Search found 126 matches

by kittycat
Wed Aug 19, 2015 3:06 am
Forum: Patient Experience Forum
Topic: My Journey So Far
Replies: 215
Views: 125270

Re: My Journey So Far

Hi Mark, how lovely to hear such positive news, I hope it continues for a long time.

Sue
by kittycat
Sun Aug 16, 2015 10:15 am
Forum: Treatment & side effects
Topic: Folfirinox and fatigue
Replies: 12
Views: 13572

Re: Folfirinox and fatigue

Thanks Steve, sorry you're suffering so as well. Roger is just the same, worn out after eating and we're just hoping that this modified chemo will do the trick. I did ask about alternative chemo but they said that if he couldn't tolerate this one they would rather save any other chemo 'for later'. N...
by kittycat
Sun Aug 16, 2015 10:09 am
Forum: Family, friends and carers
Topic: Mum's diagnosis
Replies: 650
Views: 220313

Re: Mum's diagnosis

Oh sue, that's awful! I know what you mean about one thing after another but try to stay strong if you can and surely things will improve soon. This is truly a dreadful disease.

Sue
by kittycat
Sun Aug 16, 2015 10:06 am
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 309480

Re: So far so good!

Hi Steve, sorry to see you're having problems but good to see you're still fighting the blighter!

Sue
by kittycat
Sat Aug 15, 2015 7:08 pm
Forum: Treatment & side effects
Topic: Folfirinox and fatigue
Replies: 12
Views: 13572

Re: Folfirinox and fatigue

Hi Julia, yes, we made it to London and all went well so we're just hoping that it will have the desired effect. He has no more pain than before but he does have diarrhoea and has been advised to stop his antibiotics so hopefully that will clear soon. We managed to get out for a couple of hours toda...
by kittycat
Fri Aug 14, 2015 5:10 pm
Forum: Treatment & side effects
Topic: Folfirinox and fatigue
Replies: 12
Views: 13572

Re: Folfirinox and fatigue

Julia, this sounds just like my husband, he can't do much at all and it's fortunate that we're retired because he'd never be able to go to work. His chemo is to be reduced slightly next time, but he's just worn out that I don't know how much difference it will make. They seem reluctant to change his...
by kittycat
Fri Aug 14, 2015 5:04 pm
Forum: Family, friends and carers
Topic: Roger's Story
Replies: 73
Views: 33115

Re: Roger's Story

Just thought I'd update on Rogers over the last week or so. He's suffered so badly with fatigue since his last chemo that he has been given a week off to try to get over it before the next cycle. Diarrhoea has been a bit of an issue too and that hasn't helped his weight problem either but I'm hoping...
by kittycat
Mon Aug 10, 2015 9:00 pm
Forum: Treatment & side effects
Topic: Folfirinox and fatigue
Replies: 12
Views: 13572

Re: Folfirinox and fatigue

Thanks for your responses, it looks like Roger isn't on his own with this. He's been really bad again today and we should be travelling to London tomorrow for nanoknife but I can't be sure he's up to it. We've had to cancel once so I think it's now or never and just hope he'll feel better in the mor...
by kittycat
Sun Aug 09, 2015 7:52 pm
Forum: Treatment & side effects
Topic: Folfirinox and fatigue
Replies: 12
Views: 13572

Folfirinox and fatigue

Is it usual to have severe fatigue for a whole week on this regime. Roger has had his 6th cycle and has spent most of the last week asleep. He goes to bed after breakfast, after lunch and then again after dinner before getting up to watch a bit of TV. The last cycle was about 3 days like this and ot...
by kittycat
Sat Aug 08, 2015 2:36 pm
Forum: Advanced pancreatic cancer
Topic: Gutted sister couldn't start her Chemo
Replies: 17
Views: 15884

Re: Gutted sister couldn't start her Chemo

What an awful situation your sister is in. It's a good job you are all supporting her in this. How is she in herself as it must be terrible being in prison let alone having this dreadful disease.

Sue
by kittycat
Sat Aug 08, 2015 2:32 pm
Forum: Family, friends and carers
Topic: Mum's diagnosis
Replies: 650
Views: 220313

Re: Mum's diagnosis

So sorry it wasn't better news. Hope they get the pain sorted soon.

Sue
by kittycat
Sat Aug 08, 2015 2:31 pm
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 244663

Re: Carls story

Wow, what an inspiring story which gives hope to us all. Wish I lived nearer to try one of his wraps, they look delicious.

Sue
by kittycat
Fri Aug 07, 2015 11:09 am
Forum: Family, friends and carers
Topic: New Member......so glad I found this forum
Replies: 23
Views: 15813

Re: New Member......so glad I found this forum

Hi Ali, I know it's such a difficult time watching a loved one suffer when there seems so little you can do to help. My husband has had 6 folfironox and initially suffered really badly with sickness but this now seems better controlled through medication. His hair is definitely thinning but it's sti...
by kittycat
Fri Aug 07, 2015 11:01 am
Forum: Advanced pancreatic cancer
Topic: Gutted sister couldn't start her Chemo
Replies: 17
Views: 15884

Re: Gutted sister couldn't start her Chemo

Hope your sister can get her chemo next week. I know you probably just want to get on with the treatment and it's really difficult when it keeps getting delayed. Is there any news on her early release yet as I'm sure you'd both feel better if she was home.

Sue
by kittycat
Fri Aug 07, 2015 10:58 am
Forum: Family, friends and carers
Topic: Mum's diagnosis
Replies: 650
Views: 220313

Re: Mum's diagnosis

Hope you mum I'd getting her pain under control and that the X ray brings some good news. Thinking of you both.

Sue

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