Search found 503 matches

by Veema
Tue Jul 31, 2018 7:51 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 105
Views: 76066

Re: This cruel disease

Lovely news.

Vx
by Veema
Tue Jul 31, 2018 7:48 pm
Forum: Family, friends and carers
Topic: Sadness
Replies: 11
Views: 9368

Re: Sadness

Kerry, I'm pleased your dad got a bed at the hospice. I just hope that things remain calm and peaceful for you all now.

much love

Vx
by Veema
Tue Jul 31, 2018 5:14 pm
Forum: Patient Experience Forum
Topic: Nano knife for Stage IV PC.
Replies: 41
Views: 31297

Re: Nano knife for Stage IV PC.

You need Dandygal...she researched nanoknife and I'm pretty sure her dad had consultations...maybe have a look at her threads (http://forum.pancreaticcancer.org.uk/viewtopic.php?f=4&t=1737 ). Also Ruthus's thread ( http://forum.pancreaticcancer.org.uk/viewtopic.php?f=28&t=1700&hilit=nanoknife) If yo...
by Veema
Mon Jul 30, 2018 9:50 am
Forum: General chat
Topic: Holiday Insurance
Replies: 3
Views: 4789

Re: Holiday Insurance

Try MIA, they specialise in insurance for those with pre-existing medical issues, even terminal cancer.

http://www.miatravelinsurance.co.uk/

I think we used AllClear the last time we went away when Nige's had metastasised but it was £650.

Good luck

Vx
by Veema
Sun Jul 29, 2018 9:19 am
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 66
Views: 42570

Re: First folfirinox experience

Michaela...congratulations! Pleased the day went well. To start a new thread, click on the forum you want to post on, Patient Experience Forum will probably be best for you, then there's a little blue button that says 'New Topic' click on that and post away. It will mean we don't miss anything you p...
by Veema
Thu Jul 26, 2018 9:27 am
Forum: General chat
Topic: Time
Replies: 30
Views: 23187

Re: Time

Don't feel guilty. You are doing your best in an almost impossible situation. We've all had those guilty feelings that we aren't doing enough or what we are doing isn't actually helping much. But you can only do what you can. I'm sure there should be some additional support you could tap into, perha...
by Veema
Thu Jul 26, 2018 9:22 am
Forum: Family, friends and carers
Topic: What happens now?
Replies: 7
Views: 6818

Re: What happens now?

Firstly I'd give the nurses a ring to see what options are available. Just because he hasnt tolerated folfirinox doesn't mean he wouldn't tolerate another chemo regime such as gemcap and I'm pretty sure abraxane is available now, but obviously I'm not a medical professional. They will be able to off...
by Veema
Thu Jul 26, 2018 9:09 am
Forum: Family, friends and carers
Topic: Sadness
Replies: 11
Views: 9368

Re: Sadness

Oh Kerry...I am so sorry you've reached this point. Unfortunately hospices are a limited resource and there aren't always beds available when you need one. Both my husband and my dad died in hospital and I can honestly say we were looked after beautifully, so if he has to stay where he is, much as y...
by Veema
Tue Jul 24, 2018 9:42 am
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 66
Views: 42570

Re: First folfirinox experience

Hi Michaela and welcome. It might be an idea to start your own thread so you can post all your updates on there and they don't get lost in anyone else's thread...we like to know how everyone is getting on! Children are very resilient and as long as you are honest with her, she will be fine. My daugh...
by Veema
Sun Jul 22, 2018 10:31 am
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 66
Views: 42570

Re: First folfirinox experience

Proud Wife wrote: > And perhaps stop the lentils which won't be helping with the wind! Lovely > to hear your update, enjoy the rest of the weekend. I do agree with Veema, > get it on prescription. They are only small yet pack a punch of calories. > My hubby liked the banana flavour x Think you might...
by Veema
Sat Jul 21, 2018 6:55 pm
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 66
Views: 42570

Re: First folfirinox experience

I think you'll have to get the procal powders prescribed...
by Veema
Sat Jul 21, 2018 10:08 am
Forum: Ask the nurse
Topic: Fatigue
Replies: 3
Views: 4654

Re: Fatigue

The jaundice may well be causing the fatigue. It was the time at which my husband felt his absolute worst. Hopefully they'll be able to do something to relieve the jaundice for her, such as inserting a stent if the tumour is blocking the bile duct. It may well also cause severe itching...but she can...
by Veema
Fri Jul 20, 2018 11:43 am
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 66
Views: 42570

Re: First folfirinox experience

Ladies, I cannot recommend procal powders enough...you just heap a couple of scoops on whatever you are eating, or into a drink and it adds both calories and protein without comprising the flavour or texture of the food or drink.

Keep going!

Vx
by Veema
Sun Jul 15, 2018 8:52 am
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 66
Views: 42570

Re: First folfirinox experience

Amazing ladies...its great that you've got each other for support. It's sometimes hard for us as carers to give the right sort of support to those of you suffering with the disease...no matter what we've been through, it's nothing compared to you guys going through it first hand. Glad the PICC line ...
by Veema
Sat Jul 14, 2018 10:16 am
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 66
Views: 42570

Re: First folfirinox experience

Haven't you got a PICC line in? My husband had folfirinox and had to have a PICC line to enable him to come home with the pump attached...haven't you got a pump delivering a further 46 hours of chemo? I remember the oxilaplatin making my husband's mouth all funny. You shouldn't be too bad in this wa...

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