Search found 31 matches

by RoyBoy
Thu Mar 07, 2019 9:19 am
Forum: Patient Experience Forum
Topic: My life with pancreatic cancer
Replies: 2
Views: 5742

Re: My life with pancreatic cancer

Hi Rowlie, Yes you’re one of the lucky ones. Same here as I was diagnosed in April 2014 and had Whipples surgery at (name removed - moderator), London followed by 6 mths of chemo. Do you take a daily PPI like Omeprazole as this is said to help make the Creon more effective and to reduce stomach acid.
by RoyBoy
Thu Mar 07, 2019 9:10 am
Forum: Patient Experience Forum
Topic: Result worries
Replies: 10
Views: 7337

Re: Result worries

Hi Mohammad, Everything is hidden deep inside us. Yes I had various tests and a CT scan and they still couldn’t see everything. I had a CT scan with contrast ? I had to drink some liquid before this (5yrs ago) now they inject it during scan. I had a blood test that revealed CEA(cancer but where ?) o...
by RoyBoy
Wed Apr 15, 2015 8:12 am
Forum: Patient Experience Forum
Topic: High Liver Function Tests
Replies: 5
Views: 8428

Re: High Liver Function Tests

Hi, Thanks for your support. Phew- ultrasound scan all clear - no shadows on liver. LFT had dropped yesterday to 246 (normal 30-130) so consultant wants to see me again in 6 weeks and more blood tests but hopefully they may continue to reduce ? I had Whipple's April 2014 followed by 6 months chemo (...
by RoyBoy
Mon Apr 13, 2015 8:28 am
Forum: Patient Experience Forum
Topic: High Liver Function Tests
Replies: 5
Views: 8428

High Liver Function Tests

Hi, I have not posted on here for a while. I hope and wish everyone good luck for the future. I have had some recent blood tests and they found my LFT's to be high-352(normal 30-130). I will be 1 year post Whipple on 26/04/15. I was diagnosed as Secondary Type 1 diabetic a few weeks ago. I am going ...
by RoyBoy
Sat Jan 10, 2015 8:48 am
Forum: Patient Experience Forum
Topic: Creon case
Replies: 5
Views: 6473

Re: Creon case

Hi Sandra,
Yes thanks I seem to have come out of the tunnel from Gemcitabine which ended 01/12/14 and I am beginning to feel better. I have not put on any weight yet but I am beginning to resume daily exercise to try and build myself up.
Onwards and upwards !
How are you doing ?
by RoyBoy
Fri Jan 09, 2015 1:29 pm
Forum: Patient Experience Forum
Topic: Creon case
Replies: 5
Views: 6473

Creon case

Hi all,
I wanted to share that if you email your address to the U.K. suppliers- Abbot- they will forward you a blue plastic pill case that holds 12 Creon tablets:

medinfo.shl@abbott.com
by RoyBoy
Wed Nov 12, 2014 8:18 am
Forum: Patient Experience Forum
Topic: Whipples stomach pain/discomfort
Replies: 12
Views: 20927

Re: Whipples stomach pain/discomfort

Hi Robert,
Thanks for that. Roy
by RoyBoy
Thu Oct 30, 2014 11:45 am
Forum: Patient Experience Forum
Topic: Whipples stomach pain/discomfort
Replies: 12
Views: 20927

Whipples stomach pain/discomfort

I have started to suffer from relatively minor discomfort/pain after eating. I am sure I read on here some advice about buying some herbal mint substance to ease this ? I will get some in reserve.
I thought it said available from Holland & Barrett.
Does anyone know what this may be ?
by RoyBoy
Sun Oct 26, 2014 9:16 pm
Forum: Patient Experience Forum
Topic: Tired/sore eyes
Replies: 7
Views: 7662

Re: Tired/sore eyes

Oh.... derrrrrr. Lol.
by RoyBoy
Sun Oct 26, 2014 7:25 pm
Forum: Patient Experience Forum
Topic: Tired/sore eyes
Replies: 7
Views: 7662

Re: Tired/sore eyes

F.A.O. of Sue ( Sones),
How do you know I am at chemo on Monday ?
by RoyBoy
Sun Oct 26, 2014 7:10 pm
Forum: Patient Experience Forum
Topic: Tired/sore eyes
Replies: 7
Views: 7662

Re: Tired/sore eyes

Hi,
Thanks for your replies. I will ask on Monday when I go for Day 8 chemo.
by RoyBoy
Sun Oct 26, 2014 10:14 am
Forum: Patient Experience Forum
Topic: Whippleversary
Replies: 13
Views: 20659

Whippleversary

Hi,
Today is my 6 month Whippleversary. 6 months since my Whipples operation on 26/04/14.
I apologise to everyone for copying the American Whipples Warriors Facebook page where they all seem to do this.
In the UK we are more reserved and private ? What the heck.
by RoyBoy
Sat Oct 25, 2014 9:24 pm
Forum: Patient Experience Forum
Topic: Tired/sore eyes
Replies: 7
Views: 7662

Tired/sore eyes

Hi, I have either tired or sore eyes. I am on Cycle 5 of chemo- Gemcitabine.
I wondered if anyone else had suffered this ?
It is not a major issue and it is usually worse in the late evening when I assume I must be tired and I go to bed.
I could be more tired than I realise or is it my chemo ?
by RoyBoy
Thu Oct 02, 2014 8:36 am
Forum: Patient Experience Forum
Topic: Blood transfusion
Replies: 5
Views: 6024

Re: Blood transfusion

Hi all,
Thanks for all your positive comments and support xx
by RoyBoy
Thu Oct 02, 2014 8:34 am
Forum: General chat
Topic: Purple lights for hope day
Replies: 2
Views: 5063

Purple lights for hope day

Hi all,
I am getting confused !!!
I have heard of the purple for hope day 01/11/14 and there is the Purple P selfie page on this day as well. There is some talk of a month of awareness - is that PCUK ? and then there also seems to be a worldwide P.C awareness day on 13/11/14 ?

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