Search found 397 matches

by Wife&Mum
Wed Dec 13, 2017 11:24 am
Forum: Family, friends and carers
Topic: Thoughts from the PC frontline
Replies: 187
Views: 118809

Re: Thoughts from the PC frontline

Well, well, our wish was granted...hubby’s neutrophils were too low for chemo this week so no treatment yesterday. Instead we went out for a lovely lunch and felt the whole day like we’d been granted a massive reprieve. We’re now fairly hopeful that going forward he’ll be put on the alternate week r...
by Wife&Mum
Wed Dec 13, 2017 11:13 am
Forum: General chat
Topic: A new Forum here?
Replies: 14
Views: 12049

Re: A new Forum here?

Dear Dianne Many thanks for your response on the forum and your email to me. It’s good to know that there’s a review planned in the new year and I’m sure that PCUK will come up with solutions that sensibly and sympathetically address issues raised in this thread. I also appreciate that time spent mo...
by Wife&Mum
Sun Dec 10, 2017 10:48 am
Forum: Family, friends and carers
Topic: Thoughts from the PC frontline
Replies: 187
Views: 118809

Re: Thoughts from the PC frontline

Thanks DG and Sandra. Our oncologist is very conservative and always sticks to the prescribed NHS protocols. We've made it very clear to her what we'd prefer but she won't budge. As it is, as soon as I posted here that side-effects were minimal, horrible flu-like symptoms kicked in with a vengeance,...
by Wife&Mum
Sun Dec 10, 2017 10:25 am
Forum: General chat
Topic: A new Forum here?
Replies: 14
Views: 12049

Re: A new Forum here?

Thanks lovely ladies, for your comments. I think we’re all agreed that, for the unfortunate folk who suffer from serious health anxiety (which is a horrible horrible condition), this site isn’t the best place to hang out. Like Veema, I feel that people should be able to post before they get a diagno...
by Wife&Mum
Sat Dec 09, 2017 12:17 pm
Forum: General chat
Topic: A new Forum here?
Replies: 14
Views: 12049

A new Forum here?

Hi all I thought I would stick my neck out here and suggest that PCUK provide another forum on this site, to be called “Worried about possible pancreatic cancer”. The reason for my suggestion is that it would be easier for such worriers to find relevant information and mutual support. Also I don’t f...
by Wife&Mum
Fri Dec 08, 2017 10:41 am
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 759
Views: 285294

Re: Thanks for sharing your experiences . . .

Nope, I don’t think the NHS could run to a midnight feast. More likely they’re getting Peter ready for his breakfast. Grrrr.
Hope today is a better one for you and Peter.
xxx
by Wife&Mum
Thu Dec 07, 2017 3:42 pm
Forum: Family, friends and carers
Topic: Thoughts from the PC frontline
Replies: 187
Views: 118809

Re: Thoughts from the PC frontline

Hubby started Gem/Abraxane chemo this week and so far so good in terms of side-effects. We’re keen to minimise the number of hospital visits and treatments that he has to endure and we were hoping that instead of the standard ‘3 weeks on, 1 week off’ regime he could have the modified regime of Gem/A...
by Wife&Mum
Thu Dec 07, 2017 3:14 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 759
Views: 285294

Re: Thanks for sharing your experiences . . .

Thinking of you, Mo and Peter, and wishing Peter well. This latest scare does sound very scary so I hope you hear some reassuring words like “temporary” or “easily treatable” from a doctor when you visit today.
Much love as always
W&M xx
by Wife&Mum
Tue Dec 05, 2017 11:37 am
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 759
Views: 285294

Re: Thanks for sharing your experiences . . .

I’m not proud to say that I’m a member of the horrible person club too. But you’re so right, Quickly, it goes with the territory. If it wasn’t for meditation, yoga and long walks in the park I think I’d be lurching from sobbing to seething on a pretty much 24/7 basis.

W&M xx
by Wife&Mum
Fri Dec 01, 2017 1:09 pm
Forum: Ask the nurse
Topic: Usual waiting times for procedures
Replies: 20
Views: 23563

Re: Usual waiting times for procedures

Hi Robette, So sorry you’re going through all this! I’ve found the following timescales advice on the PCUK website here https://www.pancreaticcancer.org.uk/information-and-support/facts-about-pancreatic-cancer/how-is-pancreatic-cancer-diagnosed/tests-for-pancreatic-cancer/ “You may have to wait a fe...
by Wife&Mum
Thu Nov 30, 2017 11:08 am
Forum: Patient Experience Forum
Topic: 36 yo adv pancr cancer patient treated in France
Replies: 172
Views: 159119

Re: 36 yo adv pancr cancer patient treated in France

Rest in peace Stepuha.
You did everything you could to remain with your loved ones for as long as possible - such a brave, inspirational and exceptional lady.
by Wife&Mum
Tue Nov 21, 2017 11:21 am
Forum: Family, friends and carers
Topic: Thoughts from the PC frontline
Replies: 187
Views: 118809

Re: Thoughts from the PC frontline

Yes DG, haven’t ruled out profiling completely, it’s just that at the moment there isn’t enough tumour tissue for biopsying. Also I was disappointed to read recently that in the “Know your tumor” programme only around 25% of the people profiled have been found to have actionable genetic mutations. (...
by Wife&Mum
Tue Nov 21, 2017 11:05 am
Forum: Family, friends and carers
Topic: I feel like a fraud posting
Replies: 4
Views: 5998

Re: I feel like a fraud posting

Welcome to the forum Vikingv but I’m so sorry that you find yourself here. As DG says, there is nothing fraudulent about your feelings at this horrible time, you’re entitled to feel whatever you feel, and it won’t help you or your Dad if you beat yourself up about it. Easier said than done though. H...
by Wife&Mum
Mon Nov 20, 2017 1:07 pm
Forum: Family, friends and carers
Topic: Thoughts from the PC frontline
Replies: 187
Views: 118809

Re: Thoughts from the PC frontline

Hi DG, The lung nodule biopsy was needle through the skin. We were v impressed by the consultant who did it, he really took his time explaining everything before and after the procedure. In fact he’s won awards for the new technique that he used on hubby. Details here: https://www.royalfree.nhs.uk/n...
by Wife&Mum
Sun Nov 19, 2017 5:14 pm
Forum: Patient Experience Forum
Topic: Overwhelmed
Replies: 6
Views: 8205

Re: Overwhelmed

Dear Fifi, I’m sorry that you are going through such a hard time and hope that the doctors soon get to the bottom of what is making you feel so unwell. It probably hasn’t escaped your notice that the 3 previous responders to this thread have all done what you asked forum members not to do i.e. to ca...

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