Search found 1087 matches

by PCUK Nurse Jeni
Wed Nov 13, 2019 2:57 pm
Forum: Coping with loss/ Memorial
Topic: Writing this to help me cope
Replies: 5
Views: 358

Re: Writing this to help me cope

Hi Corinne, That is really good to hear that you feel supported and that you might have the option of bereavement counselling at at later stage. It is a good strategy to handle one day at a time, because no two days turn out to be the same during grief. You know where we are should you need us. Kind...
by PCUK Nurse Jeni
Mon Nov 11, 2019 3:45 pm
Forum: Coping with loss/ Memorial
Topic: Writing this to help me cope
Replies: 5
Views: 358

Re: Writing this to help me cope

Dear Corinne and Changeofplan, Thank you for your courage to post on the forums, and tell your own stories of your husbands. It is difficult to imagine how you are both coping with the recent events, and the speed at which they took place. It is heartbreaking to read what you all went through, not l...
by PCUK Nurse Jeni
Wed Oct 16, 2019 10:29 am
Forum: Ask the nurse
Topic: Help - scared
Replies: 3
Views: 748

Re: Help - scared

Hi Beans, Thanks for your forum post - I am pleased that you were able to take the step to post. So sorry to hear that you are having health concerns of late, with some worrying symptoms. Can I ask if you know what bloods you had done exactly beans? And also, have you taken a poo sample in at all to...
by PCUK Nurse Jeni
Tue Oct 15, 2019 3:16 pm
Forum: Family, friends and carers
Topic: Chemo for the older patient
Replies: 12
Views: 8944

Re: Chemo for the older patient

Hello StPancreas, Thanks for the update and apologies that we have not replied until now. Sorry to hear about the mix-up with the clinics that your mum was referred to. Its a good thing that you trusted your instinct and made the call to check what was happening. Its great to hear that the nurses we...
by PCUK Nurse Jeni
Tue Oct 15, 2019 12:51 pm
Forum: Advanced pancreatic cancer
Topic: Our story so far
Replies: 10
Views: 3876

Re: Our story so far

Hello dw010, Thanks so much for your encouraging post and update on your mum. It really is fantastic to hear such good news, and that your mum is feeling so well, gaining weight, mobilising better and able to achieve her goal of cooking the roast dinner. To have such stability of the cancer is also ...
by PCUK Nurse Jeni
Mon Oct 07, 2019 4:56 pm
Forum: Family, friends and carers
Topic: Chemo for the older patient
Replies: 12
Views: 8944

Re: Chemo for the older patient

Hi St.Pancreas, Great to hear that things are moving since the PALS got involved - I am sure that this is a load off your mind at least. The cruise sounds ideal - have a wonderful time! Well deserved! Kind regards, Jeni. Jeni Jones Pancreatic Cancer Specialist Nurse Support Team Pancreatic Cancer UK...
by PCUK Nurse Jeni
Tue Oct 01, 2019 1:09 pm
Forum: Family, friends and carers
Topic: Holiday Insurance
Replies: 1
Views: 3119

Re: Holiday Insurance

Hi Petal, Thanks for the enquiry. Yes, there are some out there who might be able to help. Avanti - 0800 088 4785 Insurancewith.com - 0845 6194 271 MIA insurance - 0800 999 3333 Free Spirit - www.freespirittravelinsurance.com Hopefully, one of these will help you. Kind regards, Jeni. Jeni Jones Panc...
by PCUK Nurse Jeni
Mon Sep 23, 2019 12:46 pm
Forum: Family, friends and carers
Topic: Anxiety overwhelming 1 and 1.5 years later
Replies: 2
Views: 2034

Re: Anxiety overwhelming 1 and 1.5 years later

Hello Staystrong, Thank you for your honest post. I am so sorry to hear that you are having a difficult time of late, and that you are struggling with anxiety. You have been through quite a lot in relation to pancreatic cancer, and must have been a devastating blow to lose both your parents to this ...
by PCUK Nurse Jeni
Mon Sep 23, 2019 12:28 pm
Forum: Family, friends and carers
Topic: Chemo for the older patient
Replies: 12
Views: 8944

Re: Chemo for the older patient

Hello St.Pancreas, Thanks for the post and update - as you say, something positive at least. Have you asked why another scan is needed now? And if it is, why it cannot be requested now, instead of after the liver biopsy, so that at least it is in the "pipeline"? It is good to hear that you have a se...
by PCUK Nurse Jeni
Thu Sep 19, 2019 9:55 am
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 75
Views: 63446

Re: My mum - Stage 4 PC with liver mets

Hi dee123, Thanks so much for posting this - the timeline is really helpful, and it shows clearly that your mum seems to have a sensitivity to chemotherapy. Such good news that stability of the disease can be achieved - this will bring hope to many who are about to embark on chemotherapy. Of course ...
by PCUK Nurse Jeni
Thu Sep 19, 2019 9:48 am
Forum: Family, friends and carers
Topic: Recent diagnosis
Replies: 5
Views: 4650

Re: Recent diagnosis

Hello Alison1972, Thank you for your post on the forums, and I am sorry to hear that your husband has had a diagnosis of pancreatic cancer. And especially in the manner that it was discovered - it is not surprising that you feel upset that it was not picked up the first time around. Can I ask, with ...
by PCUK Nurse Jeni
Tue Sep 17, 2019 3:52 pm
Forum: Family, friends and carers
Topic: Four week nightmare
Replies: 4
Views: 2217

Re: Four week nightmare

Hello Winnieweg, We are so sorry that you have found the website and forums in such devastatingly sad circumstances. Please accept our sincere condolences at your sad loss. Your mum sounds like she was an amazing lady. I am sure it is hard to take in all that has happened in such a short time. Can I...
by PCUK Nurse Jeni
Fri Aug 23, 2019 3:46 pm
Forum: Advanced pancreatic cancer
Topic: Our story so far
Replies: 10
Views: 3876

Re: Our story so far

Hi DW, Thanks for this. Y90 is radioembolization. I have not heard of anywhere in the UK which is doing this in terms of pancreatic cancer. It might be worth a conversation with the oncologist also given that the metastases in the liver and lung have disappeared, whether radiotherapy might be an opt...
by PCUK Nurse Jeni
Thu Aug 22, 2019 11:49 am
Forum: Treatment & side effects
Topic: Treatment break
Replies: 7
Views: 14722

Re: Treatment break

Hi Theresa, This all sounds so positive! I am so pleased to hear you have some holidays booked - you thoroughly deserve them! I hope that you have a fantastic time! Best Wishes from all the nurses here! Jeni. Jeni Jones Pancreatic Cancer Specialist Nurse Support Team Pancreatic Cancer UK email: nurs...
by PCUK Nurse Jeni
Thu Aug 22, 2019 11:45 am
Forum: Advanced pancreatic cancer
Topic: Our story so far
Replies: 10
Views: 3876

Re: Our story so far

Hi DW, Thank you for your post. So sorry to hear that your family has been affected by pancreatic cancer with your mum's diagnosis. However, this is a fantastic response to the Gemcitabine and Abraxane. Thanks for sharing this positive news, as I am sure it will give inspiration to many. This is unf...

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