Search found 108 matches

by Sones
Wed Jan 25, 2017 9:23 am
Forum: Patient Experience Forum
Topic: We all need hope........
Replies: 5
Views: 10458

Re: We all need hope........

Dear proud wife, we all need to vent so please don't apologise. In the five years coming on here I have read the most heartbreaking stories but also read and met people who have the most inspirational stories to tell. It must be so heartbreaking for people who have lost a loved one and have to cope ...
by Sones
Tue Jan 24, 2017 8:38 pm
Forum: Patient Experience Forum
Topic: We all need hope........
Replies: 5
Views: 10458

We all need hope........

For the last fives years I have visited this site daily but posted rarely. PC is a dreadful disease and has such a low five year survival rate. When I was first diagnosed I visited this site and believe me it gave me very little hope. However, I'm still here and all of us visiting this site, patient...
by Sones
Tue Jan 24, 2017 7:44 pm
Forum: Family, friends and carers
Topic: Thank you and our story... but we are not that far yet!
Replies: 433
Views: 142275

Re: Thank you and our story... but we are not that far yet!

Dear DG my heart goes out to you, you have gone above and beyond with your love for your dad and he know this. My thoughts are with you and your family.

Marmalade what a lovely post.x
by Sones
Mon Jul 18, 2016 5:47 pm
Forum: Treatment & side effects
Topic: Creon enzymes
Replies: 15
Views: 22616

Re: Creon enzymes

Interesting to read your post Jeni. I have recently had a stay in a general hospital and on admission my Creon was taken off me by the ward sister and locked away. I was told I could have two 25,000 caps each drug round. I tried in vain to explain how Creon works but I was firmly refused access. Two...
by Sones
Fri Feb 12, 2016 9:46 pm
Forum: General chat
Topic: Positive thinking
Replies: 11
Views: 11535

Re: Positive thinking

Awe proud wife I'm sure no one has felt offended by any comments you or anyone else has made. Its so easy for us all to say this is what to do and what to feel etc but were all different in so many ways. I'm an absolute reck who tends to cry at anything and everything these days. I know what it's li...
by Sones
Fri Feb 12, 2016 8:04 pm
Forum: General chat
Topic: Positive thinking
Replies: 11
Views: 11535

Re: Positive thinking

Thank you so much for posting this. I can remember when I was having chemo and crying constantly thinking I can't do this I have to be positive or the cancer will win. Unfortunately I still cried daily.....still do (although not daily ) 4 years 4months later I I'm still here. The other Pet hate of m...
by Sones
Thu Aug 13, 2015 7:36 pm
Forum: Patient Experience Forum
Topic: My first chemo
Replies: 14
Views: 13104

Re: My first chemo

Hi Kaye sorry to hear you've not been feeling to well but good news that your beginning to feel a little better. I don't have experience of Folfurinox as I had gemcitabine but what I did find really helpful with the nausea was ginger - I used to grate a little fresh ginger in boiling water but you c...
by Sones
Tue Aug 04, 2015 9:01 pm
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 224880

Re: Carls story

Dear Rob I've been thinking about you both all day and so pleased to read about Carls latest results. Happy birthday for tomorrow. Love to you both. Sue.xxx
by Sones
Fri Jul 03, 2015 9:30 pm
Forum: Patient Experience Forum
Topic: 4 years diagnosis - 57th birthday celebration
Replies: 7
Views: 8849

4 years diagnosis - 57th birthday celebration

Hi Just wanted to let fellow "sufferers" (hate that term) know that having been diagnosed with PC ( whipples/chemo etc) just after my 53rd birthday I'm still here! Having just celebrated my 57th birthday and having a large glass of Chateau de Pape, I do feel very "lucky " but always apprehensive. Li...
by Sones
Sun Apr 19, 2015 5:37 pm
Forum: General chat
Topic: Essex Pancreatic Cancer Support Network
Replies: 6
Views: 10154

Re: Essex Pancreatic Cancer Support Network

Hi Robert I was living in Colchester when diagnosed and so wished for some group/someone to talk to who was going through the same nightmare that I was/am. There wasn't anything, so I'm so pleased that support groups are now popping up and welcome them with open arms. I now live in Nottinghamshire s...
by Sones
Sat Feb 14, 2015 6:46 pm
Forum: Patient Experience Forum
Topic: gemcitibine
Replies: 5
Views: 7614

Re: gemcitibine

Hi Graham, I had a six month course of gemcitabine ( three weeks on one week off ) in October 2011 and initially tolerated it quite well. However the chemo is accumulative and I started to struggle after the first four months. I found it was hard going but manageable. Like Steve tiredness was a big ...
by Sones
Thu Dec 18, 2014 4:34 pm
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 224880

Re: Carls story

Dear Rob, I can only imagine how your both feeling right now and my heart goes out to you both. It's not always helpful to be given answers like "elevated" and then left waiting as this understandably raises anxieties. However, it sounds like your on the ball and will get things moving. I don't know...
by Sones
Sun Nov 09, 2014 7:51 pm
Forum: Patient Experience Forum
Topic: Advice about scans
Replies: 4
Views: 7233

Re: Advice about scans

Hi Pete It's been three years since I had my surgery followed by six months of chemo. I think I had my first scan after six months of chemo. From then on my oncologist has tended to go on my bloods (CA19-9 tumour marker as a measure) and on how I'm feeling. I think I've had about three in total sinc...
by Sones
Sun Oct 26, 2014 8:51 pm
Forum: Patient Experience Forum
Topic: Tired/sore eyes
Replies: 7
Views: 7621

Re: Tired/sore eyes

Lol I'm not psychic Roy It was the nurses on this site I was referring to.x
by Sones
Sun Oct 26, 2014 11:34 am
Forum: Patient Experience Forum
Topic: Tired/sore eyes
Replies: 7
Views: 7621

Re: Tired/sore eyes

Hi Roy i can't remember having sore eyes when I was on gemictabine but the chemo is accumulative and I did get very tired three quarters way through the six month course. Would be worth asking the nurses on Monday. Sue.x

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