Search found 100 matches

by Jwilson
Thu May 29, 2014 4:28 pm
Forum: Family, friends and carers
Topic: my dads life expectancy???
Replies: 15
Views: 12964

Re: my dads life expectancy???

Kloweey. Hi. Do you by any chance know the type of morphine your dad is on and the dosage? They tend to start with lowish doses and when they increase it you worry a bit. Is it OxyContin for slow release and oxynorm as a top up for breakthrough pain? You can go right up to 200 mg of OxyContin appare...
by Jwilson
Tue Apr 01, 2014 1:01 am
Forum: General chat
Topic: Mike - Cestrian
Replies: 26
Views: 15315

Re: Mike - Cestrian

Sympathies to Mikes family and friends. He was so supportive of everyone on the forum, always replied in a positive and helpful way. So sorry
June W
by Jwilson
Fri Mar 21, 2014 12:44 am
Forum: Family, friends and carers
Topic: constipation and pain.
Replies: 14
Views: 9306

Re: constipation and pain.

Mogs, hi. You can have calshakes prescribed. They are high in calories and like a milkshake. You put a thick liquid part in a shaker along with milk and ice cream. That might be worth a try. Laxido or movacol for the constipation. They are fairly gentle but if you need a bomb try co danthramer or ev...
by Jwilson
Fri Mar 21, 2014 12:36 am
Forum: Family, friends and carers
Topic: Feeling Alone
Replies: 38
Views: 16092

Re: Feeling Alone

Hi Cara/mogs. So sorry to hear and read about your mum. With this illness for some people pain is not the biggest symptom they experience. As far as my husband was concerned pain was our number one concern. There were nights when he was screaming in agony. Get the out of hours doctor if it gets real...
by Jwilson
Tue Feb 18, 2014 6:02 pm
Forum: Advanced pancreatic cancer
Topic: How much longer will he suffer.
Replies: 24
Views: 12562

Re: How much longer will he suffer.

Hi there. I have just discovered your posts about your dad this afternoon and then when I got to the bottom of the page I see that he has passed away. I'm so sorry but, like you, and everyone else on this forum, we want the suffering to be over for them. My husband died on November 19th at home wher...
by Jwilson
Thu Jan 30, 2014 7:22 pm
Forum: Coping with loss/ Memorial
Topic: How are all your Ladies coping ?
Replies: 19
Views: 28341

Re: How are all your Ladies coping ?

As another one of the PC survivors group I thought I would have a go at putting feelings into words. Bill died November 19th after being diagnosed on April 12th. My biggest problem is this.....how unfair life was to Bill! That's it. I live on my own, I hate my own company, I stay up very late....don...
by Jwilson
Tue Jan 14, 2014 7:08 pm
Forum: Advanced pancreatic cancer
Topic: Jonathan's final performance
Replies: 73
Views: 34931

Re: My hero, lover and best friend gone..

Cathy. Hats off to you for that post detailing the whole story about yours and Jonathan's fight and journey with PC. You have been a real rock to Jonathan and to all of us in the forum family. As you said you were able to go on holiday and several lovely weekends during the past year. The photos and...
by Jwilson
Tue Dec 24, 2013 4:30 pm
Forum: Family, friends and carers
Topic: Feeling Low and Wondering What Next
Replies: 9
Views: 5042

Re: Feeling Low and Wondering What Next

Janem hi. You are living through a nightmare just now. Half way through reading your post my mind was telling me that your poor mum was not ill but diverting attention from your dad! Then when I got to the end I felt terrible for thinking that! Get as many people on board as you can as this is not g...
by Jwilson
Mon Dec 23, 2013 4:26 pm
Forum: Advanced pancreatic cancer
Topic: Christmas
Replies: 8
Views: 5994

Re: Christmas

Christmas will never be the same again that is certain. It will be different. Not necessarily awful, just different. In fact the way the past months have been for so many of us. Very very different from how we imagined the route our lives would take. But you pick yourself up, dust yourself off and s...
by Jwilson
Sun Dec 22, 2013 3:25 am
Forum: Advanced pancreatic cancer
Topic: A bit of a worry....
Replies: 121
Views: 58493

Re: A bit of a worry....

The weighing machine is hilarious! Cathy has now been re named Catherine Wheels.....not by me! Someone much quicker off the mark. Hope J doing well at home
June
by Jwilson
Tue Dec 17, 2013 11:47 pm
Forum: Family, friends and carers
Topic: Lost in a nightmare
Replies: 86
Views: 37630

Re: Lost in a nightmare

Dear God! Nightmare indeed. You need to get a good team round you and no better person than a nurse. It's hard not to worry about food. For weeks my husband survived on porridge, two digestives and a yoghurt at lunch time and that was about it. He couldn't face food at all later in the day. Maybe so...
by Jwilson
Tue Dec 17, 2013 4:24 pm
Forum: Family, friends and carers
Topic: Lost in a nightmare
Replies: 86
Views: 37630

Re: Lost in a nightmare

Amanda. My husbands main problem was pain control. You need the level of morphine to match the pain. You can't go from a lowish dose to a much higher one or you make the patient toxic ie over medicated, jerky and sick. Don't wait around for a week hoping it will settle. It takes a couple of weeks tr...
by Jwilson
Sat Dec 14, 2013 9:38 am
Forum: Family, friends and carers
Topic: Taking the plunge!
Replies: 128
Views: 48940

Re: Taking the plunge!

Dear Bee, I am so sorry today to hear about Chris. How he managed to work right up to so near the end is astonishing! And yourself as well I don't know how you did it. Bill was incapable of sorting out the meds during the last weeks plus he couldn't stand hence I needed to lift him to use a commode....
by Jwilson
Sun Dec 08, 2013 11:57 pm
Forum: Advanced pancreatic cancer
Topic: Swollen legs and abdomen advice
Replies: 19
Views: 21890

Re: Swollen legs and abdomen advice

Yip Bill had a DVT in one calf then he developed clotting in the lungs which made him very unwell and he was admitted to hospital for a couple of days. Clexane injections were prescribed for the clotting and he was able to do those himself. Twice a day. Hope your man picks up soon!
June
by Jwilson
Thu Dec 05, 2013 8:50 am
Forum: Advanced pancreatic cancer
Topic: Swollen legs and abdomen advice
Replies: 19
Views: 21890

Re: Swollen legs and abdomen advice

Pam. Hi. My husband always had legs like twiglets but they became very very swollen with fluid as did his feet. You need to keep all of the skin in really good condition by putting moisturising cream on every day. What you don't want is the skin to crack and split. Also Bill was given full leg tube ...

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