Pancreatic Cancer UK

Hi Theresa We lost Kerry on 4th May. She was out shopping with her Mum, came home exhausted and fed up and told me she'd had enough of the struggle. She died nine days later. It was a mercifully quick deterioration and she was only in the hospice for just over 36 hours. The bulk of her last few days...

Thank you to everybody for the kind words and wishes. I read them all and pass them on. It's 4 weeks since any treatment, and what a transformation. It's incredible and not what we expected. Kerry got her appetite for food and just as importantly, her appetite for being active back within the first ...

So, here I am, writing one of messages that I knew I would have to write sooner or later. The Folfirinox is not making any difference. I had already worked that out and so had Kerry. She has lost so much weight since January. Whereas with the Gemcitabine she was able to carry on as normal, she has b...

Dandygal76 wrote: > Hi Keith - I have accidentally caught up on your thread when researching a > complaint I have re my fathers treatment privately > (Removed - moderator). I just wanted to say that our GP got dad's Ca-19 markers for > us. We were close to our GP but it is available outside of the h...

Hi All Kerry is doing OK overall I think. The side effects are not as harsh as the first two rounds, although she now experiences neuropathy for the first couple of days after a dose and has to avoid the cold like the plague. We have bought numerous things to keep her wrapped up warm and safe. She d...

Nurse Jeni and the Nurses Thank you so much for the kindness you have shown to me and all of the other patients and their families and friends. I love this friendly little forum so much. I pass on every little bit of encouragement and every good wish from everybody here. We've had round 3 and finger...

Before I mention my Daughter, Kerry, let me just say that I am still in shock about Erika. I had assumed (as I'm sure others had) that the Nanoknife treatment would give her an appreciable amount of time to carry on fighting. Although, I did see her post about Ascites, and that did set alarm bells r...

This is awful news I have been looking out for her posts and I was wondering where she had got to. I took strength from her messages of good luck and passed every single one of them on without fail. I never had the privilege of meeting her, but I saw her as a wonderful inspiration and a positive and...

Hi Ozoda I can't tell you what to do as this type of decision is so very personal and different to each and every individual and their families. My Daughter was 34 when she was diagnosed as stage IV in March 2018. She had metastases to her liver and lymph nodes. She was put on Gemcitabine and Abraxa...

Hi Theresa Good news about your scan results! You seem to be taking a similar road to Kerry in terms of responding to treatment. She also had an essentially immediate positive response that was far better than the "no significant growth" that we were told to hope for. By the time she had completed 9...

Erika, I thank you so much for your support and determination, despite your own battles with this awful disease. I really hope that you're recovering from your operation and that the ascites isn't making life too difficult. My Father lived with ascites for almost 4 years. He used to joke about havin...

Hi Finchy Don't give up. Some may think that's easy for me to say (nobody on this forum to be clear) as I don't have Pancreatic Cancer. But my Daughter does, and everything that she suffers, we suffer with her in the only way that we can. She is stage IV with metastases to her liver. She went from a...

Hi Erika It's good to hear from you. I was wondering how you were getting on. Our Oncologist told us that the Nano knife treatment was entirely inappropriate for a cancer like Kerry's. I have asked around and it seems to be the staging that drives that opinion in this country. Apparently the fact th...

Chin up Theresa Kerry has had at least two scan results given over the phone to her, so it can be done. Perhaps it's a local policy for the hospital that you attend. If it is, it's an incredibly insensitive and unkind thing to do to make you wait yet another two weeks. It's not as if you're waiting ...

Good luck tomorrow Theresa. Our Oncologist has always told Kerry that if she is feeling well and essentially leading a normal life then that is a good sign regarding the activity levels of the cancer. That has proven to be the case every time for us thus far. Eating well and gaining weight are both ...