Search found 294 matches

by PCUK Nurse Dianne
Tue Mar 31, 2020 3:39 pm
Forum: General chat
Topic: Exercise suggestions wanted
Replies: 1
Views: 73

Re: Exercise suggestions wanted

Hi Memorris50, Thank you for your very good question, as you highlight it is very difficult for many people being housebound at present with the current isolation restrictions. You are very sensible in trying to manage your fatigue, and recognise some forms of exercise are important. I have had an e...
by PCUK Nurse Dianne
Tue Mar 17, 2020 3:48 pm
Forum: Patient Experience Forum
Topic: Newbie
Replies: 8
Views: 515

Re: Newbie

Hi Dave, Welcome to the forum, I am sure you will find this wonderful forum family so generous in their thoughts and support, as always. Dave I am sure this may be an uncertain time for you, however it does sound that you have some good news that you are being seen promptly and have investigations t...
by PCUK Nurse Dianne
Tue Mar 17, 2020 3:37 pm
Forum: Coping with loss/ Memorial
Topic: Dads 1year anniversary of his death
Replies: 1
Views: 163

Re: Dads 1year anniversary of his death

Dear R19902009, Thank you for sharing your thoughts on this memorial day of your precious Dad. I am sure this must bring back many thoughts and emotions for you. We certainly appreciate that these months becoming a year does happen so rapidly and those first anniversaries are never easy. It is so lo...
by PCUK Nurse Dianne
Wed Mar 11, 2020 2:14 pm
Forum: News from Pancreatic Cancer UK
Topic: Coronavirus Update
Replies: 0
Views: 200

Coronavirus Update

Pancreatic Cancer UK has worked alongside other charities called 'Once Cancer Voice' in providing some question and answers for anyone affected by a cancer diagnosis. We have some information that may be helpful to read through on the Pancreatic Cancer UK website if you or a loved one are affected b...
by PCUK Nurse Dianne
Tue Feb 25, 2020 2:36 pm
Forum: Family, friends and carers
Topic: Coping with the highs and lows
Replies: 6
Views: 810

Re: Coping with the highs and lows

Hi Jo, Welcome to this forum, I am sure you will find the wonderful 'forum family' here will be in contact and also understand all you say. I am sorry to hear of Dad's diagnosis and all that this involves, however it does sound that you have had some good support and the team have enabled Dad to hav...
by PCUK Nurse Dianne
Wed Feb 12, 2020 2:06 pm
Forum: Ask the nurse
Topic: Creon
Replies: 9
Views: 14810

Re: Creon

Hi Nellie656, Thank you for your query and pleased you felt able to ask this. The foul smelling wind and burps are often a sign that you are not taking enough Creon. You highlight a concern we often hear about. When patients are started on Creon, the suggestion is for 2 with a snack and 2-3 with a m...
by PCUK Nurse Dianne
Wed Jan 29, 2020 12:18 pm
Forum: General chat
Topic: New to all of this
Replies: 5
Views: 6704

Re: New to all of this

Dear Sammi, Thank you for being so brave to post on this forum. I am sure you will find lots of support and comfort from the amazing 'forum family' here. I appreciate that this must be a very anxious time for you anticipating what may lay ahead of you, at the same time trying to cope with motherhood...
by PCUK Nurse Dianne
Tue Nov 05, 2019 9:51 am
Forum: Patient Experience Forum
Topic: Locally advanced head of Pancreas Adenocarcinoma with locoregional lymphadenopathy
Replies: 2
Views: 6615

Re: Locally advanced head of Pancreas Adenocarcinoma with locoregional lymphadenopathy

Good morning Len, Welcome to the forum. I am sure you will find great support and information from this wonderful forum family. As you will have seen there is a lot of support and encouragement on this forum. I am sure you will find over the coming days some feedback and other members sharing their ...
by PCUK Nurse Dianne
Tue Sep 03, 2019 10:52 am
Forum: Family, friends and carers
Topic: My Sweet Dad
Replies: 1
Views: 7347

Re: My Sweet Dad

Dear Maku42, Thank you for posting on the forum, we are sorry to hear your story and the cause that brings you to us. I am sure you will find some wonderful support from the forum family that are so very supportive here. I would also like to offer the services our support team. Our support phone lin...
by PCUK Nurse Dianne
Thu Aug 08, 2019 12:56 pm
Forum: General chat
Topic: New to this
Replies: 4
Views: 10880

Re: New to this

Good morning Pshirley6, Thank you for posting again with concerns. I am sorry to hear of your struggles and the difficult time you have been managing alongside your husband. I wondered if you have had any support around managing nutrition, and if anyone has given you information about the use of pan...
by PCUK Nurse Dianne
Mon May 06, 2019 4:58 pm
Forum: Ask the nurse
Topic: Usual waiting times for procedures
Replies: 20
Views: 34664

Re: Usual waiting times for procedures

Hi 'Littlesister' Please feel free to touch base with us on the support line if you would like some support, i note you have some questions about IPMNs. We can give you some guidance if this may be helpful. Please feel free to touch base with us on the support line. Our phone lines are open from Mon...
by PCUK Nurse Dianne
Mon Apr 22, 2019 7:13 pm
Forum: Family, friends and carers
Topic: My husband Dan
Replies: 15
Views: 19584

Re: My husband Dan

Dear Ann, Our thoughts are with you at this sad time. We can only hope that your dear husband was comfortable and at peace in his passing. Ann please do not hesitate to be in touch if we can support you in any way at all in the weeks ahead. Thinking of you with our heartfelt sympathy. Dianne, Jeni, ...
by PCUK Nurse Dianne
Fri Dec 21, 2018 2:08 pm
Forum: Patient Experience Forum
Topic: Folfirinox Round 7
Replies: 40
Views: 34349

Re: Folfirinox Round 7

Dear Erika, Thank you for continuing to be such an inspiration to many on this forum. Well done on all you have achieved and we hope that you are able to relax and enjoy your Christmas with family. I am sure your experience and strength will be a major inspiration for many others. We are all have gr...
by PCUK Nurse Dianne
Fri Dec 21, 2018 2:04 pm
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 85
Views: 186717

Re: My mum - Stage 4 PC with liver mets

Kate, Wishing you strength and safe travel, along with Erika, you are paving the way for many other patients in making such epic trips. We are all thinking of you and hope that you and Erika will be able to update us on this journey when you feel able. All best wishes, safe journey. Dianne Pancreati...
by PCUK Nurse Dianne
Fri Dec 21, 2018 1:59 pm
Forum: General chat
Topic: First radiotherapy
Replies: 10
Views: 10808

Re: First radiotherapy

Dear Undyddarytro, I am sorry to hear your husband is struggling at present. I wonder if you might wish to touch base with us by phone or email. The sickness may be due to other causes perhaps, ie is this due to the radiotherapy, or is this due to some stricture in the digestive area. My thoughts ar...

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