Pancreatic Cancer UK

Sorry I haven't posted for ages, it's been really up and down. I did keep peeking in and as more loved ones were lost I didn't have the will to keep reading. Well James is still here, it was 3 years on 24 March, since he was diagnosed with stage 4 PC with mets to lungs and adrenal glands. Then the d...

Hello, I haven't posted for ages, various reasons including forgetting password and then my requests unfortunately went into PCUKs trash. Anyway I'm back and although I was too sad to post for a bit, hearing about Steve and Mark really affected us badly as both had given excellent advice; along with...

Dear Martine, I am so sorry to hear your news, this cruel, evil disease is so hard to cope with and it changes people, not just physically. I hope things are as good as they can be and sometimes things do work out better than you expect. Sending you both all my best wishes. Fiona X

Dear Dirge, I am so very sorry that you that your Rob has gone. I know there are no words, but sending you all my best wishes. Fiona X

CheshireBee, hello my husband has now had 13 cycles of ambraxane and Gemcitabine and lost all his hair after the first 4 cycles, including body hair and eye lashes. The good news is that after cycle 6 it started to grow back. His beard was grey, it was originally, but his hair is now really dark, mo...

Dear Sue, yes James experienced weight loss in the beginning, it was his only really symptom, that and diarrhoea. Anyway despite the croons his diarrhoea continued and the 'experts' kept telling him to take more, but with little affect, It was Leila on this site that researched and found out about S...

Sorry to hear your Dad is still struggling, I hope things get better soon. Fiona X

Dear Marie, my husband James was given 12-26 weeks, with terminal PC spread to his lungs and adrenal gland 67 weeks and 2 days ago, he is still here. Much older than you, 71 now, but OK. As you say they only ever give averages based on empirical evidence and so can't be right for everyone. James is ...

Dear Didge, thinking of you and your Rob, going through this most terrible of diseases. I hope he is comfortable and your Race for Life goes well, you are so strong, take care. Fiona X

Dear Kaye, I am so sorry to hear your news. My husband James, was 70 in March 2014, when he was diagnosed with terminal PC, with spread to his lungs and adrenal gland and given 12-26 weeks, probably nearer 12 weeks. Well, he is still here 67 weeks and 2 days later and despite all the warning, quite ...

Jonathan, I agree. We were only told quite recently and were told it was because of a difficulty of ensuring consistency within the higher 40,000 capsules. This might only be a little thing, but to those already suffering it is important. I'm not sure I understand Jeni's answer, how many pancreas do...

Keith, so sorry to hear your news. My husband, James, 70 on diagnosis on 27 March 2014 is being treated with ambraxane And Gemcitibine. On diagnosis he had a tumour on his pancreas in the neck area, one on his adrenal gland and 22 mostly small, but 3 over 15mm in his lungs. He was really well the on...

Valerie, hi I hope your treatment is going well and you are feeling OK. My husband was diagnosed with stage 4 on 27 March 2014, with spread to his lungs and an adrenal gland and told he had 12-26 weeks naximum, but probably nearer 12 weeks. Well he has been on Gemcitibine and Ambraxane and is still ...

Another good person taken far too early by this cruel disease. RIP

Steve, brilliant news. So please for you and your family. Fiona X