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by Nardobd
Fri Feb 17, 2012 6:55 pm
Forum: Advanced pancreatic cancer
Topic: Ted - an update
Replies: 15
Views: 11334

Ted - an update

Laura kindly asked how we got on this week, but unfortunately the news wasn't that good. Ted has ascites - around 7 litres of fluid in his abdomen. He goes into hospital on Wednesday for drainage. Then about 10 days after that he will be starting 3rd line chemo (ie his 3rd lot of sessions). The cons...
by Nardobd
Wed Feb 15, 2012 6:48 pm
Forum: Family, friends and carers
Topic: Just because we don't see it
Replies: 5
Views: 3236

Just because we don't see it

Ted went to see his consultant today and his Clinicial Nurse Specialist (CNS) was there. The CNS asked about Jeni (PCUK support manager) and what she was like because Jeni will be visiting her shortly to discuss PCUK and providing support to pancreatic cancer patients. Of course, I told her that Jen...
by Nardobd
Mon Feb 13, 2012 6:21 pm
Forum: Treatment & side effects
Topic: My visit to Israel to ascertain research into PC
Replies: 3
Views: 7372

Re: My visit to Israel to ascertain research into PC

Hi Trevor and how nice to hear from you again. How interesting is that research! I particularly like the thought of blowing Ted's tumours apart! I might have to mention that to his consultant when we go along this week. I'm not aware of any similar research in the UK, so it's particularly exciting t...
by Nardobd
Mon Feb 13, 2012 6:21 pm
Forum: News archive
Topic: My visit to Israel to ascertain research into PC
Replies: 5
Views: 12687

Re: My visit to Israel to ascertain research into PC

Hi Trevor and how nice to hear from you again. How interesting is that research! I particularly like the thought of blowing Ted's tumours apart! I might have to mention that to his consultant when we go along this week. I'm not aware of any similar research in the UK, so it's particularly exciting t...
by Nardobd
Tue Feb 07, 2012 6:15 pm
Forum: Coping with loss/ Memorial
Topic: Mum
Replies: 2
Views: 7366

Re: Mum

Thanks for telling us about your Mum, Nick. She sounds like a wonderful person. Please feel free to post more if you think it might help you.

Wishing you strength.

Nicki
by Nardobd
Wed Jan 25, 2012 7:46 pm
Forum: Family, friends and carers
Topic: My Dad
Replies: 67
Views: 33100

Re: My Dad

Hi Steve If your Dad is on gemcitabine, it may not be too bad - it all sounds very scary at first but some people, like Ted, have very few side effects. He had a bit of nausea and a little fatigue and a few other minor things like tingly fingers. However, if your Dad should develop a fever (over 38 ...
by Nardobd
Wed Jan 25, 2012 7:42 pm
Forum: Advanced pancreatic cancer
Topic: chemo failed - whats next
Replies: 6
Views: 5510

Re: chemo failed - whats next

Hi Drew

There are other chemo treatments out there...don't give up!

Wishing you both strength

Nicki
by Nardobd
Wed Jan 25, 2012 7:41 pm
Forum: Advanced pancreatic cancer
Topic: MY MUM
Replies: 54
Views: 33539

Re: MY MUM

Hi Ted didn't want to fly when first diagnosed but I eventually persuaded him and we got away for a short break to France this year. He found it perfectly ok, but we're only talking about a short flight. Rather than a one-night stoppover en route have you thought about doing a 2 or 3 night stop some...
by Nardobd
Mon Jan 23, 2012 6:46 pm
Forum: Advanced pancreatic cancer
Topic: MY MUM
Replies: 54
Views: 33539

Re: MY MUM

Oh I'm so sorry to hear about this. Ted experiences utter frustration with pain...we've had quite a month of it and it's got to the point where he just wants to scream! Add to that the (understandable) terror of having a terminal illness and I can quite understand the panic attacks, although as Jeni...
by Nardobd
Thu Jan 05, 2012 7:20 pm
Forum: Advanced pancreatic cancer
Topic: MY MUM
Replies: 54
Views: 33539

Re: MY MUM

Hi Nausea can be very debilitating. As well as chemo causing nausea, one of the problems with pancreatic disease is the fact that the stomach doesn't empty out as fast as it normally would and this can cause nausea too. Ted takes Metroclopromide for nausea and finds it helps. There are other anti-na...
by Nardobd
Thu Jan 05, 2012 7:08 pm
Forum: Family, friends and carers
Topic: My Dad
Replies: 67
Views: 33100

Re: My Dad

Hi Gill and I hope that we can help you, Steve and your Dad along the way.

Nicki
by Nardobd
Wed Jan 04, 2012 7:12 pm
Forum: Family, friends and carers
Topic: My Dad
Replies: 67
Views: 33100

Re: My Dad

Hi Steve and I'm sorry to hear about your Dad. Pancreatic cancer UK have a whole section for the recently diagnosed...including questions to ask http://www.pancreaticcancer.org.uk/information-and-support/just-diagnosed/questions-to-ask There may be some you haven't thought of there. Individuals reac...
by Nardobd
Wed Jan 04, 2012 7:03 pm
Forum: Advanced pancreatic cancer
Topic: MY MUM
Replies: 54
Views: 33539

Re: MY MUM

Hi there and I'm sorry the news wasn't good. First of all CFF is right, you are understandably exhausted. You can't help Mum unless you look after yourself. Get some sleep and treat yourself - doesn't have to be a big thing, your favourite coffee, an hour spend on a hobby or just a long bath. You fe...
by Nardobd
Sat Dec 31, 2011 9:05 am
Forum: Advanced pancreatic cancer
Topic: My lovely mum has gone :(((
Replies: 15
Views: 12474

Re: My lovely mum has gone :(((

Dearest Louie I'm so very sorry for your loss.

Your Mum may not be here psychically but the love and values she taught you will always guide and help you and, of course, she will be with you in spirit forever.

Love
Nicki
by Nardobd
Fri Dec 30, 2011 6:00 pm
Forum: Advanced pancreatic cancer
Topic: update on mum
Replies: 50
Views: 25920

Re: update on mum

Hi Louie

My thoughts and prayers go out to you and your whole family.

Nicki

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