Search found 61 matches

by PCUK Nurse Rachel C
Fri Jan 20, 2017 4:47 pm
Forum: Patient Experience Forum
Topic: 36 yo adv pancr cancer patient treated in France
Replies: 172
Views: 159124

Re: 36 yo adv pancr cancer patient treated in France

Dear Stepuha, Thank you for your post and links to the Study of IMM 101 in Combination With Standard of Care in Patients With Metastatic or Unresectable Cancer or the Modulate trial. We are aware that this trial is due to open in January, so are waiting eagerly. It is a Phase I/II trial for patients...
by PCUK Nurse Rachel C
Fri Jan 20, 2017 2:41 pm
Forum: Patient Experience Forum
Topic: 74 yo pancreatic cancer
Replies: 3
Views: 9675

Re: 74 yo pancreatic cancer

Dear Splitlivez, Welcome to the forums, although I appreciate its not the place anyone wants to be. Its good that you have felt able to post, and I am sure you will find this a very supportive community. My name is Rachel, and I am one of the nurses working for the charity. I am very sorry to hear t...
by PCUK Nurse Rachel C
Tue Dec 06, 2016 2:54 pm
Forum: Advanced pancreatic cancer
Topic: Brown vomiting
Replies: 8
Views: 19813

Re: Brown vomiting

Dear Mymum 68, I am also so sorry that you have found yourself on this forum. I am glad, however, that you have felt able to post, and I am sure you will find this a very supportive community. I'm also glad that Mum was feeling a little bit better yesterday, so I do hope that this remains the same t...
by PCUK Nurse Rachel C
Fri Oct 28, 2016 11:17 am
Forum: Family, friends and carers
Topic: My mum has stage 4 pancreatic cancer - no treatment.
Replies: 28
Views: 18769

Re: My mum has stage 4 pancreatic cancer - no treatment.

Dear Autumn, I just wanted to say how sorry I am that things are really difficult at the moment and that we are thinking about you. Also, apologies that you didn't receive my original email on the 18th October. I have tried to re-send it again today, so I hope that you dont mind? I'm also glad that ...
by PCUK Nurse Rachel C
Fri Oct 28, 2016 10:39 am
Forum: Treatment & side effects
Topic: NIGHT SWEATS
Replies: 6
Views: 12392

Re: NIGHT SWEATS

Dear All, Just in reference to nights sweats, Mo and myself did a bit of research and I'm certainly not going to take the credit, as Mo can up with the link first...well done Mo! Cancer Research UK have actually got quite a good link to sweating, which may be useful and they also give some examples ...
by PCUK Nurse Rachel C
Tue Oct 18, 2016 3:11 pm
Forum: Family, friends and carers
Topic: My mum has stage 4 pancreatic cancer - no treatment.
Replies: 28
Views: 18769

Re: My mum has stage 4 pancreatic cancer - no treatment.

Dear Autumn, Welcome to the forums, although I appreciate its not the place anyone wants to be. Its good, however, that you have felt able to post, and I am sure you will find this a very supportive community to be part off. My name is Rachel, and I am one of the nurses working for the charity. I am...
by PCUK Nurse Rachel C
Fri Oct 14, 2016 4:26 pm
Forum: Treatment & side effects
Topic: Presence of varicose vein in cancer patients
Replies: 1
Views: 8358

Re: Presence of varicose vein in cancer patients

Dear Healthyford, Thank you for your post and welcome to the forum. I'm sorry to hear that your farther has pancreatic cancer and that he has been experiencing severe leg pain. In terms of treating varicose veins, I must say that I have heard of 'sclerotherapy' but have not cared for anyone who has ...
by PCUK Nurse Rachel C
Tue Oct 11, 2016 5:07 pm
Forum: Family, friends and carers
Topic: Advice needed on how to speed up referal times
Replies: 7
Views: 8413

Re: Advice needed on how to speed up referal times

Dear Chris, I’m really sorry to hear that your uncle has recently been diagnosed with pancreatic cancer and I can only imagine that this must be an incredibly difficult, if not frustrating time for you. I’d also like to welcome you to the forums, although I appreciate that it’s a place that you rath...
by PCUK Nurse Rachel C
Wed Oct 05, 2016 12:35 pm
Forum: Family, friends and carers
Topic: Thoughts from the PC frontline
Replies: 187
Views: 118814

Re: Thoughts from the PC frontline

Dear W&M, That is fantastic that you are attending the 'Research Involvement Network' meeting today and thank you so much for giving up your time to do so. Its vital that Researchers and people living with or people affected by pancreatic cancer get to work together collaboratively like this, Eviden...
by PCUK Nurse Rachel C
Wed Sep 28, 2016 11:17 am
Forum: Advanced pancreatic cancer
Topic: Ascites
Replies: 216
Views: 117126

Re: Ascites

Dear Veema, I am so sorry for not posting sooner, however, I just wanted to say that I am truely sorry to hear of your dear Nige’s recent passing. Please accept our deepest condolences from all the nurses on the support team and members of the wider charity. Veema your strength and courage throughou...
by PCUK Nurse Rachel C
Fri Sep 16, 2016 2:27 pm
Forum: General chat
Topic: Muscle weakness from dexamathasone
Replies: 6
Views: 11445

Re: Muscle weakness from dexamathasone

Dear Tina, Welcome to the forums, although I appreciate its not the place anyone wants to be. Its good, however,that you have felt able to post, and I am sure you will find this a very supportive community. My name is Rachel, and I am one of the nurses working for the charity. I am very sorry to hea...
by PCUK Nurse Rachel C
Tue Aug 30, 2016 3:45 pm
Forum: Treatment & side effects
Topic: Questions about pancreatic cancer? Contact our Support Line
Replies: 4
Views: 60264

Re: Questions about pancreatic cancer? Contact our Support L

Dear Miguel, Apologies for not posting back sooner and thank you Proud Wife for your suggestions and support. Miguel, like PW, I am very sorry to hear of your recent diagnosis and also the fact that you aren't feeling well at the moment. Miguel, I actually think that your post has a couple of differ...
by PCUK Nurse Rachel C
Wed Jul 27, 2016 5:41 pm
Forum: General chat
Topic: Local Forum?
Replies: 5
Views: 9198

Re: Local Forum?

Hi Martin, Perhaps you could just start a new thread for people wanting to share their experiences in the 'south west' and see if how this works in the first instance? We are aware that there are closed Facebook groups out there for people who have undergone Whipples and also nanoknife procedures, b...
by PCUK Nurse Rachel C
Wed Jul 27, 2016 4:00 pm
Forum: General chat
Topic: Local Forum?
Replies: 5
Views: 9198

Re: Local Forum?

Dear Martin, Thank you for posting on the forum and exploring this area with us. Apologies if I haven't understood your needs fully, so I hope you dont mind if I ask a couple of questions? Are you looking to use the forum or web based medium or are you looking to get people together in person at a l...
by PCUK Nurse Rachel C
Fri Jul 22, 2016 4:23 pm
Forum: Patient Experience Forum
Topic: Healing in darkness
Replies: 4
Views: 9828

Re: Healing in darkness

Dear Latvis, Like many have said before me, welcome to the forums, although I appreciate its not the place anyone wants to be. Thank you for posting and sharing your experience and I am sorry that someone close to you has been affected by pancreatic cancer. I am sure you will find this a very suppor...

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