Search found 131 matches

by boa
Sat Mar 05, 2016 8:06 am
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 347551

Re: So far so good!

Paige
Thanks for posting. Your dad was an incredible inspiration to everyone here. My sincere condolences to you and your family. Catherine
by boa
Sat Mar 05, 2016 8:02 am
Forum: Coping with loss/ Memorial
Topic: Slewis7313
Replies: 10
Views: 21272

Re: Slewis7313

Very sorry to hear this. Steve was an inspirational man and as others have said was so supportive to everyone.
Catherine
by boa
Thu Feb 25, 2016 7:53 am
Forum: Treatment & side effects
Topic: Newspaper article
Replies: 8
Views: 12977

Re: Newspaper article

Thanks for posting. Very interesting. I do hope it's a break through in understanding pancreatic cancer.
Catherine
by boa
Wed Feb 24, 2016 7:42 am
Forum: Family, friends and carers
Topic: frustrated
Replies: 361
Views: 129297

Re: frustrated

Good to hear this. I think you will find Steve will be most comfortable and it will give you a chance to be more relaxed. Hospices are wonderful with superb people working in them.
Catherine
by boa
Sun Feb 21, 2016 3:58 pm
Forum: Advanced pancreatic cancer
Topic: Totally in awe of my wonderful Husband!
Replies: 494
Views: 234694

Re: Totally in awe of my wonderful Husband!

Proud Wife I can totally empathise with what you are saying having been in this position with my husband and I understand your wish to be well prepared for Thursday. I can't really add anything to what Dianne has said about CA 19 9 levels. My husband was on a Gemcitabine regime prior to Folfirinox. ...
by boa
Sun Feb 21, 2016 8:45 am
Forum: Family, friends and carers
Topic: frustrated
Replies: 361
Views: 129297

Re: frustrated

Hope today is good for you. I understand exactly how you feel. My husband ordered a new razor when he really wasn't too good because he was very particular just like your Steve but then he refused to wash. I think they just feel too tired. I'm thinking of you.
Catherine
by boa
Sat Feb 20, 2016 12:42 pm
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 214645

Re: Mum of 42 recently diagnosed inoperable PC

Wife&Mum
Agree with you. Johncaster posts are unhelpful and are just advertising a health tourism company. I hope they stop.
by boa
Sat Feb 20, 2016 12:15 pm
Forum: Family, friends and carers
Topic: frustrated
Replies: 361
Views: 129297

Re: frustrated

Sheena, just thinking of you both. You have done so well over the last 11 months and are great to be so strong now. Catherine
by boa
Thu Feb 18, 2016 2:34 pm
Forum: Advanced pancreatic cancer
Topic: Worried newbie
Replies: 18
Views: 25446

Re: Worried newbie

Good news. I'll just add a conversation that we had with an excellent GI Consultant which is that fluid is likely to return but it can be drained off again. The Consultant said that she had a number of patients who came every couple of weeks for draining. Whilst John may wish to come home quickly ma...
by boa
Thu Feb 18, 2016 7:58 am
Forum: Advanced pancreatic cancer
Topic: Worried newbie
Replies: 18
Views: 25446

Re: Worried newbie

That's very good news and John will feel relief with the draining process. Great that he is eating well. When there is a lot of fluid people go off food as they feel full. Hope you got a good night's sleep.
by boa
Wed Feb 17, 2016 4:06 pm
Forum: Advanced pancreatic cancer
Topic: Worried newbie
Replies: 18
Views: 25446

Re: Worried newbie

Scoobysnack, I am sorry to hear all this about John. I am no expert but as Didge says a build up of fluid in the abdomen can be drained off and give relief. There was also doubt with my husband whether the swollen stomach was gas or fluid. I understand that gas may build up if a person is constipate...
by boa
Fri Feb 12, 2016 5:07 pm
Forum: General chat
Topic: Positive thinking
Replies: 11
Views: 12676

Re: Positive thinking

Similarly, I do not like the term 'fighting cancer' because that implies if it gets the better of you that you have not fought hard enough whereas as you say the outcomes are down to biology and medical treatment.
by boa
Fri Feb 05, 2016 7:37 am
Forum: Family, friends and carers
Topic: frustrated
Replies: 361
Views: 129297

Re: frustrated

Sheena, I just wanted to say I understand how difficult it is for you both and I am thinking of you. Just keep up your wonderful support for Steve. The high blood sugar may be making him a bit confused in his thoughts. My husband could be like that saying things that were out of character. Catherine
by boa
Sat Jan 30, 2016 7:33 am
Forum: Treatment & side effects
Topic: any information or experiences very welcome
Replies: 18
Views: 22864

Re: any information or experiences very welcome

Hello Helen I think your Grandma is likely to be taking steroids as part of her Folfirinox regime. In my husband's situation this caused his blood sugar to go sky high and instead of tablets he had to inject insulin. Folfirinox is a very aggressive regime and can cause many side effects. That your G...
by boa
Fri Jan 22, 2016 5:04 pm
Forum: Family, friends and carers
Topic: Our Story
Replies: 33
Views: 23508

Re: Our Story

This will be my last personal post but I'll pop in from time to time in case I can help. It was Stephen's funeral today and my brother in law led it with three friends saying something about him. Our music was from a Gilbert and Sullivan opera which we both liked. Although we do not follow a relious...

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