Search found 16 matches

by Lisajb
Mon May 26, 2014 9:30 pm
Forum: General chat
Topic: Another life lost to this dreadful disease
Replies: 10
Views: 7256

Another life lost to this dreadful disease

My 39 year old sister Dominique died today, quietly and without fuss, exactly as she had lived the last 5 months since diagnosis of inoperable PC. She tried Folfirinox but only managed two rounds as the vivacity of this combination was just too much for her already depleted body. Dom never complaine...
by Lisajb
Fri May 23, 2014 8:49 pm
Forum: Family, friends and carers
Topic: Wish someone would help him
Replies: 428
Views: 126477

Re: Wish someone would help him

Thank you Steve and Rob - you are both always so helpful to everyone.

best wishes
Lisa
by Lisajb
Fri May 23, 2014 4:06 pm
Forum: Family, friends and carers
Topic: Wish someone would help him
Replies: 428
Views: 126477

Re: Wish someone would help him

I am really sorry to discover that since posting last Sunday Leila has left the forum. I hope that my post was not solely responsible for her decision to leave and I want to offer my apology to anyone who may have considered me to be talking out of turn. It wasn't my intention to offend but to try t...
by Lisajb
Sun May 18, 2014 9:27 pm
Forum: Family, friends and carers
Topic: Wish someone would help him
Replies: 428
Views: 126477

Re: Wish someone would help him

Hello Leila I am so sorry that your dad is feeling that people are choosing not to help him as I believe from all that you have described that it's not that no one will, it's that they don't know what is wrong or how to treat the symptoms even. As Sandra has just said, human beings are actually very...
by Lisajb
Thu Apr 17, 2014 6:46 pm
Forum: Family, friends and carers
Topic: Honey!
Replies: 12
Views: 7104

Re: Honey!

Hi Mojo There are many different views on nutrition and cancer treatment - some of which are doubtful with little research evidence and others which have quite a lot if research support. The NHS does not consider nutrition to be a significant consideration in treatment. In the US a high proportion o...
by Lisajb
Mon Apr 14, 2014 11:18 am
Forum: General chat
Topic: Site Very Sluggish
Replies: 15
Views: 11099

Re: Site Very Sluggish

Not just you but I am wondering if the whole internet is on a go slow at the moment. Reminds me of the days of dial-up!,
Lisa
by Lisajb
Sat Apr 05, 2014 11:39 am
Forum: General chat
Topic: e-Petition
Replies: 23
Views: 12125

Re: e-Petition

99.373.....

Nearly there
by Lisajb
Sat Mar 29, 2014 10:08 pm
Forum: General chat
Topic: Mike - Cestrian
Replies: 26
Views: 14869

Re: Mike - Cestrian

Mike was so warm and welcoming to everyone. I am so sorry to hear that he lost his fight against this awful disease.
My thoughts are with his family.
Lisax
by Lisajb
Tue Mar 25, 2014 10:55 pm
Forum: Advanced pancreatic cancer
Topic: Abraxane status?
Replies: 16
Views: 8782

Re: Abraxane status?

Hello all Thank you for your thoughtful replies. My sister now knows the full truth of the disease - she hadn't wanted to know much about it for the first couple of months but gradually she has become more able to take on information and yesterday the consultant was very clear about the timeframe be...
by Lisajb
Tue Mar 25, 2014 6:57 pm
Forum: Advanced pancreatic cancer
Topic: Abraxane status?
Replies: 16
Views: 8782

Re: Abraxane status?

Hi all Thank you for the info about Abraxane. Unfortunately my sister is not considered well enough to manage any further chemo so we are focusing on symptom management. The latest CT has shown progression of the tumour and new spots in the liver so the consultant's opinion is that the most aggressi...
by Lisajb
Mon Mar 24, 2014 6:39 am
Forum: Advanced pancreatic cancer
Topic: Abraxane status?
Replies: 16
Views: 8782

Re: Abraxane status?

Hi Leila There are two things I would say - the first is that no matter what the oncologist thinks there is absolutely no excuse for a lack of basic manners. I am a health professional myself, thankfully not a medic, and I have yet again been shocked by the arrogance and lack of ability to interact ...
by Lisajb
Sun Mar 23, 2014 9:12 pm
Forum: Advanced pancreatic cancer
Topic: Abraxane status?
Replies: 16
Views: 8782

Re: Abraxane status?

Thank you anyway. I have found all your posts, and those of everyone on these forums, really helpful in directing my thinking around how best to support my sister and have been grateful to all who are able to share some of their experience in such a difficult time. I am trying to keep hopeful for po...
by Lisajb
Sun Mar 23, 2014 8:54 pm
Forum: Advanced pancreatic cancer
Topic: Abraxane status?
Replies: 16
Views: 8782

Re: Abraxane status?

Thank you Steve. I found the decision report via Nikki's link and saw the Stage lV criterion. I think that my sister's PC has been categorised as stage III but we are getting results of latest CT scan tomorrow and the consultant's approach this week since she viewed the scan suggests that the situat...
by Lisajb
Sun Mar 23, 2014 6:27 pm
Forum: Advanced pancreatic cancer
Topic: Abraxane status?
Replies: 16
Views: 8782

Re: Abraxane status?

Thank you Nikki that's really helpful.
Lisax
by Lisajb
Sun Mar 23, 2014 6:12 pm
Forum: Advanced pancreatic cancer
Topic: Abraxane status?
Replies: 16
Views: 8782

Abraxane status?

Hi I saw that there was mention of Abraxane being approved for nhs use in a post earlier in the week but I can't find anything about it when searching. Can anyone point me in the right direction please? My sister has had two cycles of Folfirinox but has been so unwell and lost so much weight - down ...

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