
Search found 44 matches
- Sat Feb 22, 2014 10:37 pm
- Forum: Patient Experience Forum
- Topic: IPMN
- Replies: 32
- Views: 32801
Re: IPMN
Still having monitoring' no more surgery yet but doing well 

- Thu Nov 29, 2012 9:48 am
- Forum: General chat
- Topic: second opinions
- Replies: 4
- Views: 6948
Re: second opinions
Hi Anne good to hear from you, and that youre doing so well :D Im not sure what to do realy about second opinion. It feels a bit like hobsons choice to have surgery and long recovery etc or carry on monitoring and have surgery later. realy scared they wont catch it before it changes and becomes stag...
- Mon Nov 19, 2012 11:45 am
- Forum: General chat
- Topic: second opinions
- Replies: 4
- Views: 6948
Re: second opinions
can anyone help with this question, maybe a moderator or jeni please? 

- Sat Nov 17, 2012 5:25 pm
- Forum: General chat
- Topic: second opinions
- Replies: 4
- Views: 6948
second opinions
after being seen at regional specialist centre, are patients able to request a second opinion from a different specialist centre of thir choice??
- Fri Nov 02, 2012 5:47 pm
- Forum: Patient Experience Forum
- Topic: IPMN
- Replies: 32
- Views: 32801
Re: IPMN
Thanks deb and jeni x
- Fri Nov 02, 2012 5:25 pm
- Forum: General chat
- Topic: contact a member
- Replies: 2
- Views: 5283
Re: contact a member
thank you Deb x
- Fri Nov 02, 2012 5:09 pm
- Forum: General chat
- Topic: contact a member
- Replies: 2
- Views: 5283
contact a member
hi everyone,is there any way of direct messaging a member please?
i am worried about someone on the forums as she hasnt posted for some time and just hopefull she remains in good health?
thank you
i am worried about someone on the forums as she hasnt posted for some time and just hopefull she remains in good health?
thank you
- Fri Nov 02, 2012 4:57 pm
- Forum: Patient Experience Forum
- Topic: IPMN
- Replies: 32
- Views: 32801
Re: IPMN
Ive been for scan results this week. gallbladder shows no stones and function is normal. main pancreas duct shows 'concerning' dilation for full length and ipmn at head of pancreas, which they feel could account for transient symptoms in gallbladder...pain/nausea and dark urine with itchy skin. this...
- Fri Sep 21, 2012 5:20 pm
- Forum: Advanced pancreatic cancer
- Topic: My Handsome Partner
- Replies: 4
- Views: 4523
Re: My Handsome Partner
Im so sorry to hear your tragic news...yes much more research needs to be done. this disease devastates families in a short space of time. Im sure you have the thoughts of everyone on this forum. keep posting, in some small way it may help you through this awfull time.x
- Fri Sep 21, 2012 5:17 pm
- Forum: General chat
- Topic: spyglass test
- Replies: 19
- Views: 18395
Re: spyglass test
repeat scans booked for oct 11th 

- Fri Sep 21, 2012 5:16 pm
- Forum: Patient Experience Forum
- Topic: IPMN
- Replies: 32
- Views: 32801
Re: IPMN
got appointment for new scans..oct 11th 

- Wed Sep 12, 2012 5:25 pm
- Forum: Patient Experience Forum
- Topic: IPMN
- Replies: 32
- Views: 32801
Re: IPMN
will do thanks Jeni 

- Mon Sep 10, 2012 10:45 am
- Forum: General chat
- Topic: spyglass test
- Replies: 19
- Views: 18395
Re: spyglass test
thanks Anne.
how are you doing? not seen you post for a little while. hope things are okay with you x
how are you doing? not seen you post for a little while. hope things are okay with you x
- Mon Sep 10, 2012 10:35 am
- Forum: Patient Experience Forum
- Topic: IPMN
- Replies: 32
- Views: 32801
Re: IPMN
hi jeni no they didnt elaborate realy. essentially my pain from pancreas seems to have been masking pain in the are of gallbladder. so after i had the nerves cut with bits procedure, the pain hadnt gone, but weirdly seems to have moved accross to area of gallbladder/liver and bile duct!my original s...
- Wed Sep 05, 2012 2:05 pm
- Forum: Patient Experience Forum
- Topic: IPMN
- Replies: 32
- Views: 32801
Re: IPMN
hi everyone. things have changed a lot since my last post. ive had surgery to reduce pain levels but no resections etc. been monitored since then but they now suspect involvment of bile duct and gallbladder so have to have new scans and look at options again.