Search found 32 matches

by washingtonmike
Tue Aug 19, 2014 12:03 am
Forum: Treatment & side effects
Topic: Folfirinox experiences please
Replies: 27
Views: 17011

Re: Folfirinox experiences please

Hi Didge: Blessings on you and yours. I don't have as much experience with Folfirinox as others, having only 5 treatments. It did knock out my single met, however. We followed with Gemzar/Abraxane for 12/13 treatments after that. While on the Folfirinox we had to remove the Iriniotecan because of ve...
by washingtonmike
Mon Aug 18, 2014 11:33 pm
Forum: Patient Experience Forum
Topic: Weight loss
Replies: 8
Views: 6817

Re: Weight loss

Outstanding. I wish we had Boots over here, I hear so many good things about that firm.
Mike
by washingtonmike
Mon Aug 18, 2014 11:30 pm
Forum: Patient Experience Forum
Topic: One lady's bucket list
Replies: 11
Views: 7934

Re: One lady's bucket list

Julia, I haven't worked up the courage for that just yet, <LOL> <LOL>; it's definitely something to keep in mind. Love your humor. Cheers, Mike
by washingtonmike
Mon Aug 18, 2014 2:12 pm
Forum: Patient Experience Forum
Topic: One lady's bucket list
Replies: 11
Views: 7934

Link to One lady's bucket list

Hi all: Thanks for the greetings and care; I rebate it back to you 110%. BBC moved the original text overnight so it took some browsing to find it again. Below are the links to the BBC website and to a simple text copy I put up this morning for those in GB who aren't able to view the original: Origi...
by washingtonmike
Sun Aug 17, 2014 3:08 pm
Forum: Patient Experience Forum
Topic: One lady's bucket list
Replies: 11
Views: 7934

Re: One lady's bucket list

Hi gentle folk: I'll try to copy the text and move it to a private website. Don't know if it'll work or not but it's worth the attempt. I'll post the link and someone from your side can give it a try (more than one way to skin a cat :)) On a personal note, I've been a bit peckish of late. But, I'm h...
by washingtonmike
Sat Aug 16, 2014 3:27 pm
Forum: Patient Experience Forum
Topic: One lady's bucket list
Replies: 11
Views: 7934

One lady's bucket list

Found this article on BBC.com this morning. A good read. Enjoy.

http://www.bbc.com/travel/feature/20140 ... f-cancer/1
by washingtonmike
Fri May 30, 2014 3:40 pm
Forum: Patient Experience Forum
Topic: Have had to change from Folfirinox to Gemcitabine
Replies: 11
Views: 9543

Re: Have had to change from Folfirinox to Gemcitabine

Hi Muzzy: Yes, I started with five treatments of Folfirinox. My understanding is it's the gold standard for chemo treatment if one can withstand the rigors. After my 5th treatment we did another scan and the single met I had was no longer in evidence, it was considered "resolved". After that I was p...
by washingtonmike
Sat Nov 23, 2013 1:22 pm
Forum: General chat
Topic: New U.S. trial starting?
Replies: 5
Views: 5438

Re: New U.S. trial starting?

Hi Folks: Someone sent me the link to the actual study which is here:

http://clinicaltrials.gov/ct2/show/NCT01280058?

It's still open and accepting patients, will run for another year+. Cheers, Mike
by washingtonmike
Fri Nov 22, 2013 1:15 pm
Forum: General chat
Topic: New U.S. trial starting?
Replies: 5
Views: 5438

New U.S. trial starting?

I've found only this scant information about a new trial using the common cold virus. Thought I would share it. Cheers, Mike

http://www.nbc4i.com/story/24037701/tri ... tic-cancer
by washingtonmike
Sat Nov 02, 2013 1:33 pm
Forum: Patient Experience Forum
Topic: could I get some advice?
Replies: 5
Views: 5761

Re: could I get some advice?

Hi Mark: Welcome to the forum. I was diagnosed with pancan in late May. Like you, I was experiencing abdominal pains from time-to-time and after a ct-scan and colonoscopy, both of which were negative, it was decided to treat as IBS as no other cause could be found at the time. Little did we know the...
by washingtonmike
Sat Sep 28, 2013 2:58 pm
Forum: Advanced pancreatic cancer
Topic: Help us please.
Replies: 24
Views: 12272

Re: Help us please.

Hi Emma: I'm not a caregiver but a single 72-year old guy who was fortunate enough to have a small family unit (niece and her family) willing to take me in when I was diagnosed in May. When people ask me about my experience(s) I tell them it was sort of like being yanked up by the hair on your head ...
by washingtonmike
Sun Sep 22, 2013 1:35 am
Forum: Patient Experience Forum
Topic: Progress Report, Treatment #9
Replies: 7
Views: 6287

Re: Progress Report, Treatment #9

Hi Jeni: The convention went extremely well, no forced breaks or rest periods. Thankfully the sessions were over by about 4:00 p.m. so there was time to kick off one's shoes and relax a bit before the dinner hour. I must admit I did pretty well for an old guy :P Cheers, Mike
by washingtonmike
Tue Sep 17, 2013 1:48 pm
Forum: Patient Experience Forum
Topic: Progress Report, Treatment #9
Replies: 7
Views: 6287

Re: Progress Report, Treatment #9

Thanks all. I'm preparing for an out-of-town trip, leaving on Thursday, returning on Saturday, this for a convention. I may have to leave the room occasionally and rest a bit (the sessions tend to run long) but I'm really looking forward to this "grand excursion".

My best to all. Cheers, Mike
by washingtonmike
Mon Sep 16, 2013 10:20 pm
Forum: Patient Experience Forum
Topic: She's gone
Replies: 289
Views: 128781

Re: 1st Chemo & Port-a-cath for pump at home

Hi Sarah: Cathy, I believe, is correct in that the reactions will differ with the patient. I have a PICC line in my left arm and had absolutely no problems with it through five treatments. I wore the pump in a fanny pack slung from my shoulder and brought into bed with me at nights. Sleeping with it...
by washingtonmike
Mon Sep 16, 2013 10:02 pm
Forum: Patient Experience Forum
Topic: Progress Report, Treatment #9
Replies: 7
Views: 6287

Progress Report, Treatment #9

Greetings All: I've just finished up treatment #4 on Gemcitabine/Tarceva, this after 5 treatments of Folfirinol/ox. Diagnosed May 24th. CA19-9 levels now at 67 and continuing to drop from 6,830 on 6 June. WBC count at 2.2L, Platelets at 185, Neutrophils 0.8L. I'm to start receiving Neupogen injectio...

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