Search found 762 matches

by Dandygal76
Mon Nov 20, 2017 11:20 am
Forum: Family, friends and carers
Topic: Thoughts from the PC frontline
Replies: 187
Views: 123640

Re: Thoughts from the PC frontline

I so feel your pain. This in between time is just awful and everything is just so slow. It is still awful it is not treated as a medical emergency.

I am interested to know what technique they used for the biopsy - was it EUP or needle through the skin.

Stay strong lovely x
by Dandygal76
Mon Nov 20, 2017 11:12 am
Forum: Patient Experience Forum
Topic: 36 yo adv pancr cancer patient treated in France
Replies: 172
Views: 183006

Re: 36 yo adv pancr cancer patient treated in France

Ho are things lovely lady. It would be lovely to hear from you if you get a chance. Much love. x
by Dandygal76
Mon Nov 20, 2017 11:10 am
Forum: Advanced pancreatic cancer
Topic: Metastatic adenocarcinoma
Replies: 19
Views: 32189

Re: Metastatic adenocarcinoma

Hi Violet

How are things? I hope you are having a lovely time in Venice. We would love to be updated when you get a chance.

DG x
by Dandygal76
Mon Nov 20, 2017 10:51 am
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 766
Views: 336935

Re: Thanks for sharing your experiences . . .

I hope you get the delivery syringes sorted - it is so annoying to have to deal with these things that should be made simple considering. That is really awful that someone without support cannot get their washing done. Perhaps this should be put to the volunteers. Sometimes it is such a soulless exp...
by Dandygal76
Sun Nov 19, 2017 11:03 am
Forum: Patient Experience Forum
Topic: Overwhelmed
Replies: 6
Views: 12189

Re: Overwhelmed

Fifi you do not have pancreatic cancer and you need to accept that. Our bodies all have niggles and lumps and bumps and that is why we don't all get routinely MRI's from head to toe as a preventative measure because is causes more problems than it solves. Logically you would think it would save the ...
by Dandygal76
Thu Nov 16, 2017 10:14 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 766
Views: 336935

Re: Thanks for sharing your experiences . . .

I am glad Peter is still being his usual character, it is so lovely to hear. Do you not have a tumble dryer you could put the PJ's in on their own and then fold them so they look ironed? As far as sharps are concerned I think the GP prescribes the sharp bin and then you go through this route when no...
by Dandygal76
Thu Nov 16, 2017 9:48 pm
Forum: Patient Experience Forum
Topic: 36 yo adv pancr cancer patient treated in France
Replies: 172
Views: 183006

Re: 36 yo adv pancr cancer patient treated in France

Hey lovely lady, I am glad you are going home. Are they stopping the new chemo routine you are on or will you carry on? They can manage the Ascites at home but I agree with Didge that you don't wait too long if it starts to be painful. I am not sure if France is the same but they seem to take an age...
by Dandygal76
Thu Nov 02, 2017 4:08 pm
Forum: General chat
Topic: reliability of CT scans
Replies: 14
Views: 19630

Re: reliability of CT scans

Honestly Fifi please do not eliminate the possibility of IBS. My partner has suffered with gastric symptoms for years and he is still sat here being a complete pain in the arse with no terminal diagnosis. Have you looked up the FODMAP elimination diet? If your symptons are that bad then please do it...
by Dandygal76
Mon Oct 30, 2017 10:15 am
Forum: General chat
Topic: reliability of CT scans
Replies: 14
Views: 19630

Re: reliability of CT scans

Thank you BlackJac for always coming on here and sharing your experiences. Online in group chats many have stated they find it difficult to cope with these queries when dealing so deeply with PC. We must always be open to the possibility but you sharing your experiences is immensely helpful. Fifi - ...
by Dandygal76
Mon Oct 23, 2017 1:29 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 766
Views: 336935

Re: Thanks for sharing your experiences . . .

I reckon it was Peter out of frustration without his glasses. I haven't done a puzzle for years and might just go and treat myself actually now you have put the thought in my head. I hope Peter is well today and that the weather is not as dire as it has been here this weekend. Definitely not good go...
by Dandygal76
Mon Oct 23, 2017 1:14 pm
Forum: Advanced pancreatic cancer
Topic: Molecular Profiling
Replies: 4
Views: 13434

Re: Molecular Profiling

I can imagine your frustration with this - it really is a sorry state of affairs when we want to give our loved ones every opportunity. Have you tried a chat with Sarah Cannon in Harley Street to see if there are trials coming up in the pipeline. There are many many private oncologists though with l...
by Dandygal76
Sat Oct 21, 2017 3:02 am
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 766
Views: 336935

Re: Thanks for sharing your experiences . . .

One day at a time Mo and I am sure you will get the gonorr... I mean logorrea under control. In the meantime... perhaps a quiet word to reduce the clinics? x
by Dandygal76
Sat Oct 21, 2017 2:51 am
Forum: Advanced pancreatic cancer
Topic: Metastatic adenocarcinoma
Replies: 19
Views: 32189

Re: Metastatic adenocarcinoma

Hi Violet. I am sorry if I missed a post but has Folfirinox stopped working? I am not sure of your financial situation but I did look into buying a place in Wales (a 3 hour drive from here) for 3rd line treatment. Maybe not completely what PCUK will agree with but it is an option (and they will dele...
by Dandygal76
Sat Oct 21, 2017 2:42 am
Forum: Family, friends and carers
Topic: Thoughts from the PC frontline
Replies: 187
Views: 123640

Re: Thoughts from the PC frontline

That is not good at all - From my extensive research some people respond well to furry fox more than Abraxane and visa versa - the mutations are so many. I am disappointed that the guidelines are so restrictive because you know quite early on in chemo if it isn't going to work at all. I had to fight...
by Dandygal76
Mon Oct 16, 2017 6:09 am
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 766
Views: 336935

Re: Thanks for sharing your experiences . . .

Hey Mo My wacky friend gave up her job in exchange for doing all sorts of crafty things with rags and leftovers of all sorts. She makes a fortune now so perhaps there is potential in it all. I would love to order a Christmas teddy - how novel. I am sorry that Peter was unwell previously. The hospita...

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