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by Nardobd
Fri Apr 24, 2009 12:11 pm
Forum: Advanced pancreatic cancer
Topic: Chemo Clinic - Any Help Appreciated
Replies: 5
Views: 5552

Re: Chemo Clinic - Success!

After waiting for another 6 hours in Chemo Clinic this week, I blew my top, contacting everyone I could think of (including PALS), threatening to take the issue to the media and, possibly, trying to bring a legal action on the basis that, given Ted's hospital phobia, they were effectively withholdin...
by Nardobd
Fri Apr 24, 2009 11:55 am
Forum: Family, friends and carers
Topic: Please.. if you read this, reply.
Replies: 6
Views: 5754

Re: Please.. if you read this, reply.

Hi Optimistic and I'm sorry to hear your news. This is a cruel disease indeed and particularly so when you've had the 'all clear' only to be devastated again. My husband, Ted, has locally advanced pancreatic cancer which isn't operable. He's on gemcitabine monotherapy (ie only gemcitabine, also know...
by Nardobd
Sun Apr 19, 2009 8:15 pm
Forum: Coping with loss/ Memorial
Topic: I'm grateful that....
Replies: 10
Views: 13854

I'm grateful that....

...I at least have some time to show my husband just how much he means to me and how much I love him. Like, I suspect, most people, prior to his diagnosis we were caught up in the rat-race and this cosmic kick up the backside has made me realise that I needed to work much harder at our relationship....
by Nardobd
Sun Apr 19, 2009 12:35 pm
Forum: Family, friends and carers
Topic: Rest peacefully, beautiful Mum
Replies: 10
Views: 7343

Re: Rest peacefully, beautiful Mum

Chinup

So sorry to hear you have lost your Mum but I'm pleased to hear that her passing was peaceful. I'm sure you have many, many wonderful memories.

Thinking of you at this sad time.

Nicki

xx
by Nardobd
Tue Apr 14, 2009 7:33 pm
Forum: Family, friends and carers
Topic: CHEMOTHERAPY
Replies: 74
Views: 39712

Re: CHEMOTHERAPY

Hi Ellie Glad I helped in some small way. Yes, it was a good boost when they amended the prognosis. I did have to press for an idea of time when we saw the consultant. Sometimes I think they forget that they are literally affecting peoples' lives. Admittedly, I'm the kind of person who would say som...
by Nardobd
Fri Apr 10, 2009 2:11 pm
Forum: Family, friends and carers
Topic: CHEMOTHERAPY
Replies: 74
Views: 39712

Re: CHEMOTHERAPY

Hi Ellie Gemzar is another name for Gemcitabine, so that is one of the tripple combo. I asked Ted's consultant about adding in other drugs and he felt that the advantages were statistically insignificant and that the toxic combination would be too much for Ted to cope with. However, everyone's diffe...
by Nardobd
Thu Apr 09, 2009 1:17 pm
Forum: Family, friends and carers
Topic: CHEMOTHERAPY
Replies: 74
Views: 39712

Re: CHEMOTHERAPY

Oh Ellie, so very sorry to hear your news. Ted, my husband, is on gemcitabine and he's doing very well on it, very few side effects other than a slight stomach problem, which was sorted out by giving him a gastro-resistant drug, which I hope will at least give you a little optimism. Ted's CA19-9 (tu...
by Nardobd
Sat Apr 04, 2009 10:32 am
Forum: Advanced pancreatic cancer
Topic: Chemo Clinic - Any Help Appreciated
Replies: 5
Views: 5552

Re: Chemo Clinic - Any Help Appreciated

This week we went to the clinic and our problems have obviously been noted. We got a much more welcoming reception than normal and the wait was only just over an hour, which is acceptable given that they have to make up the chemo treatment after it's been authorised. We both feel much better for hav...
by Nardobd
Thu Mar 26, 2009 1:11 pm
Forum: Advanced pancreatic cancer
Topic: Chemo Clinic - Any Help Appreciated
Replies: 5
Views: 5552

Re: Chemo Clinic - Any Help Appreciated

Thank you. We sat down with the Key-worker yesterday and gave her a list of problems encountered. She is going to speak to the head of the chemo clinic and we also spoke to the pharmacy head of chemotherapy who explained why the drugs take so long to make up. It doesn't actually resolve all of the p...
by Nardobd
Mon Mar 23, 2009 5:43 pm
Forum: Advanced pancreatic cancer
Topic: Chemo Clinic - Any Help Appreciated
Replies: 5
Views: 5552

Chemo Clinic - Any Help Appreciated

Hubby has advanced PC and is currently undergoing chemotherapy. We've had two occasions recently where we've had to contact the clinic. Inevitably when we ring the phone diverts to voicemail. We leave messages which are completely ignored - the only time I had a call back was when I lost my temper a...
by Nardobd
Tue Mar 17, 2009 11:32 am
Forum: Advanced pancreatic cancer
Topic: Husband recently diagnosed
Replies: 16
Views: 12170

Re: Husband recently diagnosed

Hi Emcee Thanks for sharing your experiences and I hope that your partner is still doing well. It may be the difference in types of tumour dictates the chemo drugs used but I will ask about it when we see the consultant next week. We have been encouraged by the results of the last CA19-9 (tumour mar...
by Nardobd
Fri Mar 13, 2009 11:53 am
Forum: Advanced pancreatic cancer
Topic: Husband recently diagnosed
Replies: 16
Views: 12170

Re: Husband recently diagnosed

Thank you Kezza, your story gives us considerable hope! We're now at the end of the first month's chemo and awaiting the results of the CA19-9 (tumour marker) test which will give an indication of the effectiveness. I hope that this has provided a cure for you and that all goes well from here on. Ki...
by Nardobd
Thu Feb 26, 2009 7:09 pm
Forum: Family, friends and carers
Topic: New diagnosis.
Replies: 23
Views: 16905

Re: New diagnosis.

Hi Kay, and I'm very sorry to hear your news. We are just a little ahead of you in one sense - my husband, Ted, wasn't offered an op and has just (yesterday) started Chemo for his locally advanced pancreatic cancer. He is on Gemcitabine as the consultant indicated that another drug (probably the one...
by Nardobd
Tue Feb 17, 2009 7:13 pm
Forum: Advanced pancreatic cancer
Topic: Private Oncology Referral
Replies: 1
Views: 3817

Re: Private Oncology Referral

Hi Paul I'm certainly no expert (see my own post above) but I'm told that the important thing is to make sure that your uncle is being treated at a specialist pancreatic centre. We're very lucky that our local NHS hospital is such a centre. Our nurse-liaison told us that most of the oncologists do p...
by Nardobd
Tue Feb 17, 2009 7:04 pm
Forum: Advanced pancreatic cancer
Topic: Husband recently diagnosed
Replies: 16
Views: 12170

Husband recently diagnosed

Completely out of the blue my husband, Ted, was diagnosed as having locally advanced PC which is not operable because it involves major blood arteries/vessels. I guess we are still in shock - I keep waiting for someone to tell me how to feel or think (other, of course, than the whole "it's not fair-...

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