Search found 762 matches

by Dandygal76
Thu Dec 14, 2017 2:06 pm
Forum: General chat
Topic: A new Forum here?
Replies: 14
Views: 17599

Re: A new Forum here?

Firstly hun, I hope you never get a diagnosis like this - I am really routing for you on that one! Secondly, at times we are very stressed over various issues around fighting this illness or supporting people and it not so much as causing offence (minor as W&M states) but there really is nothing els...
by Dandygal76
Wed Dec 13, 2017 12:44 am
Forum: Patient Experience Forum
Topic: 36 yo adv pancr cancer patient treated in France
Replies: 172
Views: 183068

Re: 36 yo adv pancr cancer patient treated in France

For anyone wishing to donate to PCUK in memory of Ira.

https://www.justgiving.com/fundraising/daniel-leopard2

xxx
by Dandygal76
Tue Dec 12, 2017 7:57 am
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 766
Views: 337076

Re: Thanks for sharing your experiences . . .

Hey Mo I hope you are quiet because life is calm. I doubt there is a lot of golf going on with this weather and not sure how Bo takes to going outside. Our dog is a wuss and refuses to go walkies if it it raining but apparently he loves the snow and trying to catch a snow ball which is quite funny. ...
by Dandygal76
Sun Dec 10, 2017 2:45 pm
Forum: General chat
Topic: A new Forum here?
Replies: 14
Views: 17599

Re: A new Forum here?

I think you all know this hits a nerve with me especially around dealing with actual PC on this forum and away from here. I am fine with people posting their concerns but when they really have exhausted every avenue and talk about a tiny cyst etc and the doctors are clear it is nothing then I get fr...
by Dandygal76
Fri Dec 08, 2017 3:46 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 766
Views: 337076

Re: Thanks for sharing your experiences . . .

I am glad Peter is feeling better and I hope he is home soon. It is frustrating that they still cannot seem to get the creons right half the time. I had a big stash of them here but sent them all to a family abroad who needed them otherwise I would have sent them all to you. I wish I had saved them ...
by Dandygal76
Fri Dec 08, 2017 3:35 pm
Forum: Family, friends and carers
Topic: Thoughts from the PC frontline
Replies: 187
Views: 123664

Re: Thoughts from the PC frontline

I am glad things have got off to a good start and I have also seen the studies on the reduced dose and it seems madness and completely anti patient choice not to let you do this. Surely it would actually save money? Is there any way to appeal and get a second opinion whilst he start on this regime? ...
by Dandygal76
Thu Dec 07, 2017 11:12 am
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 766
Views: 337076

Re: Thanks for sharing your experiences . . .

Hi Mo, you could try and go up there anyway. I paid no attention to dads visiting hours when he was really ill. I even took along a camp bed and pitched it up next to him the last couple of nights and no one said anything - at this point though the writing really was on the wall for poor dad and he ...
by Dandygal76
Thu Dec 07, 2017 7:40 am
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 766
Views: 337076

Re: Thanks for sharing your experiences . . .

Hey Mo, I hope things are more stable today. He is in the best place and at least you all have additional support whilst he is in the hospital. Please let us know how things are today - you know we are all routing for you guys. x
by Dandygal76
Wed Dec 06, 2017 5:06 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 766
Views: 337076

Re: Thanks for sharing your experiences . . .

Mo some emotions are just not discussed other than in a forum situation are they? It is such a hard thing to be supporting someone with this illness and there is no respite. You can go shopping or swimming and it is just there always and it never goes away and no one can not crack under that pressur...
by Dandygal76
Thu Nov 30, 2017 11:13 pm
Forum: Patient Experience Forum
Topic: 36 yo adv pancr cancer patient treated in France
Replies: 172
Views: 183068

Re: 36 yo adv pancr cancer patient treated in France

She was an amazing lady.. so so sad. x
by Dandygal76
Thu Nov 30, 2017 11:01 pm
Forum: General chat
Topic: reliability of CT scans
Replies: 14
Views: 19645

Re: reliability of CT scans

I am going to bullet this bluntly... - You don't have pancreatic cancer - Numerous medical people have already confirmed this - A weeks stay in hospital has confirmed this. - You do not need a biopsy to confirm pancreatic cancer for chemo treatment. You are not offered chemo treatment because you do...
by Dandygal76
Wed Nov 29, 2017 7:08 pm
Forum: Patient Experience Forum
Topic: 36 yo adv pancr cancer patient treated in France
Replies: 172
Views: 183068

Re: 36 yo adv pancr cancer patient treated in France

It is with great sadness, and with the permission of Stepuha's family, that i need to announce that after 13 months and 2 days since diagnosis of Pancreatic Cancer, Stephua passed away around 6am on 23rd November peacefully in her sleep. Her husband has stated that she will always be remembered to b...
by Dandygal76
Tue Nov 21, 2017 10:10 am
Forum: Family, friends and carers
Topic: I feel like a fraud posting
Replies: 4
Views: 6322

Re: I feel like a fraud posting

I dare say you have come to the right place and we can compensate massively for moody cats - we have put up with Boris all this time! You are not a fraud - that terminal diagnosis was (and still is) the most devastating moment in my life, way beyond anything that happened subsequently. It is not jus...
by Dandygal76
Mon Nov 20, 2017 4:21 pm
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 198395

Re: Mum of 42 recently diagnosed inoperable PC

Yes she was. I mean to visit her bench very soon with the spoilt dog on a walk. x
by Dandygal76
Mon Nov 20, 2017 1:53 pm
Forum: Family, friends and carers
Topic: Thoughts from the PC frontline
Replies: 187
Views: 123664

Re: Thoughts from the PC frontline

I would do the same.. You have waited long enough and you can't afford another massive wait on a biopsy when the decision could be no anyway and then you have to start mgs processes again. I am sorry the trial didnt work out.. You know i had high praises of where you was potentially going. Do you no...

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