Search found 173 matches

by sheena
Fri Feb 19, 2016 9:16 pm
Forum: Family, friends and carers
Topic: frustrated
Replies: 361
Views: 109059

Re: frustrated

Hi jeni yes it is very different here referral from Dr to palliative nurse who refers to hospice who then comes to assess Steve.So hopefully sometime next week.Steve hardly eating now and sleeping more.has lost all interest in things he loved .He can't really be bothered to talk and when he does its...
by sheena
Wed Feb 17, 2016 3:47 pm
Forum: Family, friends and carers
Topic: frustrated
Replies: 361
Views: 109059

Re: frustrated

So mad - Steve's palliative nurse is on hols for a week so we have a stand in. Phoned her as not heard anything about hospice. Apparently we have to wait till next week then she can refer him as she is a stand in and he isn't her patient she can't do it. So Will have to wait till Monday before he ge...
by sheena
Tue Feb 16, 2016 6:17 pm
Forum: Family, friends and carers
Topic: frustrated
Replies: 361
Views: 109059

Re: frustrated

No bed yet hopefully tomorrow .jeni I will make sure he takes his own meds with him don't worry I will make sure about creon and Steve knows he has to take them .
by sheena
Mon Feb 15, 2016 9:05 pm
Forum: Family, friends and carers
Topic: Mum's diagnosis
Replies: 650
Views: 214844

Re: Mum's diagnosis

Well done sue sending you a huge hug x
by sheena
Mon Feb 15, 2016 9:03 pm
Forum: Family, friends and carers
Topic: frustrated
Replies: 361
Views: 109059

Re: frustrated

Palliative nurse been today- reckons Steve is depressed. His Dr phoned us and wanted to see Steve at 5pm. Have given him anti depressants and reckons they might help him. Also is trying to get him into hospice for some respite but won't know till tomorrow if there is a free bed. Feeling happy about ...
by sheena
Sun Feb 14, 2016 11:09 pm
Forum: Family, friends and carers
Topic: Feeling totally lost
Replies: 105
Views: 42423

Re: Feeling totally lost

Hi shelda sorry you are in a up hill struggle.I too have to fight for every scrap of info and felt once my hubby was diagnosed we were left to our own devices.being on this forum has been a godsend ,I know no what I need to do /ask/say ,and I now stand up proud and shout loudly when I need answers.k...
by sheena
Sun Feb 14, 2016 11:00 pm
Forum: Family, friends and carers
Topic: frustrated
Replies: 361
Views: 109059

Re: frustrated

A quick catch up everything about the same except Steve fell over and hurt his bottom.I can see him getting worse each day just little things that he could do but now struggles with.thanks for advice I really don't have alot of help as all my children work and so do I.we are lucky that Steve's work ...
by sheena
Thu Feb 11, 2016 10:02 pm
Forum: Family, friends and carers
Topic: frustrated
Replies: 361
Views: 109059

Re: frustrated

Hi, all well. What a horrid week so far. Everything has gone wrong, bad indigestion, feeling sick, not sleeping and more weight loss. Wednesday night Steve had enough and wanted to die. Spent 3 hours trying to perk him up but nothing helped. Palliative nurse came today and she was amazing. Because h...
by sheena
Sun Feb 07, 2016 12:08 am
Forum: Family, friends and carers
Topic: frustrated
Replies: 361
Views: 109059

Re: frustrated

Ty didge you really have to have been through it to know how we feel,you are always there to support us and I am truly grateful for that x
by sheena
Sat Feb 06, 2016 11:26 pm
Forum: Family, friends and carers
Topic: frustrated
Replies: 361
Views: 109059

Re: frustrated

To all you wonderful people you are all my rock. I have wasted hours at various appointments and got more confused at each one. Most of what I was told contradicted what the last dietician, nurse , Dr,diabetes nurse etc told us. Nothing helped, BUT when I come on here you explain it all simply to me...
by sheena
Fri Feb 05, 2016 9:36 pm
Forum: Family, friends and carers
Topic: frustrated
Replies: 361
Views: 109059

Re: frustrated

Ty all. After a really bad night, the worst one yet as I am so tired, but survived the day. Got peppermint water and thank God it is working. Purchased a lot of pillows so he is well propped up and feeling more comfortable. Sugar level is down to 14·5 so hopefully will keep going down. I am sure thi...
by sheena
Thu Feb 04, 2016 11:48 pm
Forum: Family, friends and carers
Topic: frustrated
Replies: 361
Views: 109059

Re: frustrated

It's almost midnight and I can't get Steve comfortable. He has bad indigestion, belching a lot, pain in lower back. He feels sick but can't. He doesn't want to go on any more and I am crying because I feel so helpless. He wants to die and has even mentioned taking his life. Why is life so cruel? How...
by sheena
Thu Feb 04, 2016 9:21 pm
Forum: Family, friends and carers
Topic: frustrated
Replies: 361
Views: 109059

Re: frustrated

No I asked about steroids and they said to keep taking them. He was only prescribed 12 so only has a few left. It's funny because Steve said since he been taking the, he has felt worse. We have community nurse now twice a day so a bit more help. Levels today are 21·5 so not going down much. Unfortun...
by sheena
Wed Feb 03, 2016 8:41 pm
Forum: Family, friends and carers
Topic: frustrated
Replies: 361
Views: 109059

Re: frustrated

Saw dietician who says Steve is taking too much creon. So had a go at her and said don't think so. He isn't allowed the fortisips as too much sugar. Didn't really learn much from her so a waste of time. Steve wasn't feeling good yesterday so went to see chemo nurses. His blood sugar has gone up to 3...
by sheena
Sun Jan 31, 2016 10:57 pm
Forum: Advanced pancreatic cancer
Topic: Totally in awe of my wonderful Husband!
Replies: 494
Views: 187050

Re: Totally in awe of my wonderful Husband!

Congratulations didge at last something beautiful has happened enjoy your little bundle x

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