Search found 20 matches

by The_petal
Tue Oct 01, 2019 11:27 am
Forum: Family, friends and carers
Topic: Holiday Insurance
Replies: 1
Views: 3090

Holiday Insurance

Any recommendations for travel insurance.

I have had the full whipple last year and after 6 months chemo was said to be clear. The quotes I have had for Majorca so far have either been we dont cover or £700+ !
by The_petal
Wed May 22, 2019 8:53 am
Forum: Ask the nurse
Topic: Pet Scan for Type 3C
Replies: 1
Views: 6947

Pet Scan for Type 3C

Big cock up with my PET scan today. When I got the phone call yesterday for a PET scan at 4.00 today I was told not to eat or drink after 12.00 and that my blood sugar had to be below 11.0 So at 11.30 I had a cappuccino and checked my blood sugar which was 11.2 so at 12.30 I had a couple of units wi...
by The_petal
Mon May 13, 2019 11:04 pm
Forum: Treatment & side effects
Topic: Bloating
Replies: 4
Views: 5787

Re: Bloating

Still suffering with incredible bloating, the only thing stopping my stomach getting any larger is that my ribs are in the way, also feet and legs look like they should be on an elephant! it's all bloody painful. So looking for a cause, I have been on daily tinzaparin injections for the last year co...
by The_petal
Thu May 02, 2019 8:01 am
Forum: Treatment & side effects
Topic: Bloating
Replies: 4
Views: 5787

Re: Bloating

It was discussed, and tapped, without comment.

Now the 40k tablets have gone I typically ally take 7*25 tablets with a meal, it was 6*40k but I think that was a bit excessive.
by The_petal
Tue Apr 30, 2019 3:33 pm
Forum: Treatment & side effects
Topic: Bloating
Replies: 4
Views: 5787

Bloating

I had the full Whipple last year with everything out (gall bladder/spleen and Pancreas) last year and have just finished a six month course of Folfirinox which wasn't as bad as I was expecting. My scans were Ok last week and go back in 3 months. The problem is that I now have a grossly inflated stom...
by The_petal
Tue Mar 19, 2019 10:21 am
Forum: Treatment & side effects
Topic: Affect of morphine
Replies: 1
Views: 3420

Affect of morphine

I just wondered if morphine can affect neutrophil levels.

My last treatment was postponed for a week as my neutrophils were a bit low and I wondered if it could be due to the low dosage of morphine I have been having for back pain.
by The_petal
Mon Feb 25, 2019 10:24 am
Forum: Treatment & side effects
Topic: Supplements?
Replies: 4
Views: 8507

Re: Supplements?

Just been recommended MCT Procal by my doctor, has anyone taken it to help put on weight?
by The_petal
Mon Feb 25, 2019 9:54 am
Forum: Treatment & side effects
Topic: Creon 40K
Replies: 4
Views: 5052

Re: Creon 40K

With the shortage of 40K Creon my hospital has suggested I move onto Nutrizym, has anyone had any reports on this.


What I am trying to see is the relative strengths of the two tablets.ie is 1*40k Creon equal to 1 or 2 Nutrizym22, if it is the latter I might as well stay with the 25K Creons.
by The_petal
Wed Feb 20, 2019 5:04 pm
Forum: Treatment & side effects
Topic: Creon 40K
Replies: 4
Views: 5052

Creon 40K

Just a heads up for anyone who hasn't heard Mylan are discontinuing production of the 40K tablets in June.
by The_petal
Wed Dec 12, 2018 1:04 pm
Forum: Treatment & side effects
Topic: Overnight Hypo
Replies: 3
Views: 4596

Re: Overnight Hypo

I have had my pancreas (and spleen and gall bladder) removed and hence now have induced diabetes ~ hence the constant blood sugar monitoring.
by The_petal
Tue Dec 11, 2018 8:06 am
Forum: Treatment & side effects
Topic: Overnight Hypo
Replies: 3
Views: 4596

Overnight Hypo

Last night at 10.00 my blood sugar was 8.4 but I thought to be on the safe side I would have 2 small slices of malt loaf and a small milky coffee, but in the morning at 7.00 my blood sugar was 2.8 ! Recently I have increased my Creon to 6*25000 for my evening meal due to experiencing diarrhea and ex...
by The_petal
Fri Dec 07, 2018 1:23 pm
Forum: Ask the nurse
Topic: Conflicting advice/medicine
Replies: 3
Views: 4513

Re: Conflicting advice/medicine

Many thanks for the DM
by The_petal
Sat Dec 01, 2018 9:20 am
Forum: Ask the nurse
Topic: Conflicting advice/medicine
Replies: 3
Views: 4513

Conflicting advice/medicine

Like most here I have a well stocked medicine cupboard and am taking a large number of different medicines and I am not always sure that they are compatable! I am on Folfirinox ( 3 infusions so far, every 2 weeks) and in addition to the usual meds I am having daily blood thinning injections of Tinza...
by The_petal
Thu Nov 08, 2018 10:01 am
Forum: Patient Experience Forum
Topic: Just started Folfirinox
Replies: 16
Views: 13702

Re: Just started Folfirinox

Well my count was 2.89 on Tuesday so had my 2 course on Wednesday, went reasonably well although I did feel a bit nauseous afterwards ~ and my sugar levels are well up. Because of my concerns with my hair loss I had a cool cap on whilst I was being infused ~ judging by all the faffing around I got t...
by The_petal
Fri Nov 02, 2018 6:07 pm
Forum: Patient Experience Forum
Topic: Just started Folfirinox
Replies: 16
Views: 13702

Re: Just started Folfirinox

More bad news as my treatment has been delayed again due to a low neutrophil count of 1.1 rather than the 1.5 they want!

The only 'good' point was that I discovered that when it was delayed before my count was 0.35 so at least they have increased over the last week.

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