Search found 177 matches

by Ruthus
Wed Sep 14, 2016 10:45 pm
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 224923

Re: Carls story

Hi Rob I am in the same situation in that I too have the results of my MRI liver scan at 1.30 p.m tomorrow. I have run all the scenarios through my head and have been decorating rooms in our house like a crazy woman as a distraction. I know the probability is there are liver mets but I don't know ho...
by Ruthus
Mon Sep 12, 2016 12:16 pm
Forum: Patient Experience Forum
Topic: My journey so far.
Replies: 33
Views: 34701

Re: My journey so far.

Hi JED I have not said hello yet and have been meaning too. You have done brilliantly with treatment and what a great response. It's lovely to have a chemo break isn't it. I loved having no chemo over the summer and noticed my hair got really thick again. I hope you have a positive response from the...
by Ruthus
Mon Sep 12, 2016 12:12 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 759
Views: 285212

Re: Thanks for sharing your experiences . . .

Hello Justamo Just a quick message to say welcome to the forum. I am sure you have already found the support here very helpful. This is your thread and space to type whatever you feel. It is therapeutic and the responses you will get will hopefully uplift and support you. I am glad to hear your husb...
by Ruthus
Mon Sep 12, 2016 12:00 pm
Forum: Family, friends and carers
Topic: Thank you and our story... but we are not that far yet!
Replies: 433
Views: 142296

Re: Thank you and our story... but we are not that far yet!

I like that thought too DG. If we can make it to that 12 months lets hold onto the thought that there is a 25% chance of making it to 5 years. If you told me this time last year that I would be in this position and thinking that if I had 5 years left to live I would be horrified but now it would be ...
by Ruthus
Mon Sep 12, 2016 11:38 am
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 175975

Re: Mum of 42 recently diagnosed inoperable PC

I know it's crazy isn't it DG. I have always exercised whether it's running,cycling,swimming or aerobics. I eat healthy and have always had healthy weight. I haven't drunk alcohol for three years as just don't like it. I am not a saint by any means. I used to socially smoke when I was in my 20's but...
by Ruthus
Sun Sep 11, 2016 8:11 pm
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 175975

Re: Mum of 42 recently diagnosed inoperable PC

Thanks DG and PW I have set up a Just Giving Page but not posted link yet as we are just waiting to hear from the PC fundraising team and then once this is set up on the fundraising page I will then post my Just Giving link on my thread and my other social media. It will hopefully happen this week a...
by Ruthus
Sun Sep 11, 2016 3:55 pm
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 175975

Re: Mum of 42 recently diagnosed inoperable PC

I am really sorry PW that I haven't been in touch off forum. The only reason why I haven't been in touch is because I couldn't see your email address on the email so wasn't sure best way to contact you (as email was sent via the PC nurses). It's nothing personal at all. I think the email has your mo...
by Ruthus
Sun Sep 11, 2016 9:02 am
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 175975

Re: Mum of 42 recently diagnosed inoperable PC

I am at the Great North Run today. My husband is running as he has done for many years now. I won't be running but will enjoy supporting and I'll be looking out for anyone wearing a purple T Shirt and running for PC. We are going to try and find the PC charity stall at the end of the race and have a...
by Ruthus
Mon Aug 29, 2016 11:11 am
Forum: Family, friends and carers
Topic: Thank you and our story... but we are not that far yet!
Replies: 433
Views: 142296

Re: Thank you and our story... but we are not that far yet!

It's a late response but just had a quick look at your latest news with regards to the scan and I am really happy for you all. That's great news. I am a little like PW in that I often find it difficult to look at threads as it's too upsetting for me. Fingers crossed the good response continues Ruth xx
by Ruthus
Sat Aug 27, 2016 11:41 am
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 175975

Re: Mum of 42 recently diagnosed inoperable PC

Didge - That's really good to hear that although your partner had a very aggressive form that he went on to have many good months. It is good to hear of stories where people with aggressive forms manage to live for longer periods of time with quality of life. I was in no doubt that if an operation w...
by Ruthus
Fri Aug 26, 2016 2:45 pm
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 175975

Re: Mum of 42 recently diagnosed inoperable PC

It's opened up lots of issues to consider. I suppose any cancer can be aggressive. There are certain breast cancers which are known as being aggressive despite breast cancer treatment and prognosis generally being good now a days compared to other cancers. Any cancer which is deemed inoperable or ha...
by Ruthus
Fri Aug 26, 2016 11:50 am
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 175975

Re: Mum of 42 recently diagnosed inoperable PC

I find it very confusing knowing what to believe with regards to waiting times with PC. I've read stories where it states every day counts with PC then on the flip side have heard and had personal experience of professionals stating waiting a week, or 2-3 weeks won't make any significant clinical di...
by Ruthus
Thu Aug 25, 2016 12:32 pm
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 175975

Re: Mum of 42 recently diagnosed inoperable PC

I wanted to post this on my own thread as I think it's an important observation about the waiting times for pancreatic cancer patients. I typed it in response to a comment made on another thread with regards to waiting times for PC. It is something I have become aware of more and more through my own...
by Ruthus
Thu Aug 25, 2016 12:28 pm
Forum: Family, friends and carers
Topic: Advice Please
Replies: 7
Views: 8580

Re: Advice Please

Hello North Yorkshire I am aware you may not read this soon as have left the forum for the time being. In case you do pop onto the forum I just wanted to add a little information. I am very sorry your friends are going through this terrible time. It is truly devastating when you are given the news t...
by Ruthus
Thu Aug 25, 2016 11:54 am
Forum: Patient Experience Forum
Topic: Stephen's Story
Replies: 127
Views: 120165

Re: Stephen's Story

Hi Sandimac I haven't posted on your thread before and have just read it from start to finish. I thought I would spend an hour this morning reading others threads and offering support if I can. It sounds like you are doing a marvelous job as carer for your husband. It must be so difficult when your ...

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