Pancreatic Cancer UK

Hi. I was diagnosed in Sept 2018 and have mets in my liver. I did 19 rounds of folfirinox, a lot of it was at 80% with the oxaliplatin being reduced to 60%. I enjoyed a 14 month chemo break but my last scan showed that the tumour in my pancreas has grown very slightly. Tomorrow I start on folfirinox...

Wow Kate such an inspirational post. I am so pleased that you are doing well and have found a way of living with this horrid disease. Let's hope that a cure is just around the corner. Good luck, stay safe and let's hope for many, many more years. X

Hi Nellie. I cannot remember getting anything from you on Facebook. I wish you all the best with Liverpool, let me know how you get on. I will look out for you. You sound like you are doing well. Theresa

Hi Sammi12. I am so sorry to read your post, you are so young with such a young baby. I was diagnosed in September 2018, my cancer has spread to my liver and my prognosis was extremely poor. I have passed my expiry date by 7 months and I am doing OK. There are some very positive stories out there, t...

Just an update on my chemo break. I had my last chemo at the end of August and the second of the 2 trial vaccines. My last scan was on the 23rd Dec and the results were reported to me by the trial doctors last Tuesday. All remaining lesions are stable, no growth, no reduction and no further spread, ...

Hi Val. I was diagnosed last Oct with stage 4, I had 19 rounds of chemo and my main tumour and liver mets have almost disappeared. I also completed a immunotherapy trial in September. I have had no chemo since August and my latest scan suggested that my remaining tumours are stable. Hang on in there...

Hi DW. I have just read the story about your mum, that is just amazing and I am so pleased that she is doing so well, it truly is an inspiration when you hear such good news. I had a great response to folfirinox and I am also on a chemo break, I haven't had any chemo since the end of August and my r...

Brilliant news thank you for sharing.

That is such good news. I hope your mum enjoyed the wedding and continues to make progress

Thank you Jeni. First vaccine was administered on Monday and round 18 of folfirinox was yesterday. I will have the second vaccine ACIT-1 on the 09th Sept and my last chemo on the 29th August. After the 29th I will have my PICC out and then I have a few holidays booked. Hopefully I will get a few mon...

Just a quick update. Just had chemo number 17 and all is going well, all tumours significantly reduced. I am still waiting to start the trail, there have been a few set backs, trial suspended, scans out of date but hopefully I will get my first vaccine on the 12th August and the 2nd 4 weeks later, I...

Thank you Jeni, I will keep you updated on how things go not only with the break but also with the trial.

Hi, I have just completed 13 rounds of folfirinox after being diagnosed with stage 4 PC and liver mets in October 2018. I have been accepted onto a immunotherapy trial and will continue with chemo until the trial is complete, this should involve approximately 4 more sessions. My oncologist has been ...

I am being treated at XXX, I only live a 20 min walk from the hospital. I will give you a call before midday tomorrow.

Sorry you have 2 messages Kate, I thought I had lost the first one......I will put it down to chemo brain ....lol