Pancreatic Cancer UK

Hi Pete, I too had surgery, but mine was the other end - the body and tail of my pancreas -' a distal pancreatectomy,' also lost my spleen and part of my tummy. I struggled with creons, being very bloated amongst other things. I was changed to Nutryzym 22, and have never looked back, but I do not ta...

Hi, I wondered if there is any advice anyone could give me, from their experiences, I have a PNET which was debulked in October, 2012, and at the moment I am on 28 injections, to control this. I was told at the time of surgery, I may become diabetic. [I lost the body and tail of my pancreas] My last...

Have read the posts, regarding Wilko Johnson with interest, although, not a lot of information really, could have done with more emphasis on his cancer, and as you say, no mention that it is an endocrine tumour. A little self interest here I'm afraid, because I too have a pancreatic endocrine tumour...

Hi Rachel, definately early days, twelve days gosh - I was in hospital for fifteen days, it wasn't a whipples op. I had, it was the other end - the body and tail of my pancreas etc. so, take it steady, and yes, would think that you need creon (I personally couldn't get on with Creon,) I was very blo...

yes, very, very sluggish - I also thought it was my computer, and it doesn't want to 'smile' either! Carole x

Bravely written Cathy, and beautiful as well. Carole x

So sorry Sue, devastated at your posting, you and your boys will be in my prayers, such a blessing you have three sons, strange how we feel we all know each other so well through the postings. Carole. x

Hello David, I would also just like to say, welcome to this wonderful site, and as you can see, there is support by the bucket full. You are so positive - keep positive, it really does help, you are very lucky to have such a supportive family. Carole.

Sorry Linda, only just seen your posting regarding Nutrizym 22. Your doctor is just about right. It will be trial and error for a while, I take one with breakfast/sometimes two( eggs, or small amount bacon, or beans on toast, that sort of thing / two with lunch - that is our main meal, I always take...

Hi Adrian, always difficult to know what to say, but I feel sure that if you have been offered surgery, and you think you are in the right place for this, then go for it. I had surgery, not a whipples, but the other end of the pancreas, body and tail, and spleen, and a bit of my tummy. Don't worry a...

Could I add, I too had problems with creons, persevered for months, even taking the contents out of the capsule - not recommended, - this may or may not help, but my GP tried me on a different brand, Nutrizym 22, and I have been so much better. Carole

Hi Linda, just thought I would add to your post, regarding Creons. Could be totally unrelated, but I was struggling with Creons, the biggest problem was severe bloating - I have a brilliant GP and Dietician at the hospital, tried Creons out of the capsule, but not really recommended, however, my GP ...

Lots of hope Polly, your mum is lucky if she has been offered surgery, you say 'of later years' how old is your mum - I had the other end of my pancreas removed last October, the body and tail, and I am 71 - lots of lovely people on this forum, ready to offer support by the bucket load, keep your ch...

Hello Cheryl, please try to stay positve, it really does help I have read your posting, and my heart goes out to you. How lucky your dad is to have you - just be there for him. My husband was and is there for me, couldn't manage without him. I didn't think I would see christmas, but then it was foun...

Would just like to post a big thankyou to Jeni, for her time this morning, on the telephone - you are such a great support to us all. Carole.