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by PCUK Nurse Jeni
Thu Apr 23, 2020 10:07 am
Forum: Patient Experience Forum
Topic: Recently diagnosed and concerned about surgery and chemotherapy
Replies: 7
Views: 2502

Re: Recently diagnosed and concerned about surgery and chemotherapy

Hi FishNChip, Thanks for your post on the forums. We would like to take this opportunity to welcome you to the discussion forum, and we hope that you find it helpful. These are difficult decisions for you to make no doubt, and you are doing the right thing by gaining insight into how others have cop...
by PCUK Nurse Jeni
Tue Apr 21, 2020 10:35 am
Forum: Treatment & side effects
Topic: Bile duct Stent
Replies: 1
Views: 1844

Re: Bile duct Stent

Hello Vera, Thank you for your post and I would like to take this opportunity to welcome you to the forums - although of course, not the place you would wish to be visiting. Vera, the pain you are getting might be because of a couple of different things - I wonder whether you might wish to call us o...
by PCUK Nurse Jeni
Fri Jan 17, 2020 1:14 pm
Forum: Family, friends and carers
Topic: The nightmare so far....
Replies: 40
Views: 64421

Re: The nightmare so far....

Dear AndAde, Thank you for your post. I am so sorry to hear the news about your husband. It was good that he passed away peacefully, and that this was made possible by the support of the palliative care team. And that you had such closeness at the end of his life. No doubt this is a difficult start ...
by PCUK Nurse Jeni
Thu Jan 16, 2020 1:13 pm
Forum: Treatment & side effects
Topic: Lynparza -olaparib)
Replies: 1
Views: 2618

Re: Lynparza -olaparib)

Hi there Nighean, Thanks for your post. Yes, olaparib has been used in the UK in the POLO clinical trial - which is now closed to recruitment. It was used in BRCA mutated pancreas cancers, and the results are due in February 2021. More here: https://clinicaltrials.gov/ct2/show/NCT02184195 There is a...
by PCUK Nurse Jeni
Tue Jan 14, 2020 4:57 pm
Forum: General chat
Topic: Our wonderful nurses
Replies: 2
Views: 2922

Re: Our wonderful nurses

Dear Sandra and Mo, Our heartfelt thanks to you both for your lovely wishes. We were all overwhelmed and surprised, but honoured to receive such a prestigious award. It is our privilege to support those affected by pancreatic cancer in a small way. Kindest regards, Jeni. Jeni Jones Pancreatic Cancer...
by PCUK Nurse Jeni
Tue Jan 14, 2020 4:54 pm
Forum: Treatment & side effects
Topic: Treatment break
Replies: 12
Views: 30095

Re: Treatment break

Theresa,

What amazing news!!!!

Huge congrats - so pleased to hear that you are feeling so well still!

Long may it last!

Jeni.

Jeni Jones
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: nurse@pancreaticcancer.org.uk
support line: 0808 801 0707
by PCUK Nurse Jeni
Thu Jan 09, 2020 10:34 am
Forum: Patient Experience Forum
Topic: Newly diagnosed - struggling with chemo
Replies: 6
Views: 4172

Re: Newly diagnosed - struggling with chemo

Hello Nighean, Thanks for your post on the forums, and so sorry to hear that you are struggling with nausea and eating at the moment. I will email you directly regarding this if thats ok? Kind regards, Jeni. Jeni Jones Pancreatic Cancer Specialist Nurse Support Team Pancreatic Cancer UK email: nurse...
by PCUK Nurse Jeni
Wed Jan 08, 2020 11:49 am
Forum: Treatment & side effects
Topic: Recently diagnosed PC
Replies: 4
Views: 3271

Re: Recently diagnosed PC

This content has been moved from another topic as is from same id: Addendum A few questions I could do some help with please 1. Back pain at night - I take Paracetamol and Ibuprofen but not opiod yet due to constipation. Any alternative? 2. I've suffered considerable weight loss - muscle atrophy, an...
by PCUK Nurse Jeni
Wed Jan 08, 2020 11:48 am
Forum: Treatment & side effects
Topic: Recently diagnosed PC
Replies: 4
Views: 3271

Re: Recently diagnosed PC

This content has been moved from another topic as is from same id: I'm a 59 year old male who up until early October led a healthy and active life. I started experiencing backache end of June and on a rare visit to my GP discussed this with them and was told it was muscular. My medical notes showed ...
by PCUK Nurse Jeni
Wed Jan 08, 2020 11:44 am
Forum: Treatment & side effects
Topic: Recently diagnosed PC
Replies: 4
Views: 3271

Re: Recently diagnosed PC

Hi there, Welcome to the forums - no doubt, not a place you would choose to be. Thanks for your post, and I am sorry to hear that you have been diagnosed with pancreatic cancer. I will email you directly with some more information, as quite a bit to post on here. I hope that's ok? Jeni. Jeni Jones P...
by PCUK Nurse Jeni
Fri Dec 27, 2019 2:46 pm
Forum: Patient Experience Forum
Topic: Help with floating stool and weight loss
Replies: 3
Views: 2868

Re: Help with floating stool and weight loss

Hello JohnDoe, Thanks for your post and enquiry regarding some symptoms your mum is having. John, I am not sure if you are in the UK or not, but I suspect not given the dosing of your mum's creon she is taking, is this correct? Here in the UK, we do not advise anyone who had had pancreatic cancer su...
by PCUK Nurse Jeni
Fri Dec 27, 2019 10:37 am
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 766
Views: 336541

Re: Thanks for sharing your experiences . . .

Hello Mo! How lovely to hear from you with your wonderfully written forum post, as always. I am so sorry to hear of Raymond's death and the nature in which this occurred - as you say, a waste of a life is the saddest part. Its good to hear that you have a gentleman friend - and that you are going to...
by PCUK Nurse Jeni
Mon Dec 16, 2019 3:25 pm
Forum: General chat
Topic: Paranoid newby
Replies: 1
Views: 3303

Re: Paranoid newby

Hello DJTrev, Thank you for your post on the forums. I am sorry to hear that you have had some health related concerns of late, and have been suffering from shingles and neuralgia after this. I wonder whether your gp has given you any indication as to how long this pain might be expected to last? An...
by PCUK Nurse Jeni
Wed Dec 11, 2019 1:20 pm
Forum: Patient Experience Forum
Topic: Newbie.
Replies: 7
Views: 16064

Re: Newbie.

Hello Pete, Thanks for your post - such an encouraging one too! I am sorry to hear that you have been in hospital with some infections, however, you seem to have made such a great recovery. It's good to hear that you are feeling better after the antibiotics, and that you have learnt to go to your gp...
by PCUK Nurse Jeni
Wed Nov 13, 2019 2:57 pm
Forum: Coping with loss/ Memorial
Topic: Writing this to help me cope
Replies: 13
Views: 19872

Re: Writing this to help me cope

Hi Corinne, That is really good to hear that you feel supported and that you might have the option of bereavement counselling at at later stage. It is a good strategy to handle one day at a time, because no two days turn out to be the same during grief. You know where we are should you need us. Kind...

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