Search found 36 matches

by dabber66
Fri Jan 02, 2015 12:44 pm
Forum: Patient Experience Forum
Topic: Advice for Creon
Replies: 9
Views: 8683

Re: Advice for Creon

Hi Pete, I too had surgery, but mine was the other end - the body and tail of my pancreas -' a distal pancreatectomy,' also lost my spleen and part of my tummy. I struggled with creons, being very bloated amongst other things. I was changed to Nutryzym 22, and have never looked back, but I do not ta...
by dabber66
Sun Nov 30, 2014 2:21 pm
Forum: Patient Experience Forum
Topic: Distal pancreatectomy, two years on - can I prevent diabetes
Replies: 0
Views: 4807

Distal pancreatectomy, two years on - can I prevent diabetes

Hi, I wondered if there is any advice anyone could give me, from their experiences, I have a PNET which was debulked in October, 2012, and at the moment I am on 28 injections, to control this. I was told at the time of surgery, I may become diabetic. [I lost the body and tail of my pancreas] My last...
by dabber66
Fri May 02, 2014 3:43 pm
Forum: General chat
Topic: Wilko Johnson gets op!
Replies: 3
Views: 5202

Re: Wilko Johnson gets op!

Have read the posts, regarding Wilko Johnson with interest, although, not a lot of information really, could have done with more emphasis on his cancer, and as you say, no mention that it is an endocrine tumour. A little self interest here I'm afraid, because I too have a pancreatic endocrine tumour...
by dabber66
Wed Apr 30, 2014 12:31 am
Forum: Patient Experience Forum
Topic: Post whipples back pain
Replies: 6
Views: 6539

Re: Post whipples back pain

Hi Rachel, definately early days, twelve days gosh - I was in hospital for fifteen days, it wasn't a whipples op. I had, it was the other end - the body and tail of my pancreas etc. so, take it steady, and yes, would think that you need creon (I personally couldn't get on with Creon,) I was very blo...
by dabber66
Sat Apr 19, 2014 12:15 pm
Forum: General chat
Topic: Site Very Sluggish
Replies: 15
Views: 11095

Re: Site Very Sluggish

yes, very, very sluggish - I also thought it was my computer, and it doesn't want to 'smile' either! Carole x
by dabber66
Tue Jan 14, 2014 4:58 pm
Forum: Advanced pancreatic cancer
Topic: Jonathan's final performance
Replies: 73
Views: 33940

Re: My hero, lover and best friend gone..

Bravely written Cathy, and beautiful as well. Carole x
by dabber66
Sat Nov 16, 2013 5:32 pm
Forum: Advanced pancreatic cancer
Topic: Devastated
Replies: 17
Views: 9247

Re: Devastated

So sorry Sue, devastated at your posting, you and your boys will be in my prayers, such a blessing you have three sons, strange how we feel we all know each other so well through the postings. Carole. x
by dabber66
Thu Oct 03, 2013 8:02 pm
Forum: Advanced pancreatic cancer
Topic: Starting a long long journey
Replies: 69
Views: 32405

Re: Starting a long long journey

Hello David, I would also just like to say, welcome to this wonderful site, and as you can see, there is support by the bucket full. You are so positive - keep positive, it really does help, you are very lucky to have such a supportive family. Carole.
by dabber66
Sun Jun 30, 2013 6:02 pm
Forum: Patient Experience Forum
Topic: My Journey So Far
Replies: 215
Views: 121634

Re: My Journey So Far

Sorry Linda, only just seen your posting regarding Nutrizym 22. Your doctor is just about right. It will be trial and error for a while, I take one with breakfast/sometimes two( eggs, or small amount bacon, or beans on toast, that sort of thing / two with lunch - that is our main meal, I always take...
by dabber66
Wed Jun 26, 2013 12:19 am
Forum: Patient Experience Forum
Topic: newbie need help plz
Replies: 10
Views: 7491

Re: newbie need help plz

Hi Adrian, always difficult to know what to say, but I feel sure that if you have been offered surgery, and you think you are in the right place for this, then go for it. I had surgery, not a whipples, but the other end of the pancreas, body and tail, and spleen, and a bit of my tummy. Don't worry a...
by dabber66
Fri Jun 14, 2013 11:02 am
Forum: Family, friends and carers
Topic: My Husband
Replies: 46
Views: 32627

Re: My Husband

Could I add, I too had problems with creons, persevered for months, even taking the contents out of the capsule - not recommended, - this may or may not help, but my GP tried me on a different brand, Nutrizym 22, and I have been so much better. Carole
by dabber66
Mon May 27, 2013 9:03 pm
Forum: Patient Experience Forum
Topic: My Journey So Far
Replies: 215
Views: 121634

Re: My Journey So Far

Hi Linda, just thought I would add to your post, regarding Creons. Could be totally unrelated, but I was struggling with Creons, the biggest problem was severe bloating - I have a brilliant GP and Dietician at the hospital, tried Creons out of the capsule, but not really recommended, however, my GP ...
by dabber66
Tue May 21, 2013 12:36 am
Forum: Family, friends and carers
Topic: Just had the news...
Replies: 4
Views: 3679

Re: Just had the news...

Lots of hope Polly, your mum is lucky if she has been offered surgery, you say 'of later years' how old is your mum - I had the other end of my pancreas removed last October, the body and tail, and I am 71 - lots of lovely people on this forum, ready to offer support by the bucket load, keep your ch...
by dabber66
Sat Mar 30, 2013 9:36 am
Forum: Family, friends and carers
Topic: How to stay positive?
Replies: 9
Views: 5208

Re: How to stay positive?

Hello Cheryl, please try to stay positve, it really does help I have read your posting, and my heart goes out to you. How lucky your dad is to have you - just be there for him. My husband was and is there for me, couldn't manage without him. I didn't think I would see christmas, but then it was foun...
by dabber66
Wed Mar 27, 2013 4:40 pm
Forum: Patient Experience Forum
Topic: Welcome to this new sub forum
Replies: 92
Views: 128839

Re: Welcome to this new sub forum

Would just like to post a big thankyou to Jeni, for her time this morning, on the telephone - you are such a great support to us all. Carole.

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