Search found 34 matches

by Dee123
Mon Nov 25, 2019 11:26 pm
Forum: Patient Experience Forum
Topic: Newbie.
Replies: 6
Views: 5326

Re: Newbie.

Welcome Pete, your post made me smile too! It helps to stay as positive as possible.

Good luck with your chemo. Sounds like you are doing well so far.

It is good to write on here, it's therapeutic :) Keep us updated x
by Dee123
Sat Nov 23, 2019 3:41 pm
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 77
Views: 95370

Re: My mum - Stage 4 PC with liver mets

A quick update. My mum has just finished another 12 sessions of chemo however the last few days she has felt unwell. We took her temperature on Friday morning and it was 38.8 degrees, we called the hospital and were advised to call an ambulance straight away. They took her to A&E. They have been doi...
by Dee123
Sun Nov 17, 2019 6:33 pm
Forum: Family, friends and carers
Topic: Fortisip drinks
Replies: 1
Views: 3556

Fortisip drinks

Has anyone else been told that their doctors are no longer providing Fortisip yoghurt style drinks on prescription? My mum has been switched over to Aymes Shake Smoothie that she has to make herself from powder and they taste really bad! My mum enjoyed her Fortisip juices everyday, they help to keep...
by Dee123
Tue Sep 17, 2019 7:08 pm
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 77
Views: 95370

Re: My mum - Stage 4 PC with liver mets

The CT scan results came back and the cancer is stable so my mum will continue with GemCap chemo for another 12 weeks. I have included a timeline below: July 2018 - Diagnosed Stage 4 Metastatic Pancreatic Adenocarcinoma = tumour on the head of the pancreas with liver mets August 2018 - Starts Chemo ...
by Dee123
Fri Aug 30, 2019 6:28 pm
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 77
Views: 95370

Re: My mum - Stage 4 PC with liver mets

Hi all, Just thought I would share a positive update while I can. In summary, after my mum's chemo break back in February 2019, the cancer increased on her pancreas and moved to the lungs whilst still being visible on the liver and lymph nodes. Before she could start further treatment, she developed...
by Dee123
Wed Jul 31, 2019 10:34 pm
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 77
Views: 95370

Re: My mum - Stage 4 PC with liver mets

Hi Janine, I am so sorry to hear about your mum. Both of our mums have followed a similar journey so thank you for sharing her story, I am sure it will help others in future and hopefully one day we will find a cure for this horrible cancer. I know I will be in your situation soon and I will underst...
by Dee123
Fri Jun 28, 2019 11:55 pm
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 77
Views: 95370

Re: My mum - Stage 4 PC with liver mets

Hi Janine, Sorry to hear your mum is not feeling well at the moment. Hopefully the hospice will sort out her sickness medication soon. It takes a few different types to work out which one is best and once they have found it she should feel a lot better. Therapy is a good idea. There are times when m...
by Dee123
Fri Jun 28, 2019 5:56 pm
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 77
Views: 95370

Re: My mum - Stage 4 PC with liver mets

Thanks for your message Janine, how is your mum doing? My mum started treatment last week but this week had a sudden onset of breathlessness. She could only walk a few steps before stopping to catch her breath. So we called the hospital and she had a blood test and her haemoglobin levels had dropped...
by Dee123
Sat Jun 15, 2019 8:45 am
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 77
Views: 95370

Re: My mum - Stage 4 PC with liver mets

My mum hasn't started her second-line chemo yet because she was taken into hospital with sepsis (symptoms were fever, increased heart rate, very spaced out/confused and dizzy) but we caught it early and the hospital gave her IV antibiotics and fluids. She also had another CT scan this week and there...
by Dee123
Fri Jun 14, 2019 6:52 am
Forum: Family, friends and carers
Topic: Should I get a CT?
Replies: 2
Views: 5084

Re: Should I get a CT?

Hi rufusthedog, Sorry to hear about your mum. My mum (age 67) is coming to the end of her life now with pancreatic cancer and she has told me (age 32) to ask for regular CT scans each year even if I have no symptoms. I know that is a bit extreme, but my opinion is you should go for your one to put y...
by Dee123
Sun Jun 02, 2019 10:35 pm
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 77
Views: 95370

Re: My mum - Stage 4 PC with liver mets

My mum was meant to start chemo again but started having dark urine and pale stools and then her skin and eyes turned yellow and she couldn't hold down any food or drink. She suddenly developed jaundice. It was so quick over a few days and she was rushed to hospital. Watch out for jaundice everyone!...
by Dee123
Thu May 16, 2019 9:08 am
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 105
Views: 93329

Re: This cruel disease

I am so sorry to hear this news. Kerry was so strong, brave and determined. My family regularly checked for updates and her story gave us hope. This cancer is absolutely devastating and I hope they will find a cure for it one day. My thoughts are with you and your family xx
by Dee123
Mon May 13, 2019 10:09 pm
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 77
Views: 95370

Re: My mum - Stage 4 PC with liver mets

Just a quick update. My mum last had chemo on 17th January and since then, although her lymph nodes had increased in size slightly, the cancer was stable. So she was given a break from chemo. Throughout this break she had pressure/pain in her abdomen/under her ribs so she wasn't symptom free but it ...
by Dee123
Wed Feb 20, 2019 7:54 pm
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 77
Views: 95370

Re: My mum - Stage 4 PC with liver mets

Hi Janine, that is great news! Gemcitabine and Abraxane seems to work really well in the cases that I have seen. It must be such a relief for you both. Hopefully the next batch will help even more! Xx
by Dee123
Tue Feb 19, 2019 8:19 pm
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 77
Views: 95370

Re: My mum - Stage 4 PC with liver mets

Hi Janine, how did the results go?

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