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by PCUK Nurse Jeni
Wed Jul 08, 2020 3:42 pm
Forum: Family, friends and carers
Topic: Dad's PC - Stage 4 with liver mets
Replies: 1
Views: 212

Re: Dad's PC - Stage 4 with liver mets

Hello c, Welcome to our forum. I am sorry that you find yourself on here, and to hear that your family has been affected by pancreatic cancer, and that this has been compounded by the Covid 19 pandemic. It seems as though things have been going relatively well, as you say, until recently. C, do you ...
by PCUK Nurse Jeni
Wed Jul 08, 2020 3:22 pm
Forum: Treatment & side effects
Topic: Prolapse surgery with pancreatic cancer
Replies: 1
Views: 183

Re: Prolapse surgery with pancreatic cancer

Hello Jo sister, Welcome to the forum - understandably, not a place anyone wishes to be, but we hope a place where you will get mutual support from others on here. I am so sorry to hear about your sister - this sounds so painful. I wonder, has your sister considered a second opinion from a different...
by PCUK Nurse Jeni
Fri Jun 26, 2020 10:33 am
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 2
Views: 370

Re: First folfirinox experience

Hello Mo2020, Welcome to the forum and thank you for your first post. In order to maximise your replies, and to ensure the post is visible, I have moved it to its own topic, which means the thread will be replies to your post alone. Its good to hear that you have been able to have a Whipples operati...
by PCUK Nurse Jeni
Tue Jun 23, 2020 3:16 pm
Forum: Family, friends and carers
Topic: Dad’s Pancreatic Cancer
Replies: 1
Views: 491

Re: Dad’s Pancreatic Cancer

Hi There, Welcome to the board - I hope that you will find it a welcoming and helpful place to ask questions. Please don't hesitate to contact us should you need to - its good to hear you found your phone call useful. Kind regards, Jeni. Jeni Jones Pancreatic Cancer Specialist Nurse Support Team Pan...
by PCUK Nurse Jeni
Wed Jun 17, 2020 1:09 pm
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 70
Views: 82372

Re: First folfirinox experience

Hi Kate, My apologies for the late reply - I had posted a reply, but due to maintenance on the forum, it doesn't seem to have uploaded. Lovely to hear your inspiring update - so hope filled and also, quite busy in all the things you have managed to do! You really are doing amazingly, and still manag...
by PCUK Nurse Jeni
Thu Apr 23, 2020 10:07 am
Forum: Patient Experience Forum
Topic: Recently diagnosed and concerned about surgery and chemotherapy
Replies: 7
Views: 3146

Re: Recently diagnosed and concerned about surgery and chemotherapy

Hi FishNChip, Thanks for your post on the forums. We would like to take this opportunity to welcome you to the discussion forum, and we hope that you find it helpful. These are difficult decisions for you to make no doubt, and you are doing the right thing by gaining insight into how others have cop...
by PCUK Nurse Jeni
Tue Apr 21, 2020 10:35 am
Forum: Treatment & side effects
Topic: Bile duct Stent
Replies: 1
Views: 2174

Re: Bile duct Stent

Hello Vera, Thank you for your post and I would like to take this opportunity to welcome you to the forums - although of course, not the place you would wish to be visiting. Vera, the pain you are getting might be because of a couple of different things - I wonder whether you might wish to call us o...
by PCUK Nurse Jeni
Fri Jan 17, 2020 1:14 pm
Forum: Family, friends and carers
Topic: The nightmare so far....
Replies: 40
Views: 65359

Re: The nightmare so far....

Dear AndAde, Thank you for your post. I am so sorry to hear the news about your husband. It was good that he passed away peacefully, and that this was made possible by the support of the palliative care team. And that you had such closeness at the end of his life. No doubt this is a difficult start ...
by PCUK Nurse Jeni
Thu Jan 16, 2020 1:13 pm
Forum: Treatment & side effects
Topic: Lynparza -olaparib)
Replies: 1
Views: 2850

Re: Lynparza -olaparib)

Hi there Nighean, Thanks for your post. Yes, olaparib has been used in the UK in the POLO clinical trial - which is now closed to recruitment. It was used in BRCA mutated pancreas cancers, and the results are due in February 2021. More here: https://clinicaltrials.gov/ct2/show/NCT02184195 There is a...
by PCUK Nurse Jeni
Tue Jan 14, 2020 4:57 pm
Forum: General chat
Topic: Our wonderful nurses
Replies: 2
Views: 3157

Re: Our wonderful nurses

Dear Sandra and Mo, Our heartfelt thanks to you both for your lovely wishes. We were all overwhelmed and surprised, but honoured to receive such a prestigious award. It is our privilege to support those affected by pancreatic cancer in a small way. Kindest regards, Jeni. Jeni Jones Pancreatic Cancer...
by PCUK Nurse Jeni
Tue Jan 14, 2020 4:54 pm
Forum: Treatment & side effects
Topic: Treatment break
Replies: 12
Views: 30574

Re: Treatment break

Theresa,

What amazing news!!!!

Huge congrats - so pleased to hear that you are feeling so well still!

Long may it last!

Jeni.

Jeni Jones
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: nurse@pancreaticcancer.org.uk
support line: 0808 801 0707
by PCUK Nurse Jeni
Thu Jan 09, 2020 10:34 am
Forum: Patient Experience Forum
Topic: Newly diagnosed - struggling with chemo
Replies: 6
Views: 4550

Re: Newly diagnosed - struggling with chemo

Hello Nighean, Thanks for your post on the forums, and so sorry to hear that you are struggling with nausea and eating at the moment. I will email you directly regarding this if thats ok? Kind regards, Jeni. Jeni Jones Pancreatic Cancer Specialist Nurse Support Team Pancreatic Cancer UK email: nurse...
by PCUK Nurse Jeni
Wed Jan 08, 2020 11:49 am
Forum: Treatment & side effects
Topic: Recently diagnosed PC
Replies: 4
Views: 3599

Re: Recently diagnosed PC

This content has been moved from another topic as is from same id: Addendum A few questions I could do some help with please 1. Back pain at night - I take Paracetamol and Ibuprofen but not opiod yet due to constipation. Any alternative? 2. I've suffered considerable weight loss - muscle atrophy, an...
by PCUK Nurse Jeni
Wed Jan 08, 2020 11:48 am
Forum: Treatment & side effects
Topic: Recently diagnosed PC
Replies: 4
Views: 3599

Re: Recently diagnosed PC

This content has been moved from another topic as is from same id: I'm a 59 year old male who up until early October led a healthy and active life. I started experiencing backache end of June and on a rare visit to my GP discussed this with them and was told it was muscular. My medical notes showed ...
by PCUK Nurse Jeni
Wed Jan 08, 2020 11:44 am
Forum: Treatment & side effects
Topic: Recently diagnosed PC
Replies: 4
Views: 3599

Re: Recently diagnosed PC

Hi there, Welcome to the forums - no doubt, not a place you would choose to be. Thanks for your post, and I am sorry to hear that you have been diagnosed with pancreatic cancer. I will email you directly with some more information, as quite a bit to post on here. I hope that's ok? Jeni. Jeni Jones P...

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