Pancreatic Cancer UK

Hi all. I’m really struggling with the mental health side of living with someone with incurable cancer. My partner was diagnosed 18 months ago - his tumour was picked up early. But that doesn’t help much. Surgery not an option. 6 months chemo last year, 3 months radiotherapy early this year and now ...

Hi C. Sorry to hear about your dad. It’s a tough thing to deal with. My partner was diagnosed with pancreatic cancer 18 months ago and now has liver mets. He had 12 cycles of Folfirinox last year and started on Gemcap a couple of months ago. Obviously each person responds to chemo differently, but h...

Oh Sammi, I’m so sorry for you. What a scary thing to deal with when you should be enjoying time with your new baby. All I can say is try not to let the scary stuff get to you. When my partner was diagnosed just over a year ago, I read all the stats and thought he hadn’t got long left. But we’re a y...

Hi Len Good luck with your treatment. It sounds like you were caught fairly early. My husband was diagnosed in Feb and had 12 cycles of Folfirinox. He tolerated it very well - people have different experiences of it. It didn’t make him nauseous but changed his appetite quite dramatically. No tiredne...

Hi Val Hope your treatment is going well and you’re not suffering with too many side effects. Altho my husband was initially told his tumour was inoperable, after his 12 cycles of Folfirinox it had shrunk so much he’s now been listed for an op. So you never know what the outcome of treatment might b...

Hi Val Hope your treatment is going well and you’re not suffering with too many side effects. Altho my husband was initially told his tumour was inoperable, after his 12 cycles of Folfirinox it had shrunk so much he’s now been listed for an op. So you never know what the outcome of treatment might b...

Hi Alison1972 Welcome to the club that no-one wants to join. There was a recent post on here - I think it might have been a response to another post- from a woman who was 5 years post surgery. So some people do get there. You’re in the same boat as me I’m afraid. My husband had an abnormal scan on N...

Dear Winnieweg I’m so sorry to hear of your mum’s rapid decline and death. Pancreatic cancer is a very cruel disease and I know that large numbers of people are diagnosed so late that they die really quickly, before any effective treatment can be given. I hope you have close family and friends who c...

That’s lovely to hear.

Hi Curlysue. Sorry that you’re still waiting. It does seem a very long time to wait. Was it your GP who referred you for the scan? If so could you ask them to chase it? it’s probably easier for them to get information. My partner was referred under the 15 day cancer target. He got the phone call fro...

Hi Richietosh. I’m sorry that you’re struggling with the wait for your scan results. I’m sure you’ve googled the causes of pancreatic insufficiency and seen there are lots of causes, not just pancreatic cancer. I suggest you phone the helpline tomorrow as the nurses are very helpful and knowledgeabl...

Hi Curlysue The waiting is the worst part. But because there is something showing on your scan doesn’t always mean you’ve got cancer - it’s hard to tell from a scan as there can be benign tumours as well. My partner was diagnosed early this year and in the weeks between the scan and final diagnosis ...

My partner was diagnosed in Feb with a 5cm locally advanced (ie inoperable) tumour. Started 12 cycles of Folfirinox. After 6 had another scan and the tumour had shrunk by a quarter. He’s had a few side effects but they’re not too bad. Hope that helps.

Oh Keith, I’m so so sorry. To lose someone of that age is so cruel and it must be incredibly hard for you and your children. Your story was one of the first I read when my husband (age 66) was diagnosed in February. It gave me and him such hope that there might be more life than the statistics state...