Pancreatic Cancer UK

Dear proud wife, we all need to vent so please don't apologise. In the five years coming on here I have read the most heartbreaking stories but also read and met people who have the most inspirational stories to tell. It must be so heartbreaking for people who have lost a loved one and have to cope ...

For the last fives years I have visited this site daily but posted rarely. PC is a dreadful disease and has such a low five year survival rate. When I was first diagnosed I visited this site and believe me it gave me very little hope. However, I'm still here and all of us visiting this site, patient...

Dear DG my heart goes out to you, you have gone above and beyond with your love for your dad and he know this. My thoughts are with you and your family.

Marmalade what a lovely post.x

Interesting to read your post Jeni. I have recently had a stay in a general hospital and on admission my Creon was taken off me by the ward sister and locked away. I was told I could have two 25,000 caps each drug round. I tried in vain to explain how Creon works but I was firmly refused access. Two...

Awe proud wife I'm sure no one has felt offended by any comments you or anyone else has made. Its so easy for us all to say this is what to do and what to feel etc but were all different in so many ways. I'm an absolute reck who tends to cry at anything and everything these days. I know what it's li...

Thank you so much for posting this. I can remember when I was having chemo and crying constantly thinking I can't do this I have to be positive or the cancer will win. Unfortunately I still cried daily.....still do (although not daily ) 4 years 4months later I I'm still here. The other Pet hate of m...

Hi Kaye sorry to hear you've not been feeling to well but good news that your beginning to feel a little better. I don't have experience of Folfurinox as I had gemcitabine but what I did find really helpful with the nausea was ginger - I used to grate a little fresh ginger in boiling water but you c...

Dear Rob I've been thinking about you both all day and so pleased to read about Carls latest results. Happy birthday for tomorrow. Love to you both. Sue.xxx

Hi Just wanted to let fellow "sufferers" (hate that term) know that having been diagnosed with PC ( whipples/chemo etc) just after my 53rd birthday I'm still here! Having just celebrated my 57th birthday and having a large glass of Chateau de Pape, I do feel very "lucky " but always apprehensive. Li...

Hi Robert I was living in Colchester when diagnosed and so wished for some group/someone to talk to who was going through the same nightmare that I was/am. There wasn't anything, so I'm so pleased that support groups are now popping up and welcome them with open arms. I now live in Nottinghamshire s...

Hi Graham, I had a six month course of gemcitabine ( three weeks on one week off ) in October 2011 and initially tolerated it quite well. However the chemo is accumulative and I started to struggle after the first four months. I found it was hard going but manageable. Like Steve tiredness was a big ...

Dear Rob, I can only imagine how your both feeling right now and my heart goes out to you both. It's not always helpful to be given answers like "elevated" and then left waiting as this understandably raises anxieties. However, it sounds like your on the ball and will get things moving. I don't know...

Hi Pete It's been three years since I had my surgery followed by six months of chemo. I think I had my first scan after six months of chemo. From then on my oncologist has tended to go on my bloods (CA19-9 tumour marker as a measure) and on how I'm feeling. I think I've had about three in total sinc...

Lol I'm not psychic Roy It was the nurses on this site I was referring to.x

Hi Roy i can't remember having sore eyes when I was on gemictabine but the chemo is accumulative and I did get very tired three quarters way through the six month course. Would be worth asking the nurses on Monday. Sue.x