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by Wife&Mum
Fri Nov 17, 2017 8:59 am
Forum: Patient Experience Forum
Topic: 36 yo adv pancr cancer patient treated in France
Replies: 172
Views: 183071

Re: 36 yo adv pancr cancer patient treated in France

Thanks for your update Stepuha. I hope you get home very soon and that the new regime of pain relief and the extra support from the nurse make things a lot easier.
Big hugs, much love and loads of good wishes from me to you.
W&M xxx
by Wife&Mum
Thu Nov 09, 2017 10:44 am
Forum: Patient Experience Forum
Topic: 36 yo adv pancr cancer patient treated in France
Replies: 172
Views: 183071

Re: 36 yo adv pancr cancer patient treated in France

Big hug back Stepuha. Plus mega-wishes for comfort, calm and no more nasty surprises.
Lots of love
W&M xxx
by Wife&Mum
Wed Nov 08, 2017 11:19 am
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 766
Views: 337081

Re: Thanks for sharing your experiences . . .

Thank you Mo for introducing me to a new poem. No purple slippers in the rain yet but I may have let slip the odd swear word on the street. On Planet PC it’s sometimes hard not to.
W&M xx
by Wife&Mum
Tue Nov 07, 2017 2:34 pm
Forum: Family, friends and carers
Topic: Thoughts from the PC frontline
Replies: 187
Views: 123664

Re: Thoughts from the PC frontline

I said not long ago that patience wasn’t one of my strengths. I think I’m getting better at it which is just as well as we’re STILL waiting for hubby’s treatment to start. We expected that by now the trial people would know whether he had the genetic mutation that qualified him for the HALO trial. B...
by Wife&Mum
Mon Nov 06, 2017 11:36 am
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 766
Views: 337081

Re: Thanks for sharing your experiences . . .

Dearest Mo

Love and good wishes are on their way from one purple flower to another. Although I don’t post often these days (PC forum burnout) I always read your updates and think how lucky Peter is to have you by his side.

Hoping very much that this week is better than the last

W&M xxx
by Wife&Mum
Fri Oct 20, 2017 8:02 pm
Forum: Family, friends and carers
Topic: Thoughts from the PC frontline
Replies: 187
Views: 123664

Re: Thoughts from the PC frontline

Hi Violetmia, The NICE recommendation for Abraxane is that it can only be given for previously untreated metastatic pc so patients who have already had Folfirinox for metastatic cancer aren't eligible. In my husband's case the Folfirinox was given before he was metastatic. His oncologist is therefor...
by Wife&Mum
Fri Oct 20, 2017 12:42 pm
Forum: Family, friends and carers
Topic: Thoughts from the PC frontline
Replies: 187
Views: 123664

Re: Thoughts from the PC frontline

Hi all, It's been a month since I last posted and I've got some good and bad news to report. The good news is that treatment for hubby's recurrence should start very soon. The bad news is that the recurrence is now official since his lung biopsy proved positive for PC. We found this out on Tuesday, ...
by Wife&Mum
Sat Oct 14, 2017 8:52 am
Forum: Patient Experience Forum
Topic: 36 yo adv pancr cancer patient treated in France
Replies: 172
Views: 183071

Re: 36 yo adv pancr cancer patient treated in France

Dearest Stepuha I read your post last night and was too upset to respond, I just couldn't find any words. I still don't have the words (as the rest of my post proves) but want you to know that I'm thinking of you and wishing with all my strength that you get better news over the coming days. I so ho...
by Wife&Mum
Tue Oct 10, 2017 9:23 am
Forum: Patient Experience Forum
Topic: Stephen's Story
Replies: 127
Views: 136823

Re: Stephen's Story

Dear Sandie
As Mo says, it sounds like you are finding your way on this really hard stretch of the horrible journey. Thank you for updating us, I've been thinking of you and hoping that you've been ok.
Much love
W&M xx
by Wife&Mum
Mon Oct 09, 2017 11:49 am
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 766
Views: 337081

Re: Thanks for sharing your experiences . . .

Mo,

I think your Crafte Fayre table will be the star of the show so long as the Fairy Teddies behave themselves. Give them a good talking to first, or maybe some of your gin to calm their nerves.

Hoping for many many more lovely days for you, Peter and Boris.

W&M xx
by Wife&Mum
Sun Oct 08, 2017 11:49 am
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 766
Views: 337081

Re: Thanks for sharing your experiences . . .

Dear Mo
What a hard week you've had, poor Peter, poor you!
I am sending masses of positive thoughts and good wishes your way for this to be a much kinder week all round.
W&M xx
by Wife&Mum
Wed Sep 27, 2017 9:26 am
Forum: Family, friends and carers
Topic: Mum just been diagnosed with PC
Replies: 7
Views: 7308

Re: Mum just been diagnosed with PC

Dear Devastated I'm so sorry that you find yourself here but I'm sure you will find a wealth of information and support. At the beginning it's hard to avoid information overload but the wonderful nurses on the PCUK support line can answer any initial questions. I do hope your mum's procedure was suc...
by Wife&Mum
Thu Sep 21, 2017 7:06 pm
Forum: Family, friends and carers
Topic: Thoughts from the PC frontline
Replies: 187
Views: 123664

Re: Thoughts from the PC frontline

Dear Stepuha Thank you so much for your post, your good wishes and for all the info. I hadn't thought of chemo-radiation and I'll certainly investigate it as an option. Before hubby's Whipple he had chemo-radiation on his pancreas and I suppose it's possible that would preclude him having it on his ...
by Wife&Mum
Wed Sep 20, 2017 1:07 pm
Forum: Patient Experience Forum
Topic: Speed of diagnosis is scary!
Replies: 9
Views: 19160

Re: Speed of diagnosis is scary!

Hi Annf67 Welcome to the forum but I'm so sorry you have need to be here. I'm sure you will find it a very supportive and caring place. You must be absolutely reeling from the news and now have to face the incredibly difficult decision of treatment/no treatment. Some people respond really well to ch...
by Wife&Mum
Wed Sep 20, 2017 10:16 am
Forum: Family, friends and carers
Topic: Thoughts from the PC frontline
Replies: 187
Views: 123664

Re: Thoughts from the PC frontline

Thank you, as always DG, for your honesty and perspective. I'm so grateful for your support, it really means a lot. Today we are heading to London for a SIBO test. SIBO meaning "Small intestinal bacterial overgrowth". Hubby has been very burpy lately and his hospital dietitian thinks he has classic ...

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