Search found 126 matches

by kittycat
Wed Aug 05, 2015 5:05 pm
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 244663

Re: Carls story

It's lovely to hear such good news, long may it continue.

Sue
by kittycat
Wed Aug 05, 2015 12:12 pm
Forum: Patient Experience Forum
Topic: My first chemo
Replies: 14
Views: 13414

Re: My first chemo

Hope you're feeling better today. My husband had his dose reduced by 15% after suffering really badly with sickess and has been better on the lower dose but I'm sure your oncologist can help with the side effects you're experiencing.

Sue
by kittycat
Wed Aug 05, 2015 12:08 pm
Forum: Family, friends and carers
Topic: Mum's battle
Replies: 29
Views: 14396

Re: Mum's battle

So sorry about your Mum, it must be very difficult. Thinking about you.

Sue
by kittycat
Sun Aug 02, 2015 5:57 pm
Forum: Patient Experience Forum
Topic: My first chemo
Replies: 14
Views: 13414

Re: My first chemo

Hi Kaye, my husband has now had 6 cycles of for folforinox and the side effects have been slightly different each time but when he had the awful sickness he was prescribed metoclopramide and steroids and after a bit of tweaking it was controlled better. I think there are other medications that can b...
by kittycat
Sun Aug 02, 2015 11:25 am
Forum: Patient Experience Forum
Topic: Newbie Diagnosis Rollercoaster
Replies: 50
Views: 44757

Re: Newbie Diagnosis Rollercoaster

Good luck Lisa, I will be thinking of you.

Sue
by kittycat
Sun Aug 02, 2015 11:24 am
Forum: Family, friends and carers
Topic: Mum's battle
Replies: 29
Views: 14396

Re: Mum's battle

Bev, so sorry your Mum is so poorly but at least she's home with her family around her and getting the care she needs. It must be very difficult for you but you're doing everything you can. Take care.

Sue
by kittycat
Sat Aug 01, 2015 7:53 pm
Forum: Family, friends and carers
Topic: Roger's Story
Replies: 73
Views: 33114

Re: Roger's Story

Hi Sandra, Roger started to feel better yesterday and is still very tired but less so as the days go on. We had some good news on Thursday when we were told that his ca19.9 had gone from 3300 to 2100 and I know that doesn't mean a massive amount, but it did raise our spirits after a difficult week. ...
by kittycat
Sat Aug 01, 2015 7:15 pm
Forum: Treatment & side effects
Topic: How do I know if creons are doing any good?
Replies: 4
Views: 8675

Re: How do I know if creons are doing any good?

Hi leila, yes he is, but only once a day and it is definitely getting better. He is managing to maintain his weight just about, but does the amount of fat in the meal dictate the amount of creons he should take? He's taking 100,000 with a meal and 25,000 with a snack. Some of his meals are quite hig...
by kittycat
Sat Aug 01, 2015 4:41 am
Forum: Family, friends and carers
Topic: Bad news
Replies: 107
Views: 40330

Re: Bad news

So sorry to hear your sad news Didge, you've been such a support to everyone even though you've been going through a really difficult time yourself. Take care.

Sue
by kittycat
Tue Jul 28, 2015 8:35 am
Forum: Family, friends and carers
Topic: Roger's Story
Replies: 73
Views: 33114

Re: Roger's Story

Had the most awful day yesterday. Roger was asleep for quite a lot of it and felt pretty dreadful for the rest of the day. He says himself that he can't go on like this but he's just trying to get through the next chemo and then nanoknife but he just feels awful and everyday I think tomorrow will be...
by kittycat
Mon Jul 27, 2015 6:05 pm
Forum: Family, friends and carers
Topic: My Dads diagnosis
Replies: 106
Views: 43021

Re: My Dads diagnosis

My husband is booked for Nanoknife in August. Our Oncologist sent his scans to the *** ****, we had a consultation in London and the procedure was fixed for the 1st July but unfortunately Roger was taken into hospital and we had to postpone. We have since sent off his latest scan and he is still sui...
by kittycat
Mon Jul 27, 2015 6:00 pm
Forum: Patient Experience Forum
Topic: Newbie Diagnosis Rollercoaster
Replies: 50
Views: 44757

Re: Newbie Diagnosis Rollercoaster

Lisa, that's good news. Things are moving forward for you, good luck.

Sue
by kittycat
Sun Jul 26, 2015 6:44 pm
Forum: Treatment & side effects
Topic: Folfirinox & Hair Loss
Replies: 7
Views: 11707

Re: Folfirinox & Hair Loss

Hi Marie, my husband has had 5 cycles and although his hair has thinned, he still has plenty and I would say that it's been a gradual process. Good luck.

Sue
by kittycat
Sun Jul 26, 2015 9:11 am
Forum: Treatment & side effects
Topic: How do I know if creons are doing any good?
Replies: 4
Views: 8675

Re: How do I know if creons are doing any good?

Thanks Fiona, I'll take this up with the Oncologist this week. It's just so demorallising to keep trying to feed him up to no effect. The dietician says we're doing all the right things but you can't help wondering what more you can do, but I will pursue the SIBO on Thursday.

Sue
by kittycat
Sun Jul 26, 2015 8:53 am
Forum: Patient Experience Forum
Topic: Months rather than years!
Replies: 15
Views: 21292

Re: Months rather than years!

Kaye, I know how you feel - my husband was diagnosed in March with inoperable PC and it was something we never expected. We had been living the dream and it all came to a sudden end. At first I was angry that symptoms had been missed for so long but decided there was no point in dwelling on that as ...

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