Search found 11 matches

by StPancreas
Tue Oct 22, 2019 8:05 pm
Forum: Ask the nurse
Topic: Creon
Replies: 9
Views: 16745

Re: Creon

Thanks. She was prescribed lansoprazole but has got out of the habit of taking it as it said 30 minutes before food and sometimes she wanted breakfast straight away. Is that a rule we should stick with, or is there some leeway? I've suggested keeping them by her bed and taking it on waking while she...
by StPancreas
Sun Oct 20, 2019 6:13 pm
Forum: Ask the nurse
Topic: Creon
Replies: 9
Views: 16745

Creon

Hi, My Mum was put on Creon on diagnosis but still has loose floaty,fatty poo. We have upped the doses and she is having to 4/5 x 25000 with a main meal ( child portion) and 2/3 with snacks. Currently takes it with first mouthful - but it is often the second as she forgets. She had an endosopy in Ma...
by StPancreas
Mon Oct 14, 2019 4:59 pm
Forum: Advanced pancreatic cancer
Topic: Our story so far
Replies: 10
Views: 18345

Re: Our story so far

Thank you for sharing you Mums story. How lovely to enjoy that roast dinner together. She must have been so chuffed. Its great to hear you have got some normality back. I hope it's long lasting for you all.
by StPancreas
Thu Oct 10, 2019 9:08 pm
Forum: Family, friends and carers
Topic: Chemo for the older patient
Replies: 12
Views: 19271

Re: Chemo for the older patient

Well its been another interesting week. A month or so ago I had a requested second opinion referral to a major hospital, but when i booked the appointment the earliest availble was early December. I queried it at the time and although it was marked as urgent it was the best they could do. I had a na...
by StPancreas
Fri Oct 04, 2019 5:15 pm
Forum: Family, friends and carers
Topic: Chemo for the older patient
Replies: 12
Views: 19271

Re: Chemo for the older patient

HI another update. Since I rasied the delay isse with PALS things have got moving. Mum had a sccan yeterday and biopsy ins next week. Had a chat with oncologist who is leaning towards a NET , which is slower growning Liver function stable and CA19-9 stable too. She was quite surprised. Hopefully res...
by StPancreas
Sun Sep 29, 2019 1:31 pm
Forum: Family, friends and carers
Topic: Chemo for the older patient
Replies: 12
Views: 19271

Re: Chemo for the older patient

Well referring to PALS had the desired effect . Head of Oncology called me from abroad basically saying the hospital needs to be more efficient and that she will kick radiography to try and get an appointment. Also will schedule the scan at the same time and book chemo for 3 weeks, as it can be move...
by StPancreas
Fri Sep 27, 2019 3:17 pm
Forum: Family, friends and carers
Topic: Chemo for the older patient
Replies: 12
Views: 19271

Re: Chemo for the older patient

HI Jeni, Thanks for posting . The scan would be a staging scan at the start of chemo so they could monitor the affect. The slower growing tumour they talked about was a NET as you suggested. I have asked if it can be arranged earlier , but I am not confident they will schedule it. Still no sign of a...
by StPancreas
Mon Sep 23, 2019 10:15 am
Forum: Family, friends and carers
Topic: Anxiety overwhelming 1 and 1.5 years later
Replies: 2
Views: 8617

Re: Anxiety overwhelming 1 and 1.5 years later

Hi, So sorry that you have had such a difficult time and that things are still tough for you. Did you have any involvement with a hospice? Maybe they may be able to offer you some support or bereavement counselling? You have been through a lot without time to pause. I work in HR so thought I might b...
by StPancreas
Fri Sep 20, 2019 9:16 pm
Forum: Family, friends and carers
Topic: Chemo for the older patient
Replies: 12
Views: 19271

Re: Chemo for the older patient

Thought I would update as we have a glimmer of hope. Finally saw oncologist today 6 weeks after diagnosis, after lots of hassling for appointments and trying not to fall down a crack in the NHS system. Oncologist thought Mum looked well. Basically tried to understand what her current lifestyle is li...
by StPancreas
Thu Aug 29, 2019 10:50 pm
Forum: Family, friends and carers
Topic: Chemo for the older patient
Replies: 12
Views: 19271

Re: Chemo for the older patient

Hi Jeni, Thanks for that information - I would rate her as a 1. The chemo info is interesting too. Until you know someone who has cancer treatment chemo is just a work - Mum had no concept of how it worked nor that there were so many different variants/ cycle lengths etc. I'll update you with the st...
by StPancreas
Tue Aug 20, 2019 9:13 pm
Forum: Family, friends and carers
Topic: Chemo for the older patient
Replies: 12
Views: 19271

Chemo for the older patient

HI , I've been lurking and much as I wish I didn't need to be here , sadly I do. You do seem a nice bunch though. My Mum has been diagnosed with PC , which has spread to the liver. The consultation appointment was very short, but basically said no treatment just palliative care. That was a shock - I...

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