Search found 19 matches

by Nelsmum
Mon Jul 28, 2014 1:30 am
Forum: Patient Experience Forum
Topic: Muzzy64 Update
Replies: 4
Views: 5088

Re: Muzzy64 Update

Oh Muzzy, the accident adds insult to injury doesn’t it. Gem may well be doing the trick. I have locally advanced PC and started Gemcitabine in Sept 13 for 6 months to Feb 2014. The disease is stable, no spread but no shrinkage. I have been monitored since then, still stable at last scan in mid June...
by Nelsmum
Tue Jul 08, 2014 12:06 am
Forum: Family, friends and carers
Topic: Trevor's Story
Replies: 278
Views: 144101

Re: Trevor's Story

So good to hear your good news, well done to both of you.

Jane C
by Nelsmum
Mon Jul 07, 2014 11:54 pm
Forum: Family, friends and carers
Topic: Wish someone would help him
Replies: 428
Views: 127867

Re: Wish someone would help him

So glad you and your Dad finally have some good news! And at least his weight has stabilised.
Jane C
by Nelsmum
Mon Jul 07, 2014 11:47 pm
Forum: General chat
Topic: How long did original diagnosis take after CT scan?
Replies: 18
Views: 63742

Re: How long did original diagnosis take after CT scan?

Hi, to answer your main question, I was called in by the gastro two days after I had the CT, I wasn't due to see her for another couple of weeks. As to whether you could have had it for two years without getting worse I don't know. I had symptoms for around a year that gradually got worse before I w...
by Nelsmum
Mon Jun 30, 2014 11:51 pm
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 301696

Re: So far so good!

Good news Steve, peace of mind with this thing is worth its weight in gold.

Clarence the cross eyed lion, I never missed an episode as a child Cathy. He so often saved the day.
by Nelsmum
Tue Jun 24, 2014 12:07 am
Forum: Family, friends and carers
Topic: Mum's diagnosis
Replies: 650
Views: 214641

Re: Mum's diagnosis

That is good news Sue, hopefully with the creon her confidence will build up and she will be able to eat more, or more often. You can't underestimate the pyschological trauma not being able to eat has when you know you need to. Onward and upward for you Mum. John says to me 'well done' when I eat a ...
by Nelsmum
Mon Jun 23, 2014 4:00 am
Forum: Family, friends and carers
Topic: Wish someone would help him
Replies: 428
Views: 127867

Re: Wish someone would help him

I hope they can find out what is causing your Dad's problems now he is in hospital, best wishes.
Jane C
by Nelsmum
Sun Jun 22, 2014 4:06 am
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 301696

Re: So far so good!

Hi Steve, I saw you mentioned your sore mouth in another's post, if it is thrush I found vitamin B (multi B) helped me (for the other kind of thrush). However as I am sure you know you would have to check with your medics as to whether they are ok with that. You would have to take double the daily d...
by Nelsmum
Sun Jun 22, 2014 3:43 am
Forum: Patient Experience Forum
Topic: PC journey from Downunder
Replies: 16
Views: 12427

Re: PC journey from Downunder

We all can do with good news and I had some on Thursday. Went for my 3 month scan and no sign of spread or growth. Still locally advanced. So it is now 10 months since diagnosis. Gemcitabine Sep-Feb and no chemo since end of Feb. Scheduled for blood test in early August which will be one year on. On...
by Nelsmum
Sun Jun 22, 2014 3:36 am
Forum: Family, friends and carers
Topic: The Bystander
Replies: 4
Views: 3188

The Bystander

My husband John wrote this for fellow PC suffers and I he wanted to share it here, I have told him a lot about the support this site offers, so, from a carers point of view: "THE BYSTANDER" I know I'm only a bystander, To the trauma that you are going through, So what on earth could I possibly say, ...
by Nelsmum
Sat Jun 21, 2014 8:14 am
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 301696

Re: So far so good!

Excellent news Steve, have a lovely birthday.
Jane C
by Nelsmum
Thu Jun 12, 2014 2:23 pm
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 301696

Re: So far so good!

Never mind providence, you just go ahead and enjoy your good feeling, you deserve it!
Jane C
by Nelsmum
Wed Jun 11, 2014 10:57 am
Forum: Family, friends and carers
Topic: Mum's diagnosis
Replies: 650
Views: 214641

Re: Mum's diagnosis

Hello Sue, obviously I don’t know your Mum but she may well be In shock, I know I was when I found out, I couldn’t tell anyone, didn’t want to speak about it. And I didn’t want to see anyone. Partly because of the reactions from other people, they were so sad and I felt guilty, weird I know, but tha...
by Nelsmum
Mon Jun 09, 2014 2:36 pm
Forum: Patient Experience Forum
Topic: PC journey from Downunder
Replies: 16
Views: 12427

Re: PC journey from Downunder

Hello Jeni, thank you for the advice, I will up the creon dose again and see how go. I am not doing a low fat diet as such, just found that some things do really seem to be off the list, wine in moderation is not one of them I am glad to say.

Jane C
by Nelsmum
Sun Jun 08, 2014 2:57 am
Forum: Patient Experience Forum
Topic: PC journey from Downunder
Replies: 16
Views: 12427

Re: PC journey from Downunder

Thanks Sue. I agree adding cream and cheese for some is not a good idea. I think it depends on the degree of pancreatic insufficiency the person has and the food you eat, different for everyone. I can tolerate milk on cereal and I eat a little low fat cheese. I keep a food diary and have found if I ...

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