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by PCUK Nurse Jeni
Mon Aug 05, 2019 1:59 pm
Forum: General chat
Topic: Never been more afraid in my life
Replies: 4
Views: 594

Re: Never been more afraid in my life

Hi Richie, Thanks for the post and welcome to the forums. I am sorry to hear that you are having some symptoms of Exocrine Insufficiency, and have been started on creon. This definitely should help with the symptoms aspect of this - hopefully, you are taking a good dose? if not, we can certainly hel...
by PCUK Nurse Jeni
Thu Aug 01, 2019 3:41 pm
Forum: Treatment & side effects
Topic: Treatment break
Replies: 6
Views: 8900

Re: Treatment break

Hello Theresa, Thanks for your update, and great news about the response to chemo - amazing! It's great to share some good news which can give people hope. What is the name of the trial Theresa, do you know? I can imagine that you are really looking forward to a break from chemo. I hope the vaccine ...
by PCUK Nurse Jeni
Thu Jul 25, 2019 4:28 pm
Forum: Patient Experience Forum
Topic: Mom was Diagnosed with Borderline Resectable PC
Replies: 2
Views: 412

Re: Mom was Diagnosed with Borderline Resectable PC

Hello JohnDoe, Thank you for your post, and welcome to the forums - although probably not the place that you want to be of course. I am so sorry to hear of your Dad's diagnosis of Multiple Myeloma, and also your mum's diagnosis of pancreatic cancer. It certainly is a lot for you to take in and I am ...
by PCUK Nurse Jeni
Thu Jul 25, 2019 3:56 pm
Forum: General chat
Topic: Scared and desperate
Replies: 20
Views: 4561

Re: Scared and desperate

Hi Curly Sue, Thank you for posting your update. Its so good that you are feeling more positive after the consultation, and that further investigations are pending. It is good to have been given some reassurance also regarding the CT scan results, and the potential "whereabouts" of these. I am so pl...
by PCUK Nurse Jeni
Tue Jul 23, 2019 3:57 pm
Forum: General chat
Topic: Scared and desperate
Replies: 20
Views: 4561

Re: Scared and desperate

Hi Curly Sue,

Please see my post in another thread about timings for CT scan results.

Hopefully,you will get some news soon.

Kind regards,

Jeni.

Jeni Jones
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: nurse@pancreaticcancer.org.uk
support line: 0808 801 0707
by PCUK Nurse Jeni
Tue Jul 23, 2019 3:49 pm
Forum: General chat
Topic: Very scared a year on
Replies: 8
Views: 3076

Re: Very scared a year on

Hi All, Thanks for all the posts. Hope76, if you would like to email our support service, then you will find the details in the signature. Curly Sue, pleased you were able to speak to Nicci. In terms of your CT report, then can you call your gp to see if they have had the results yet? Or perhaps by ...
by PCUK Nurse Jeni
Tue Jul 23, 2019 1:29 pm
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 69
Views: 49001

Re: My mum - Stage 4 PC with liver mets

Dear Janine, We are so sorry to read about your mum having had a stroke. It is so difficult watching her suffer I am sure. Blood clots, which cause strokes, can be a symptom of pancreatic cancer, unfortunately. Has she had a CT scan of her head, or are they leaving her to keep her comfortable at the...
by PCUK Nurse Jeni
Wed Jul 10, 2019 4:52 pm
Forum: General chat
Topic: Scared and desperate
Replies: 20
Views: 4561

Re: Scared and desperate

Hello Curlysue, I am sorry to hear that you have had issues for some time, and have been having further tests to assess what is going on. It must be an anxious time for you. I am sorry that you felt like you had no health professional to speak to - we would be more than happy to have a conversation ...
by PCUK Nurse Jeni
Tue Jun 11, 2019 12:05 pm
Forum: General chat
Topic: Pancreatic Cancer worry
Replies: 3
Views: 4329

Re: Pancreatic Cancer worry

Hello Mai, Thank you for your post, and apologies that we have been unable to respond until now. I am sorry to hear that you have been having some health concerns of late. You seem to have a good overview of when your symptoms appear, and what triggers them - which is good. Also, good to hear that y...
by PCUK Nurse Jeni
Tue Jun 11, 2019 11:21 am
Forum: General chat
Topic: Newly diagnosed with Stage 3 Locally advanced PC
Replies: 2
Views: 2579

Re: Newly diagnosed with Stage 3 Locally advanced PC

Hello ValJean, Thank you for your post. I am sure that others will respond to you in terms of personal experience, or experience of looking after a loved one. However, most pancreatic cancers will be inoperable, unfortunately. So, in that respect, there will be many who are in the same boat who are ...
by PCUK Nurse Jeni
Thu May 23, 2019 11:12 am
Forum: Treatment & side effects
Topic: Treatment break
Replies: 6
Views: 8900

Re: Treatment break

Hi Theresa, Thanks for your post - this is really great news for you. Well done on all you have gone through to get this far. You are a true inspiration Theresa. So, is the trial alongside the Folfirinox then? Sounds interesting. I think its always the same for folk who are about to have a chemo bre...
by PCUK Nurse Jeni
Sun May 19, 2019 11:26 am
Forum: Ask the nurse
Topic: Newly Diagnosed
Replies: 1
Views: 4016

Re: Newly Diagnosed

Hi Rose, So sorry to hear the news about your sister, and the recent diagnosis of pancreatic cancer at a young age. It can be very hard to take on board such a diagnosis, and its not unusual to have a whole range of emotions which you are describing. Its difficult to be a "bystander", so to speak, a...
by PCUK Nurse Jeni
Thu May 16, 2019 3:59 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 105
Views: 74008

Re: This cruel disease

Dear Keith, the whole family and Kerry's little ones, We are so unbelievably saddened to hear your news regarding your lovely Kerry. Our thoughts are with you all as you attempt to come to terms with Kerry's absence. Please accept our sincere condolences on behalf of all the nurses on here. Your pos...
by PCUK Nurse Jeni
Wed May 08, 2019 9:37 am
Forum: Coping with loss/ Memorial
Topic: Dad passing away
Replies: 4
Views: 8307

Re: Dad passing away

Hi R1, Thank you for your lovely, heartfelt post on the forums. I am so sorry to hear that you recently lost your dad to pancreatic cancer - I am sure that he was very proud of his family, and yourself for caring for him also. Its incredible that he was diagnosed in June 2015 - and that he has been ...
by PCUK Nurse Jeni
Mon May 06, 2019 5:15 pm
Forum: Ask the nurse
Topic: Enlarged peri-pancreatic lymph node found. Reason for concern?
Replies: 1
Views: 2996

Re: Enlarged peri-pancreatic lymph node found. Reason for concern?

Hi There hopeful, Thanks for your post on the forums, and sorry to hear that your mum has been having some health issues of late. I have tried to email you directly, but I think your account has been deactivated unfortunately, which means I cannot get your email details. As we do not allow personal ...

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