Search found 13 matches

by Bookgirl2
Tue Apr 29, 2014 11:02 pm
Forum: Family, friends and carers
Topic: Wish someone would help him
Replies: 428
Views: 137970

Re: Wish someone would help him

Hi Leila Sorry have not been on the forum recently (but emailed you separately). Please do push to get a MacMillan nurse. I really wish my mum had been able to see one sooner. When she eventually did see one (just the day before she died) she was really able to help her in a way nobody else had. I'm...
by Bookgirl2
Thu Apr 24, 2014 5:09 pm
Forum: Family, friends and carers
Topic: Wanting to help my mother
Replies: 21
Views: 10791

Re: Wanting to help my mother

Hi Leila Funny that you live in Spalding. My husband's dad lived there (he died a good few years ago, sadly I didn't know him) and my sister-in-law lives in Wigtoft. So pleased that you're able to see your dad this week. You must both really be looking forward to it. Hope you have a lovely weekend (...
by Bookgirl2
Thu Apr 24, 2014 9:24 am
Forum: Family, friends and carers
Topic: Creons, Nurses, and Here. I'm at a loss.
Replies: 110
Views: 37707

Re: Creons, Nurses, and Here. I'm at a loss.

Hi Leah
So good that your dad is able to restart chemo. . Afraid I have no idea re the diarrhoea but hopefully the next gastroenterologist will be able to help. Keeping fingers crossed for you. Love Susan xx
by Bookgirl2
Thu Apr 24, 2014 9:20 am
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 253050

Re: Carls story

Hi Rob I haven't posted on your thread before. I joined back in January after hearing my mum's diagnosis on New Year's Eve but was just a lurker until March. I've caught up on your thread and it's so good to read some cheering news. You sound like a wonderful couple and I'm delighted that the treatm...
by Bookgirl2
Wed Apr 23, 2014 4:51 pm
Forum: Patient Experience Forum
Topic: She's gone
Replies: 289
Views: 135951

Re: A New Chapter

Hi Sarah We haven't 'spoken' before but I just wanted to say hello and send my best wishes for you and your mum. It really touched a nerve when I read that the palliative care nurse referral hadn't happened when it should. This happened too many times with my mum and she never did get the proper car...
by Bookgirl2
Wed Apr 23, 2014 4:42 pm
Forum: Advanced pancreatic cancer
Topic: I am lost
Replies: 5
Views: 5293

Re: I am lost

Dear Anila I just wanted to say hello and to say how very sorry I am to hear your story. I can only imagine how hard it must be to be so far away from your dad when he is so ill. You really should give yourself credit for what you have done. To be able to organise some help via Sue Ryder in Albania ...
by Bookgirl2
Wed Apr 23, 2014 12:51 pm
Forum: Family, friends and carers
Topic: Wanting to help my mother
Replies: 21
Views: 10791

Re: Wanting to help my mother

Hi Leila and Didge Thanks so much to you both for replying. I realise I wrote something very misleading in my last post, Leila. When I said I knew people 'here' would think I should be over it by now, I didn't mean here on the forum. I was typing my message at my desk at work (I know that's wrong bu...
by Bookgirl2
Tue Apr 22, 2014 2:37 pm
Forum: Family, friends and carers
Topic: Wanting to help my mother
Replies: 21
Views: 10791

Re: Wanting to help my mother

Hi Leila I'm so sorry to hear that your employers are less than sympathetic. You have to think these people must have been totally untouched by any personal tragedy to be so unfeeling but also must have little or no compassion. We are part of a group of people who know from bitter experience that it...
by Bookgirl2
Tue Apr 22, 2014 8:25 am
Forum: Family, friends and carers
Topic: Wanting to help my mother
Replies: 21
Views: 10791

Re: Wanting to help my mother

Thank you so much Julia, Sandra and Leila. It means so much to me that you all spared the time in the midst of all your own troubles and worries to reply. My husband, uncle and best friend also keep telling me I have nothing to feel guilty about. The trouble is when I talk to them about it that some...
by Bookgirl2
Mon Apr 21, 2014 4:43 pm
Forum: Family, friends and carers
Topic: Wanting to help my mother
Replies: 21
Views: 10791

Re: Wanting to help my mother

Hello everyone, and apologies to ChrisD, who sent me a message back on 7 March that I didn't reply to. Things had got very bad for us over the previous couple of days. Apologies for the length of this but so much has happened. When I made my first post I was tearing my hair out trying to get someone...
by Bookgirl2
Fri Mar 07, 2014 12:08 am
Forum: Family, friends and carers
Topic: Wanting to help my mother
Replies: 21
Views: 10791

Re: Wanting to help my mother

hi Nikki and Cathy Thanks to both of you for finding the time in the midst of all your own troubles to reply. Have had a tough couple of days and pretty much asleep on my feet now so won't linger but wanted to say how much I appreciate the support. Such lovely people on this forum.I'm in Easex btw C...
by Bookgirl2
Wed Mar 05, 2014 9:57 am
Forum: Family, friends and carers
Topic: Wanting to help my mother
Replies: 21
Views: 10791

Re: Wanting to help my mother

Hi Julia, hi Didge Thank you both for the kind replies. Work are actually being very good, and I know they would gladly give me the time off - I just need to know when would be best (which is impossible really). I already work one day a week at home - and gave up one day a week completely recently -...
by Bookgirl2
Wed Mar 05, 2014 8:43 am
Forum: Family, friends and carers
Topic: Wanting to help my mother
Replies: 21
Views: 10791

Wanting to help my mother

Hello everyone I joined the forum back in January but this is the first time I've posted. I did join the live chat today but got disconnected from the chat room and couldn't reconnect (sorry Jeni - I think you may have offered some advice but I was disconnected before seeing it) I've read many of yo...

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