Search found 126 matches

by kittycat
Thu Sep 10, 2015 6:38 am
Forum: Family, friends and carers
Topic: Roger's Story
Replies: 73
Views: 32278

Re: Roger's Story

Roger is still in hospital and due to have an ECRP tomorrow when they will replace his stent in his bilary duct and insert one into his duodenum as the mass seems to be pressing on it and causing a blockage. Unfortunately they've decided to change his insulin and he only starts that today and needs ...
by kittycat
Thu Sep 10, 2015 6:30 am
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 228224

Re: Carls story

As others have said, I hope this is just a blip and you get better news soon. Carl is such a fighter and an inspiration to us all.

Sue
by kittycat
Thu Sep 10, 2015 6:28 am
Forum: Family, friends and carers
Topic: My Dads diagnosis
Replies: 106
Views: 41890

Re: My Dads diagnosis

So sorry to hear that your Dad is in such pain, my heart goes out to you. It's so difficult to see the ones that you love so suffer as they do and every day of waiting for something to be done seems to be an age. I can imagine how you feel at the moment as I'm going through a dreadful time myself ri...
by kittycat
Fri Sep 04, 2015 8:46 am
Forum: Family, friends and carers
Topic: Roger's Story
Replies: 73
Views: 32278

Re: Roger's Story

I didn't think it could happen but Roger is now off fluids, morphine driver and catheter although there was a bit of a hiccup with the last one when things took a little longer to get working than had been hoped. He has had an ultrasound scan which shows that his stent is blocked and will now have a...
by kittycat
Wed Sep 02, 2015 6:41 am
Forum: Family, friends and carers
Topic: Roger's Story
Replies: 73
Views: 32278

Re: Roger's Story

Roger was in no pain yesterday but still on fluids and the catheter. I'm concerned that they're getting him ready for coming home as they were asking about support at home with practical things and are sending the Occupational Health people to see me and also about going home with the syringe driver...
by kittycat
Tue Sep 01, 2015 10:07 am
Forum: Family, friends and carers
Topic: Roger's Story
Replies: 73
Views: 32278

Re: Roger's Story

Thank you, Jay, I see you lost your hubby last year - I don't know how you coped. I've spoken to Macmillan this morning and she says to take one day at a time and I try to do this but it's so hard, especially when you see the one you love suffering so. I'm off to the hospital now as I need to be wit...
by kittycat
Tue Sep 01, 2015 8:44 am
Forum: Advanced pancreatic cancer
Topic: Tumour size
Replies: 64
Views: 45142

Re: Tumour size

Hope your Dad is feeling more comfortable now with the drain sorted. Regarding the Creons, we have the 25,000 capsules and don't have a problem with them at all but we can't get the 40,000 anymore which I believe have been discontinued. We also have the 10,000 ones but tend to use the larger dosage ...
by kittycat
Tue Sep 01, 2015 7:58 am
Forum: Family, friends and carers
Topic: Roger's Story
Replies: 73
Views: 32278

Re: Roger's Story

Well, things are not good at the moment. Roger is in hospital for the second time in a fortnight. The first time he had a chest infection and had a dreadful time in hospital. Then last Friday he was in awful pain with his back and pain and discomfort in his stomach but the GP decided he didn't need ...
by kittycat
Sat Aug 29, 2015 11:59 am
Forum: Family, friends and carers
Topic: Husband J Severe D & V
Replies: 26
Views: 11481

Re: Husband J Severe D & V

Elsie, I know exactly how you feel. From having an active social life only a few months ago to no routine at all and just seeing the one you love either asleep or sitting in a chair is soul destroying.

Sue
by kittycat
Fri Aug 28, 2015 11:01 am
Forum: Family, friends and carers
Topic: Mum's diagnosis
Replies: 650
Views: 214745

Re: Mum's diagnosis

Enjoy your day and I hope the sun shines for you too.

Sue
by kittycat
Tue Aug 25, 2015 11:15 am
Forum: Family, friends and carers
Topic: Steve's story
Replies: 25
Views: 12640

Re: Steve's story

Sorry to hear that Steve isn't so well. I find it really is a roller coaster ride with no 2 days the same. Hope things improve soon.

Sue
by kittycat
Mon Aug 24, 2015 6:39 am
Forum: Family, friends and carers
Topic: Roger's Story
Replies: 73
Views: 32278

Re: Roger's Story

Hi leila, Roger is in really good spirits now he's home and still optimistic. The diarrhoea is controlled and he's eating well again, so all good there. I did ask if I could be instructed on flushing the picc but they said no, the district nurse could do it if I want but we're trying to keep her at ...
by kittycat
Sun Aug 23, 2015 4:50 pm
Forum: Family, friends and carers
Topic: Roger's Story
Replies: 73
Views: 32278

Re: Roger's Story

Well, we're not having a very good time at the moment. Roger had to stop the antibiotics after Nanoknife because of terrible diarrhea and subsequently developed a chest infection. He was admitted to hospital and because the oncology wards were full he was put in a ward the other side of the hospital...
by kittycat
Wed Aug 19, 2015 3:21 am
Forum: Treatment & side effects
Topic: Folfirinox and fatigue
Replies: 12
Views: 13303

Re: Folfirinox and fatigue

hi Julia, yes, things are much better this week, having a week of the chemo has made an awful lot of difference to Roger. Although he still needs an afternoon nap, he is feeling much better, his appetite is good and he is very optimistic so I can only hope that it continues. As you say, onwards and ...
by kittycat
Wed Aug 19, 2015 3:17 am
Forum: Family, friends and carers
Topic: Husband J Severe D & V
Replies: 26
Views: 11481

Re: Husband J Severe D & V

Hi Elsie, welcome to the forum, I'm sure you'll find a wealth of information and support on here as I and many others have. I was sorry to hear about your husband's reaction to Folfironox, it really is a very toxic treatment and everyone seems to tolerate the side effects differently. My husband has...

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