: 64621

Re: The nightmare so far....

I really feel for you, having experienced the affect chemo can have with my own husband. Don't be offended but perhaps the time has come to think of quality time over quantity. If he is enjoying life, to a certain extent, then stop the chemo. My husband has had no treatment of any kind (apart from a...
by Sandiemac
Tue Jul 04, 2017 11:53 am
Forum: Family, friends and carers
Topic: Hello
Replies: 110
Views: 83713

Re: Hello

Thinking of you and wishing you strength. I hope everything goes as you would wish and that you end the day feeling you have done him proud.
by Sandiemac
Mon Jul 03, 2017 9:55 pm
Forum: Family, friends and carers
Topic: Support from your local Hospice
Replies: 4
Views: 7553

Support from your local Hospice

I have a thread running elsewhere (Stephen's Story) but I wanted to let you know about the support we are getting from our local hospice in the hope it might encourage someone to contact their local hospice in case they were unaware of the help available. I know Marmalade is a fan and has benefited ...
by Sandiemac
Fri Jun 16, 2017 4:04 pm
Forum: Family, friends and carers
Topic: Hello
Replies: 110
Views: 83713

Re: Hello

So very, very sorry to hear this Vee. Sincere condolences. Sandie x
by Sandiemac
Mon May 29, 2017 3:54 pm
Forum: Patient Experience Forum
Topic: Stephen's Story
Replies: 127
Views: 136847

Re: Stephen's Story

Hi Raun

I think you meant to post this on another thread. None of it is relevant to Stephen but thank
you for your good wishes.

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