Pancreatic Cancer UK

Whatever you do, please don’t blame yourself for not pushing for treatment. It’s a bastard disease and unless you can have a Whipple op the outcome is pretty inevitable. My husband had virtually no symptoms but an astonishingly diligent GP referred him anyway. Diagnosed early, he was fit and healthy...

Hi Sarah So sorry to hear about your Mom. They’re such an important part of our lives. My husband was diagnosed with a T3 N1 M0 inoperable tumour 2 years ago. He had 12 rounds of Folfirinox which shrank the tumour. He didn’t have much in the way of side effects. Later chemo radiotherapy and Gemcap c...

My husband had the 12 rounds and the tumour responded well - it shrank quite a bit. After that he had radiotherapy and then Gemcap chemo, with a poor result. He died last October. So he had a good and mainly very healthy 12 months after Folfirinox. But as others have said, everyone is different.

Hi Millie Sorry to hear your bad news. It’s a terrible place to be. My husband was diagnosed 2 years ago. He was a very fit and healthy 66 year old. His tumour was contained within the pancreas, but too close to the major blood vessels to have the op. He had 12 cycles of Folfirinox which was definit...

Oh Lisa, I’m so sorry. It’s devastating to lose someone so quickly and so young. My husband died 8 weeks ago, but we had 42 years together and he survived 20 months from diagnosis. Look after yourself, take as much time as you need to grieve and talk to people who care about you. Sending love and wa...

I’m so sorry Lisa. It’s a truly horrendous thing to go through. Don’t blame Lewis or yourself for not getting treatment sooner - unless you’re one of the fortunate minority where surgery is an option, the outcome is inevitable. If Lewis is willing, take what treatment you can to make the most of wha...

Night time is the worst. I spent months being awake at 4am dreading what was to come. My husband died just before lockdown so he had a small funeral - many friends couldn’t travel and we couldn’t have any wake at all. But it really doesn’t matter. We’re going to have 2 massive wakes when all this Co...

My husband, diagnosed at 66 and very fit had 12 rounds of Folfirinox. They had to reduce it towards the end as he got peripheral neuropathy, but didn’t have any nausea, just some slight changes in appetite. 10 years ago he had CHOP chemo for blood cancer and that just wiped him out for a week every ...

Hi Zoc So sorry to hear about your loved one. It’s a truly horrible place to be. You don’t want them to suffer, but you dread them dying. I think often professionals aren’t completely honest with people when the end is approaching. It’s hard for them to know exactly I guess and also they don’t want ...

Don’t blame yourself Motherhen. My husband was diagnosed really early. He hardly had any symptoms beyond vague abdominal discomfort. The tumour hadn’t spread outside the pancreas. He was healthy and strong. But because of the position of the tumour he couldn’t have surgery. He had 6 months of chemo,...

Hi Jess. Thanks for your message. My husband was quite pessimistic, which can be hard on the partner. He would read things into the reaction of the radiologist doing the scan, which was probably the same thing they said to everyone. When he got his first abnormal result he decided that was it, where...

Thank you Proud Wife. On balance we had a good almost 2 years from diagnosis. I even enjoyed lockdown as we just sat around together like a couple of old fogeys! His health was pretty good up till early September so we were lucky. I agree with you about the hell that it must be for the cancer patien...

Hi Celeste Thanks for your response. I’m really sorry to hear about your husband. It’s a horrible place to be and I hope you’ve got support. I wish you both well in your journey. They stopped the chemo as it wasn’t working and the good news is that his mood improved, so it must have been the chemo. ...

I’m sorry that there’s no one around to help. I suggest you phone the nurses on the helpline tomorrow. The support line is open from 10. As you’ve had all those tests it’s unlikely to be pancreatic cancer, but they might be able to suggest something else. Good luck.

Hi Lucyjev

If you go back to the original post and click on AmadaJ’s username it’ll bring up a list of all her posts.

If you read them you’ll see that her husband sadly died a few years ago.