Search found 1078 matches

by PCUK Nurse Jeni
Thu Sep 19, 2019 9:55 am
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 75
Views: 52292

Re: My mum - Stage 4 PC with liver mets

Hi dee123, Thanks so much for posting this - the timeline is really helpful, and it shows clearly that your mum seems to have a sensitivity to chemotherapy. Such good news that stability of the disease can be achieved - this will bring hope to many who are about to embark on chemotherapy. Of course ...
by PCUK Nurse Jeni
Thu Sep 19, 2019 9:48 am
Forum: Family, friends and carers
Topic: Recent diagnosis
Replies: 3
Views: 242

Re: Recent diagnosis

Hello Alison1972, Thank you for your post on the forums, and I am sorry to hear that your husband has had a diagnosis of pancreatic cancer. And especially in the manner that it was discovered - it is not surprising that you feel upset that it was not picked up the first time around. Can I ask, with ...
by PCUK Nurse Jeni
Tue Sep 17, 2019 3:52 pm
Forum: Family, friends and carers
Topic: Four week nightmare
Replies: 4
Views: 279

Re: Four week nightmare

Hello Winnieweg, We are so sorry that you have found the website and forums in such devastatingly sad circumstances. Please accept our sincere condolences at your sad loss. Your mum sounds like she was an amazing lady. I am sure it is hard to take in all that has happened in such a short time. Can I...
by PCUK Nurse Jeni
Fri Aug 23, 2019 3:46 pm
Forum: Advanced pancreatic cancer
Topic: Our story so far
Replies: 3
Views: 595

Re: Our story so far

Hi DW, Thanks for this. Y90 is radioembolization. I have not heard of anywhere in the UK which is doing this in terms of pancreatic cancer. It might be worth a conversation with the oncologist also given that the metastases in the liver and lung have disappeared, whether radiotherapy might be an opt...
by PCUK Nurse Jeni
Thu Aug 22, 2019 11:49 am
Forum: Treatment & side effects
Topic: Treatment break
Replies: 7
Views: 9650

Re: Treatment break

Hi Theresa, This all sounds so positive! I am so pleased to hear you have some holidays booked - you thoroughly deserve them! I hope that you have a fantastic time! Best Wishes from all the nurses here! Jeni. Jeni Jones Pancreatic Cancer Specialist Nurse Support Team Pancreatic Cancer UK email: nurs...
by PCUK Nurse Jeni
Thu Aug 22, 2019 11:45 am
Forum: Advanced pancreatic cancer
Topic: Our story so far
Replies: 3
Views: 595

Re: Our story so far

Hi DW, Thank you for your post. So sorry to hear that your family has been affected by pancreatic cancer with your mum's diagnosis. However, this is a fantastic response to the Gemcitabine and Abraxane. Thanks for sharing this positive news, as I am sure it will give inspiration to many. This is unf...
by PCUK Nurse Jeni
Thu Aug 22, 2019 11:15 am
Forum: Family, friends and carers
Topic: Chemo for the older patient
Replies: 4
Views: 398

Re: Chemo for the older patient

Hi StPancreas, Thanks for your post, and welcome to the forums - as you say, not a place you wish to be most likely. I hope that you find the forums helpful. I am sorry to hear about your mum and the recent diagnosis of pancreatic cancer. It does seem that she is not suffering unduly from symptoms o...
by PCUK Nurse Jeni
Thu Aug 22, 2019 10:23 am
Forum: General chat
Topic: Scared and desperate
Replies: 24
Views: 6373

Re: Scared and desperate

Great News Curlysue!

Very pleased for you!

Jeni Jones
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: nurse@pancreaticcancer.org.uk
support line: 0808 801 0707
by PCUK Nurse Jeni
Mon Aug 05, 2019 1:59 pm
Forum: General chat
Topic: Never been more afraid in my life
Replies: 4
Views: 725

Re: Never been more afraid in my life

Hi Richie, Thanks for the post and welcome to the forums. I am sorry to hear that you are having some symptoms of Exocrine Insufficiency, and have been started on creon. This definitely should help with the symptoms aspect of this - hopefully, you are taking a good dose? if not, we can certainly hel...
by PCUK Nurse Jeni
Thu Aug 01, 2019 3:41 pm
Forum: Treatment & side effects
Topic: Treatment break
Replies: 7
Views: 9650

Re: Treatment break

Hello Theresa, Thanks for your update, and great news about the response to chemo - amazing! It's great to share some good news which can give people hope. What is the name of the trial Theresa, do you know? I can imagine that you are really looking forward to a break from chemo. I hope the vaccine ...
by PCUK Nurse Jeni
Thu Jul 25, 2019 4:28 pm
Forum: Patient Experience Forum
Topic: Mom was Diagnosed with Borderline Resectable PC
Replies: 2
Views: 532

Re: Mom was Diagnosed with Borderline Resectable PC

Hello JohnDoe, Thank you for your post, and welcome to the forums - although probably not the place that you want to be of course. I am so sorry to hear of your Dad's diagnosis of Multiple Myeloma, and also your mum's diagnosis of pancreatic cancer. It certainly is a lot for you to take in and I am ...
by PCUK Nurse Jeni
Thu Jul 25, 2019 3:56 pm
Forum: General chat
Topic: Scared and desperate
Replies: 24
Views: 6373

Re: Scared and desperate

Hi Curly Sue, Thank you for posting your update. Its so good that you are feeling more positive after the consultation, and that further investigations are pending. It is good to have been given some reassurance also regarding the CT scan results, and the potential "whereabouts" of these. I am so pl...
by PCUK Nurse Jeni
Tue Jul 23, 2019 3:57 pm
Forum: General chat
Topic: Scared and desperate
Replies: 24
Views: 6373

Re: Scared and desperate

Hi Curly Sue,

Please see my post in another thread about timings for CT scan results.

Hopefully,you will get some news soon.

Kind regards,

Jeni.

Jeni Jones
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: nurse@pancreaticcancer.org.uk
support line: 0808 801 0707
by PCUK Nurse Jeni
Tue Jul 23, 2019 3:49 pm
Forum: General chat
Topic: Very scared a year on
Replies: 9
Views: 3976

Re: Very scared a year on

Hi All, Thanks for all the posts. Hope76, if you would like to email our support service, then you will find the details in the signature. Curly Sue, pleased you were able to speak to Nicci. In terms of your CT report, then can you call your gp to see if they have had the results yet? Or perhaps by ...
by PCUK Nurse Jeni
Tue Jul 23, 2019 1:29 pm
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 75
Views: 52292

Re: My mum - Stage 4 PC with liver mets

Dear Janine, We are so sorry to read about your mum having had a stroke. It is so difficult watching her suffer I am sure. Blood clots, which cause strokes, can be a symptom of pancreatic cancer, unfortunately. Has she had a CT scan of her head, or are they leaving her to keep her comfortable at the...

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