Search found 18 matches

by SueH
Mon Oct 13, 2014 4:03 pm
Forum: General chat
Topic: Flu Jab ?
Replies: 13
Views: 7431

Re: Flu Jab ?

Hi My husband's doctors said it was important for both of us to have the jab. As his immune system was taking a beating from the chemo. He was told to have it the day before chemo when his blood count was at its highest. He had no problems with side effects. He also had it the year in between his Wh...
by SueH
Sat Oct 04, 2014 9:50 am
Forum: Family, friends and carers
Topic: My 41 years old husband has inoperable pancreatic cancer
Replies: 162
Views: 59559

Re: My 41 years old husband has inoperable pancreatic cancer

My husband was prescribed pregabalin. I think it takes a few days to get into the system and work fully. My poor husband was in a lot of pain at the time and this drug really helped him. It works on nerve pain in a way that standard pain killers don't. Some people on the site have had a procedure to...
by SueH
Sun Sep 14, 2014 6:05 pm
Forum: Treatment & side effects
Topic: Folfirinox - How long / frequency
Replies: 9
Views: 7791

Re: Folfirinox - How long / frequency

Hi Steve Wow that's a lot of the 'fox'. My husband had 22 on a two weeks cycle. We did ask about going on to a three week cycle but his oncologist was against it. He did very well on it until he had to take a 5 or six week break. He was rushed into hospital with what they eventually diagnosed as dia...
by SueH
Fri Sep 12, 2014 9:04 am
Forum: Family, friends and carers
Topic: lurking on the fringes for 10 months
Replies: 135
Views: 61605

Re: lurking on the fringes for 10 months

Jayne I am so sorry you and your family are in this awful situation. We were in this situation in Feb this year. Bringing my husband home knowing that there was nothing more to be done was heartbreaking. We had wonderful support from our GP and district nurses. Stuart's wish was to be at home and I ...
by SueH
Mon Aug 18, 2014 9:26 pm
Forum: Advanced pancreatic cancer
Topic: so upset about my mum
Replies: 33
Views: 17545

Re: so upset about my mum

Hi littlefairy So sorry to hear about your mum. There is another type of painkiller that many PC patients take. It is called pregabolin, it helps with a different type of pain than morphine. My husband was on this as well as the syringe driver and it really helped. It would be worth talking to the M...
by SueH
Sat Aug 16, 2014 8:49 am
Forum: Family, friends and carers
Topic: Mum's diagnosis
Replies: 650
Views: 214675

Re: Mum's diagnosis

Hi Sue Sorry your Mums in hospital. Have they checked your Mums blood sugar? My husband was really sick after one of his chemo sessions. He lost 10kg in a week and was badly dehydrated. He was admitted to hospital and rehydrated but was still not better. It was on the 3rd day in hospital that his bl...
by SueH
Mon Aug 11, 2014 1:13 am
Forum: Family, friends and carers
Topic: Mum's diagnosis
Replies: 650
Views: 214675

Re: Mum's diagnosis

Hi Sue Sorry to hear you Mum is not doing well. Does she take Emend for the sickness, you take one before the chemo and then one for the next two days. It was the only thing that stopped my husbands sickness when he was on the fox. Re the syringe of chemo ( the bolus). My husbands oncologist said th...
by SueH
Sat Aug 09, 2014 3:25 pm
Forum: Treatment & side effects
Topic: Folfirinox experiences please
Replies: 27
Views: 16853

Re: Folfirinox experiences please

Hi Didge My husband had 22 cycles of Folfirinox. He had previously had the wipple then gem but it came back after a year and a half. The first two were tough but once the sickness was sorted he had a good quality of life. We went on holiday twice and he even built a large new patio and pond. He did ...
by SueH
Fri Aug 01, 2014 8:49 pm
Forum: Family, friends and carers
Topic: my heart is broken my dad has gone x
Replies: 98
Views: 38024

Re: Need some advice if possible !

Hi I would give them a call. You are not an inconvenience!! They are there to help. Hope all goes well. Sue
by SueH
Wed Jul 30, 2014 10:20 am
Forum: Advanced pancreatic cancer
Topic: 75 y/o Grandma told 4month to live...High BM
Replies: 8
Views: 5934

Re: 75 y/o Grandma told 4month to live...High BM

Hi Jess My husband became diabetic during his illness. He was put on insulin, at the hospital. The dose they recommended was far to low so like your mum his blood sugar was far to high. Your Mums GP surgery should have a diabetic nurse who can advise her on adjusting her dose. She may need fast acti...
by SueH
Tue Jul 22, 2014 9:46 am
Forum: Family, friends and carers
Topic: Is this nearly the end for my dad?
Replies: 9
Views: 5593

Re: Is this nearly the end for my dad?

Hi Gems I really hope your news is good today. Watching someone you love suffer from this evil disease is soul destroying. I am so glad your wonderful Dad has you to look after him. Your Dad should not have to suffer in pain. Syringe drivers provide 24 hour pain relief, anti nausea meds can also be ...
by SueH
Fri Jul 18, 2014 12:55 am
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 301844

Re: So far so good!

Hi Steve When my husband started folfirinox the oncologist suggested a course of 12 treatments. As he was responding well they decided to keep him on it until it stopped working. He had 22 cycles in total. The treatment worked well until he had to take about five or six weeks off. He became very ill...
by SueH
Sun Jun 29, 2014 5:08 pm
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 301844

Re: So far so good!

Hi Steve
Hope your wife has managed to get a remedy. Re your sleep patters my husband took levomepromazine also known as Nozinam for a few nights after chemo it is a relaxant and helps you sleep as well as an anti sickness med so it can be very useful.

Sue H
by SueH
Sun Jun 29, 2014 4:59 pm
Forum: Family, friends and carers
Topic: All about me....not
Replies: 13
Views: 6049

Re: All about me....not

So sorry your husband is so down. I agree with Mark and Sue. Try and get him to see his GP or Nurse. To answer Leila, Belson was a Nazi concentration camp. When it was liberated by the allies the surviving inmates were emaciated, hence the expression. I really hope things get better for you both Sue H
by SueH
Thu Jun 05, 2014 9:09 am
Forum: General chat
Topic: need some info from experienced people
Replies: 8
Views: 9847

Re: need some info from experienced people

Hi

You say you have had your gall bladder removed. The gall bladder stores bile for release when you eat to aid digestion. The lack of this extra bile would make it hard to digest fatty foods leading to fatty stools.
You may need a digestive enzyme like Creon.

Good luck Sue

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