Pancreatic Cancer UK

Kloweey. Hi. Do you by any chance know the type of morphine your dad is on and the dosage? They tend to start with lowish doses and when they increase it you worry a bit. Is it OxyContin for slow release and oxynorm as a top up for breakthrough pain? You can go right up to 200 mg of OxyContin appare...

Sympathies to Mikes family and friends. He was so supportive of everyone on the forum, always replied in a positive and helpful way. So sorry
June W

Mogs, hi. You can have calshakes prescribed. They are high in calories and like a milkshake. You put a thick liquid part in a shaker along with milk and ice cream. That might be worth a try. Laxido or movacol for the constipation. They are fairly gentle but if you need a bomb try co danthramer or ev...

Hi Cara/mogs. So sorry to hear and read about your mum. With this illness for some people pain is not the biggest symptom they experience. As far as my husband was concerned pain was our number one concern. There were nights when he was screaming in agony. Get the out of hours doctor if it gets real...

Hi there. I have just discovered your posts about your dad this afternoon and then when I got to the bottom of the page I see that he has passed away. I'm so sorry but, like you, and everyone else on this forum, we want the suffering to be over for them. My husband died on November 19th at home wher...

As another one of the PC survivors group I thought I would have a go at putting feelings into words. Bill died November 19th after being diagnosed on April 12th. My biggest problem is this.....how unfair life was to Bill! That's it. I live on my own, I hate my own company, I stay up very late....don...

Cathy. Hats off to you for that post detailing the whole story about yours and Jonathan's fight and journey with PC. You have been a real rock to Jonathan and to all of us in the forum family. As you said you were able to go on holiday and several lovely weekends during the past year. The photos and...

Janem hi. You are living through a nightmare just now. Half way through reading your post my mind was telling me that your poor mum was not ill but diverting attention from your dad! Then when I got to the end I felt terrible for thinking that! Get as many people on board as you can as this is not g...

Christmas will never be the same again that is certain. It will be different. Not necessarily awful, just different. In fact the way the past months have been for so many of us. Very very different from how we imagined the route our lives would take. But you pick yourself up, dust yourself off and s...

The weighing machine is hilarious! Cathy has now been re named Catherine Wheels.....not by me! Someone much quicker off the mark. Hope J doing well at home
June

Dear God! Nightmare indeed. You need to get a good team round you and no better person than a nurse. It's hard not to worry about food. For weeks my husband survived on porridge, two digestives and a yoghurt at lunch time and that was about it. He couldn't face food at all later in the day. Maybe so...

Amanda. My husbands main problem was pain control. You need the level of morphine to match the pain. You can't go from a lowish dose to a much higher one or you make the patient toxic ie over medicated, jerky and sick. Don't wait around for a week hoping it will settle. It takes a couple of weeks tr...

Dear Bee, I am so sorry today to hear about Chris. How he managed to work right up to so near the end is astonishing! And yourself as well I don't know how you did it. Bill was incapable of sorting out the meds during the last weeks plus he couldn't stand hence I needed to lift him to use a commode....

Yip Bill had a DVT in one calf then he developed clotting in the lungs which made him very unwell and he was admitted to hospital for a couple of days. Clexane injections were prescribed for the clotting and he was able to do those himself. Twice a day. Hope your man picks up soon!
June

Pam. Hi. My husband always had legs like twiglets but they became very very swollen with fluid as did his feet. You need to keep all of the skin in really good condition by putting moisturising cream on every day. What you don't want is the skin to crack and split. Also Bill was given full leg tube ...