Search found 61 matches

by PCUK Nurse Rachel C
Tue Jul 19, 2016 1:17 pm
Forum: Treatment & side effects
Topic: Creon enzymes
Replies: 15
Views: 22801

Re: Creon enzymes

Dear All, Sones and RMM67, I am sorry to hear about your recent experiences about your CREON being taken away, whilst you have both been in hospital. I think this again (and unfortunately) demonstrates the lack of understanding in relation to CREON and how it should be taken. RMM67, I am pleased tha...
by PCUK Nurse Rachel C
Fri Jul 15, 2016 12:24 pm
Forum: Treatment & side effects
Topic: Creon enzymes
Replies: 15
Views: 22801

Re: Creon enzymes

Dear All, From what we are aware, there are still issues sourcing CREON 40,000 and as you have rightly said these have not been available for nearly a year. We are hoping that these will be available again towards the end of the year, but await confirmation for Mylan (who produce CREON). In relation...
by PCUK Nurse Rachel C
Wed Jul 13, 2016 12:37 pm
Forum: Family, friends and carers
Topic: Thoughts from the PC frontline
Replies: 187
Views: 119290

Re: Thoughts from the PC frontline

Dear All, Thank you all for your posts and apologies for the slight delay in replying. As you are aware there has been a great deal of interest in the area of molecular profiling, especially in other cancers such as breast and bowel, however and sadly with pancreatic cancer we are a little further b...
by PCUK Nurse Rachel C
Wed Jul 06, 2016 5:37 pm
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 176948

Re: Mum of 42 recently diagnosed inoperable PC

Dear Ruth, Thank you for posting and keeping us up to date…you are truly amazing! Only 6 weeks post whipples and your jetting around London…..fantastic! I’m not sure if you saw my post in the ‘new treatments thread? http://forum.pancreaticcancer.org.uk/viewtopic.php?f=2&t=1795 I somehow went off on ...
by PCUK Nurse Rachel C
Wed Jul 06, 2016 2:23 pm
Forum: Treatment & side effects
Topic: New Treatments
Replies: 37
Views: 38649

Re: New Treatments

Thank you all for your comments and input on this topic, Again, these are very important points that have been raised and we as a charity are working hard to try and address some of these issues. Wife and Mum very kindly posted to link to the report "Pancreatic Cancer Care and Research: A health che...
by PCUK Nurse Rachel C
Tue Jun 21, 2016 11:56 am
Forum: Advanced pancreatic cancer
Topic: How much longer?
Replies: 3
Views: 10089

Re: How much longer?

Dear Dandan, Welcome to the forums, and like many have said before me, I appreciate it’s not the place anyone wants to be. I am so sorry to hear that your Nan’s health seems to have deteriorated recently, I'm sure it has be a very difficult time for you and your family. As Boa (Catherine) and Marmal...
by PCUK Nurse Rachel C
Wed Jun 08, 2016 2:07 pm
Forum: Patient Experience Forum
Topic: Stephen's Story
Replies: 127
Views: 120833

Re: Stephen's Story

Dear Sandiemac, I am sorry to hear that Steve has been experiencing more side effects from his treatment. I’m glad however, that the Research Nurse managed to get Steve reviewed by the Oncologist prior to his treatment on Friday. I also hope this his itchiness is subsiding a little? Sandimac will al...
by PCUK Nurse Rachel C
Fri Jun 03, 2016 4:57 pm
Forum: Treatment & side effects
Topic: Research breakthrough may lead to new PC treatments
Replies: 3
Views: 9662

Re: Research breakthrough may lead to new PC treatments

Dear W&M, Thank you again for your recent post in relation to CXCR2 and its role in relation to pancreatic cancer. Well done and you are certainly fantastic at sharing your research findings, which is great! Again this research looks very exciting and potentially promising. Our research team were aw...
by PCUK Nurse Rachel C
Fri Jun 03, 2016 4:23 pm
Forum: Family, friends and carers
Topic: Thank you and our story... but we are not that far yet!
Replies: 433
Views: 142993

Re: Thank you and our story... but we are not that far yet!

Dear All, It’s great to see the conversation open up and see a healthy debate going on! I appreciate that I am very much coming from a healthcare professionals perspective on this. I also understand the need, that as a loved one, you would go to the end of the world and back, just to get the best tr...
by PCUK Nurse Rachel C
Wed Jun 01, 2016 4:05 pm
Forum: Advanced pancreatic cancer
Topic: Mum recently diagnosed
Replies: 14
Views: 14080

Re: Mum recently diagnosed

Dear Tinlady, It is good news that Mum is able to have a biopsy, as this means that they can then make an appropriate treatment plan for Mum to move forward with. I’m not sure if you have been told, but it will take approximately 10 days for the biopsy results to be processed and Mum should also hav...
by PCUK Nurse Rachel C
Fri Apr 15, 2016 11:46 am
Forum: Treatment & side effects
Topic: New PC treatment on the horizon
Replies: 1
Views: 9432

Re: New PC treatment on the horizon

Dear Wife & Mum, Thank you so much for posting this link and sharing your research on the forum. I'm sure lots of forum members will be very interested in reading this, as I was! This trial certainly does look interesting and very innovative! As you have mentioned, currently it has only been tested ...
by PCUK Nurse Rachel C
Tue Apr 12, 2016 3:08 pm
Forum: Advanced pancreatic cancer
Topic: Totally in awe of my wonderful Husband!
Replies: 494
Views: 185039

Re: Totally in awe of my wonderful Husband!

Dear Proud Wife, I'm really sorry to hear that your hubby is experiencing uncontrolled back pain and that you have been up half the night, so I am sure you are all exhausted! Unfortunately, it’s not uncommon for patients with pancreatic cancer to experience difficult to manage pain. Often this is be...
by PCUK Nurse Rachel C
Tue Apr 12, 2016 2:25 pm
Forum: Family, friends and carers
Topic: Confused
Replies: 17
Views: 15880

Re: Confused

Dear Elemoy, I am very sorry to say this, but welcome to the forums. Like others who have mentioned before, I appreciate that its not the place anyone wants to be, but I know that you will gain great support and comfort by being part of this community. I am also very sorry to hear about your Dads re...
by PCUK Nurse Rachel C
Tue Apr 12, 2016 2:10 pm
Forum: Family, friends and carers
Topic: Dealing with Mum's diagnosis...
Replies: 73
Views: 40845

Re: Dealing with Mum's diagnosis...

Dear CLM, Welcome to the forums, although I do appreciate its not the place anyone wants to be. It is good that you have felt able to post, and I am sure you will find this a very supportive community and can see that you have made some bonds already. I am very sorry to hear about your Mums recent d...
by PCUK Nurse Rachel C
Tue Apr 05, 2016 1:39 pm
Forum: Advanced pancreatic cancer
Topic: Mum just started chemo - bad reaction
Replies: 15
Views: 19853

Re: Mum just started chemo - bad reaction

Dear Lupoo, I am so sorry to hear this sad news. On behalf of everyone at Pancreatic Cancer UK I would like to offer our heartfelt condolences. Our thoughts are with you and your family during this very difficult time. From all the support team, Rachel Pancreatic Cancer Specialist Nurse Support and ...

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