Search found 227 matches

by RLF
Sat Apr 27, 2019 10:02 am
Forum: Ask the nurse
Topic: **Help**
Replies: 5
Views: 5248

Re: **Help**

Hi Gemma, Not sure how helpful I can be, I’m not a nurse just someone who has gone through what you are. But one thing I’ll ask is when does your mum take her creon? Some people don’t seem to get told you take them at the time of the meal it’s not tablets you just take all day long like you do pain ...
by RLF
Thu Apr 25, 2019 2:09 pm
Forum: Family, friends and carers
Topic: New joiner, widowed in January
Replies: 3
Views: 4507

Re: New joiner, widowed in January

Hi ChrisTan, Your story is similar to so many of our that it’s hard to not relive the moments that I remember that parallel yours. But this isn’t about me, this is about you and your husband and the loss you’ve experienced. I just send out a virtual hug and hope there are people around you to give y...
by RLF
Fri Apr 12, 2019 8:45 am
Forum: Family, friends and carers
Topic: Concerned husband
Replies: 52
Views: 47684

Re: Concerned husband

I’m so sorry to hear of your loss, but yes she did fight valiantly and managed to prove them wrong which is always the best thing a person can do. I hope you find some peace and strength in the next few days/weeks knowing you did everything you could and I’m sure she was just grateful having you by ...
by RLF
Fri Apr 12, 2019 8:33 am
Forum: Advanced pancreatic cancer
Topic: Tumour markers
Replies: 3
Views: 4426

Re: Tumour markers

Hi Theresa,
That’s such a small rise I’d try to not worry about it, though I’d understand it’s easy to fixate on those numbers. When would you have it done again?
If it’s in a couple weeks time then fingers crossed that shows no further climb or that it’s gone down again.
Rob
X
by RLF
Tue Jul 10, 2018 1:35 pm
Forum: Family, friends and carers
Topic: Can not believe I’m here again
Replies: 9
Views: 9138

Re: Can not believe I’m here again

So sorry you’re back here for a second time. It’s a worry that plagues me all the time that I’ll be back here about another loved one, so I’m gutted for you that it’s your reality. Don’t know what to say, but know that people out there are thinking of you and try to carry on as best you can. You’ve ...
by RLF
Thu May 24, 2018 2:59 pm
Forum: Coping with loss/ Memorial
Topic: Moving on . . . .
Replies: 7
Views: 15778

Re: Moving on . . . .

Hi Mo x Sorry to hear of your struggles, I guess we all can relate to it though we are all different so I won’t say “I know how you feel” cos I don’t, but I empathise totally with everything you say. I’ve been having counselling at the hospice for about 8/9 months now. I can honestly say it’s been a...
by RLF
Tue Jun 20, 2017 10:20 am
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 232145

Re: Carls story

I'm sorry to say Carl slipped off into his final sleep Sunday at 12.15pm. I was holding his hand and his mum his other and he was surrounded by love and family. He didn't seem in any pain or distress and the hospice staff were just as devastated as we were. He touched so many lives, and made so many...
by RLF
Fri Jun 16, 2017 12:30 pm
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 232145

Re: Carls story

Hi everyone, it's been a long time since I've posted and the rollercoaster journey has been very real. In the last few months we've had highs when Drs telling us Carl just had a little disease on the liver, to lows of it had spread to his heart, to it had spread to his skin... and probably 100 other...
by RLF
Fri Mar 17, 2017 3:50 pm
Forum: Patient Experience Forum
Topic: 36 yo adv pancr cancer patient treated in France
Replies: 172
Views: 164536

Re: 36 yo adv pancr cancer patient treated in France

Have a great holiday! And yes from what you wrote Carl has had 6-7months cancer free after each ablation he's had, and that has kept him going for the last 3.5years, we were told that it isnt usually done for pancreatic cancer too, but when you are young and fit and healthy why wouldnt you push for ...
by RLF
Fri Mar 17, 2017 3:40 pm
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 232145

Re: Carls story

Thank you all for dropping by and sending us well wishes. I have been on but not really felt up to posting, as bit by bit we seemed to get worse and worse news. After the bad experience with the NHS hospital and Carl being told he has lung mets now by a oncologist we don't normally see, he rang to t...
by RLF
Thu Mar 02, 2017 5:22 pm
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 232145

Re: Carls story

Well we saw a oncologist (not our normal one) today and he told Carl that he now has nodules in his lungs. I had to leave as they were running 3 hours late and I was working, plus I didn't know they would have the results so quickly from the scan which was done in a private hospital yesterday. So I ...
by RLF
Fri Feb 24, 2017 1:02 pm
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 232145

Re: Carls story

Thank you all again for your support. Im coping, ups and downs but coping. Nights and mornings are worst, I can't sleep properly and then wake up and maybe for 10mins totally forget about the situation just to get it hit me again. Im in work today and finding it hard to not be at home. Carl is doing...
by RLF
Tue Feb 21, 2017 11:08 am
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 232145

Re: Carls story

Thanks so much for your input, as always its very appreciated! @stepuha - Thanks for the link and info. Shame it's only at one hospital but will see what they say. Didge has recommended the same Dr so I will see if I can get a referral privately to see him. @PW - yes it was one of our oncology team,...
by RLF
Mon Feb 20, 2017 5:20 pm
Forum: Family, friends and carers
Topic: New Diagnosis, First Oncologist Meeting tomorrow
Replies: 54
Views: 37419

Re: New Diagnosis, First Oncologist Meeting tomorrow

So sorry to hear of your loss and just how rapid it was! Hope you and your son can get some help to make thing as easy as possible for you both. Once again I'm really sorry
Rob
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by RLF
Mon Feb 20, 2017 2:55 pm
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 232145

Re: Carls story

Thank you so much for your lovely comments. Yes he looks very well and still does for the most part, bit of breathlessness and his chest pains are still there but a little better. It's hard to write out all the things I'm feeling at the moment but panic is probably the best word for now. The dr came...

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