Search found 1115 matches

by PCUK Nurse Jeni
Fri Apr 16, 2021 12:04 pm
Forum: Patient Experience Forum
Topic: Has anyone had to wait ages to see an oncologist despite having a diagnosis?
Replies: 4
Views: 335

Re: Has anyone had to wait ages to see an oncologist despite having a diagnosis?

Hello & Thanks to you all for your posts. I am sorry to hear about all of this. Its understandable that you are feeling hugely frustrated. Have you been able to contact the PALS department of the hospitals involved at all? PALS stands for Patient Advice and Liaison Service, and they are a very good ...
by PCUK Nurse Jeni
Fri Apr 16, 2021 11:51 am
Forum: Family, friends and carers
Topic: Concerned husband
Replies: 57
Views: 70435

Re: Concerned husband

Hello Saxon, Thanks for posting and updating the forum family. I am so sorry to hear all of this, and that yet another person in the family has now been impacted with pancreatic cancer. How awful for you all. Saxon, I would encourage you to speak with your gp - its probably not going to be great for...
by PCUK Nurse Jeni
Fri Apr 16, 2021 11:33 am
Forum: General chat
Topic: Are GPS worth their salt?
Replies: 4
Views: 225

Re: Are GPS worth their salt?

Hi b9,

Thanks for your post and sorry to hear this.

I will reply to you via email.

kind regards,

Jeni.

Jeni Jones
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: nurse@pancreaticcancer.org.uk
support line: 0808 801 0707
by PCUK Nurse Jeni
Thu Nov 26, 2020 10:09 am
Forum: Ask the nurse
Topic: Scary times
Replies: 3
Views: 8864

Re: Scary times

Hi Essee, Welcome to the forums - a place you would rather not have to visit I am sure, but I hope that it is useful in learning about other peoples stories. My name is Jeni, and I am one of the nurses working on the support line. Please do feel free to contact us on the support line should you need...
by PCUK Nurse Jeni
Wed Sep 09, 2020 4:02 pm
Forum: Patient Experience Forum
Topic: Reaction to Folfirinox, reassurance needed please.
Replies: 3
Views: 2921

Re: Reaction to Folfirinox, reassurance needed please.

Hi Clare,

I have emailed you now.

KR,

Jeni.
by PCUK Nurse Jeni
Wed Sep 09, 2020 12:12 pm
Forum: Advanced pancreatic cancer
Topic: Ascites/Advanced symptoms
Replies: 2
Views: 3291

Re: Ascites/Advanced symptoms

Hello Anna, Thank you for your post on the forums. I am sorry to hear about what is going on with your mum - I am sure this is an anxious time for you all, with a lot to take onboard. Anna, there is a lot contained here in your post, and I will reply to you via email as its easier when there is a lo...
by PCUK Nurse Jeni
Wed Sep 09, 2020 11:19 am
Forum: Treatment & side effects
Topic: Pancreatitis 3 Years After Whipple?
Replies: 6
Views: 4070

Re: Pancreatitis 3 Years After Whipple?

Hi there, We are so sorry to hear that your MIL has passed away from pancreatic cancer. Please accept our condolences from all of the nurses here and the wider charity. It is remarkable to hear that she lived with pancreatic cancer for 4 years, nonetheless, still difficult to lose a loved one. I am ...
by PCUK Nurse Jeni
Wed Sep 09, 2020 11:11 am
Forum: Patient Experience Forum
Topic: Reaction to Folfirinox, reassurance needed please.
Replies: 3
Views: 2921

Re: Reaction to Folfirinox, reassurance needed please.

Hi Clare, Thank you for your post on the forum. I am sorry to hear about your mum. I can imagine that this is new ground for your mum and yourself, so quite a lot to take in. Clare, I will reply to you directly as there are quite a few queries here and easier to address in an email. Kind regards, Je...
by PCUK Nurse Jeni
Tue Aug 11, 2020 1:22 pm
Forum: Patient Experience Forum
Topic: Does anything neutralise the taste you get as a side effect of chemo?
Replies: 4
Views: 2731

Re: Does anything neutralise the taste you get as a side effect of chemo?

Hi there, And welcome to the forum. Thank you for posting, and hopefully, you will get some replies from folk who have personal experience of this themselves. The metallic type taste in your mouth is most likely from the Oxaliplatin part of the chemotherapy. It is quite common to hear those who are ...
by PCUK Nurse Jeni
Wed Jul 08, 2020 3:42 pm
Forum: Family, friends and carers
Topic: Dad's PC - Stage 4 with liver mets
Replies: 2
Views: 3495

Re: Dad's PC - Stage 4 with liver mets

Hello c, Welcome to our forum. I am sorry that you find yourself on here, and to hear that your family has been affected by pancreatic cancer, and that this has been compounded by the Covid 19 pandemic. It seems as though things have been going relatively well, as you say, until recently. C, do you ...
by PCUK Nurse Jeni
Wed Jul 08, 2020 3:22 pm
Forum: Treatment & side effects
Topic: Prolapse surgery with pancreatic cancer
Replies: 2
Views: 2801

Re: Prolapse surgery with pancreatic cancer

Hello Jo sister, Welcome to the forum - understandably, not a place anyone wishes to be, but we hope a place where you will get mutual support from others on here. I am so sorry to hear about your sister - this sounds so painful. I wonder, has your sister considered a second opinion from a different...
by PCUK Nurse Jeni
Fri Jun 26, 2020 10:33 am
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 4
Views: 3498

Re: First folfirinox experience

Hello Mo2020, Welcome to the forum and thank you for your first post. In order to maximise your replies, and to ensure the post is visible, I have moved it to its own topic, which means the thread will be replies to your post alone. Its good to hear that you have been able to have a Whipples operati...
by PCUK Nurse Jeni
Tue Jun 23, 2020 3:16 pm
Forum: Family, friends and carers
Topic: Dad’s Pancreatic Cancer
Replies: 1
Views: 2823

Re: Dad’s Pancreatic Cancer

Hi There, Welcome to the board - I hope that you will find it a welcoming and helpful place to ask questions. Please don't hesitate to contact us should you need to - its good to hear you found your phone call useful. Kind regards, Jeni. Jeni Jones Pancreatic Cancer Specialist Nurse Support Team Pan...
by PCUK Nurse Jeni
Wed Jun 17, 2020 1:09 pm
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 70
Views: 96432

Re: First folfirinox experience

Hi Kate, My apologies for the late reply - I had posted a reply, but due to maintenance on the forum, it doesn't seem to have uploaded. Lovely to hear your inspiring update - so hope filled and also, quite busy in all the things you have managed to do! You really are doing amazingly, and still manag...
by PCUK Nurse Jeni
Thu Apr 23, 2020 10:07 am
Forum: Patient Experience Forum
Topic: Recently diagnosed and concerned about surgery and chemotherapy
Replies: 7
Views: 6857

Re: Recently diagnosed and concerned about surgery and chemotherapy

Hi FishNChip, Thanks for your post on the forums. We would like to take this opportunity to welcome you to the discussion forum, and we hope that you find it helpful. These are difficult decisions for you to make no doubt, and you are doing the right thing by gaining insight into how others have cop...

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