Search found 65 matches

by Marieb
Thu Sep 24, 2015 9:59 pm
Forum: Advanced pancreatic cancer
Topic: Any advice will be greatly appreciated
Replies: 25
Views: 24800

Re: Any advice will be greatly appreciated

Hi Levi, how is your mum getting on? Would be good to hear how she is progressing and any news of Nanoknife.
by Marieb
Thu Sep 24, 2015 9:47 pm
Forum: Advanced pancreatic cancer
Topic: So frightened for my Dad
Replies: 31
Views: 23526

Re: So frightened for my Dad

Hi Kate So sorry to hear about your dad. For many of us the story of misdiagnosis is very familiar and one that I can personally relate to. It makes me so mad that this is considered to be a silent cancer...I wasn't silent, I was complaining with the key symptoms for months! I am so sorry to hear th...
by Marieb
Thu Sep 24, 2015 9:33 pm
Forum: Advanced pancreatic cancer
Topic: Newly diagnosed 45 yr old mum of 4
Replies: 87
Views: 71784

Re: Newly diagnosed 45 yr old mum of 4

Hi all, sorry I haven't updated in a while but it feels like I have been through a rough few weeks. It appears now that my first spell in hospital was down to a reaction to the Irinoteken. I just don't seem to tolerate it well at all They took to giving me a vile of aatripine to be administered by a...
by Marieb
Fri Aug 07, 2015 1:40 pm
Forum: Advanced pancreatic cancer
Topic: Newly diagnosed 45 yr old mum of 4
Replies: 87
Views: 71784

Re: Newly diagnosed 45 yr old mum of 4

Hi all, was a bit quick in my news of having a good response to the chemo. unfortunately things got worse over night and I was admitted to hospital with a suspected infection. In the end my bloods etc were normal and they just believe I had a bad reaction to it. Was all a bit scary at the time but I...
by Marieb
Mon Aug 03, 2015 7:03 pm
Forum: Advanced pancreatic cancer
Topic: Newly diagnosed 45 yr old mum of 4
Replies: 87
Views: 71784

Re: Newly diagnosed 45 yr old mum of 4

Hi all, pleased to say my first cycle has gone well so far...understanding it's early days. Seem to have tolerated it well in the clinic and now at home with my pump attached.
by Marieb
Mon Aug 03, 2015 6:17 am
Forum: Treatment & side effects
Topic: Folfirinox & Hair Loss
Replies: 7
Views: 11673

Re: Folfirinox & Hair Loss

One person recently told me not to go down the root of shaving my head when it starts to fall out as it can be more sore. Not sure there is any truth in that...anyone know?
by Marieb
Mon Aug 03, 2015 6:15 am
Forum: Family, friends and carers
Topic: Bad news
Replies: 107
Views: 40019

Re: Bad news

Oh Didge, I am so sorry to hear of Rob passing. I haven't known you long on here but I took to you immediately. A kindly kindred soul.

Please take care of yourself, this is so cruel.

Love Marie x
by Marieb
Mon Aug 03, 2015 6:07 am
Forum: Family, friends and carers
Topic: Mum's diagnosis
Replies: 650
Views: 219640

Re: Mum's diagnosis

Hi Sue Hope your mum is okay and that you are managing to enjoy life too. I have 2 elderly I laws who's health has deteriorated a lot over the last few months. Going from Independant to multiple hospital visits and falls to having to arrange an extensive care package at home for them. It's not Cance...
by Marieb
Mon Aug 03, 2015 5:58 am
Forum: Advanced pancreatic cancer
Topic: Newly diagnosed 45 yr old mum of 4
Replies: 87
Views: 71784

Re: Newly diagnosed 45 yr old mum of 4

Well the big first day of chemo is nearly on me and I feel ok. I had my Hickman Line fitted on Friday in preparation...think I was dreading that more than anything, but that too was much less painful than I had imagined. It all went very smoothly and apart from being uncomfortable was fine. One of m...
by Marieb
Mon Jul 27, 2015 8:22 pm
Forum: Treatment & side effects
Topic: Folfirinox & Hair Loss
Replies: 7
Views: 11673

Re: Folfirinox & Hair Loss

Thank you both, I had read another post where the persons hair fell out very quickly so I just want to prepare myself for it. When I was diagnosed I broke the news to my kids and we all had a good laugh about me going bald. They have decided they will buy washable markers and write silly messages on...
by Marieb
Sun Jul 26, 2015 6:47 pm
Forum: Advanced pancreatic cancer
Topic: Newly diagnosed 45 yr old mum of 4
Replies: 87
Views: 71784

Re: Newly diagnosed 45 yr old mum of 4

I like that Didge lol....we have to grasp on to moments of humour even when it's bad humour! I am thinking of starting a real blog as I find writing about my experiences therapeutic and as time goes on I know I will need distractions. Take care Didge, I know times are difficult for you just now x Ma...
by Marieb
Sun Jul 26, 2015 5:42 pm
Forum: Treatment & side effects
Topic: Folfirinox & Hair Loss
Replies: 7
Views: 11673

Folfirinox & Hair Loss

Hi all

I am about to start my first cycle of Folffirinox and wanted to know your experiences of hair loss.

Is it something that happens quickly?

Marie x
by Marieb
Sun Jul 26, 2015 12:53 pm
Forum: Advanced pancreatic cancer
Topic: Any advice will be greatly appreciated
Replies: 25
Views: 24800

Re: Any advice will be greatly appreciated

Hi Levi Just catching up on your posts today as there has been a lot happening on my side of thing. The last time I posted my EUS had been abandoned as the doc felt continuing was unsafe. Hearing that no biopsies had been taken was hard. However they turned it around very quickly and tried again, 2n...
by Marieb
Sun Jul 26, 2015 8:59 am
Forum: Family, friends and carers
Topic: Bad news
Replies: 107
Views: 40019

Re: Bad news

Hi Didge Just wanted to to say what an amazing person you are. You have offered me support a number of times whilst you are obviously going through so much. I have no inspirational words of comfort to offer as I am so new to this but I do have recent experience of having my mum in a hospice. It's re...
by Marieb
Sat Jul 25, 2015 5:10 pm
Forum: Advanced pancreatic cancer
Topic: Newly diagnosed 45 yr old mum of 4
Replies: 87
Views: 71784

Re: Newly diagnosed 45 yr old mum of 4

Hi all In addition to coming onto this forum to get support, I created a secret Facebookgroup and invited my closest friends and family. The initial idea was to have an easy mechanism for updating them all in the early days of what was happening in relation to tests, diagnosis etc and also to allow ...

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