Search found 97 matches

by PCUK Nurse Rachel R
Thu Mar 25, 2021 10:53 am
Forum: Family, friends and carers
Topic: Looking for some clarity on my aunt's diagnosis
Replies: 2
Views: 372

Re: Looking for some clarity on my aunt's diagnosis

Hi mwall314, It's Rachel here, I'm one of the nurses that works on the support line at the charity. I am sorry to hear about your Aunt's diagnosis and of the difficulties getting her latest CT result. If you would find it helpful to chat to me, or one of the other nurses on the support line, or wish...
by PCUK Nurse Rachel R
Fri Feb 26, 2021 3:51 pm
Forum: General chat
Topic: Genetic testing
Replies: 2
Views: 378

Re: Genetic testing

Hi TannyD, It’s Rachel here one of the nurses. I am very sorry to hear that you have lost members of your Family as a result of pancreatic cancer and at such a young age too. I’m sure this must be an anxious time for you as you go to your appointment. Well done on organising this, it is a positive t...
by PCUK Nurse Rachel R
Mon Feb 08, 2021 3:47 am
Forum: Ask the nurse
Topic: Confused about diagnosis
Replies: 4
Views: 1827

Re: Confused about diagnosis

Hi Helenm, It's Rachel here, one of the nurses. Thanks so much for posting an update. I am very sorry that the biopsy did not bring good news. Goodness, you have been through so much. Please accept my condolences for the loss of your Father-in-Law also. You sound an amazing support to Dad. You sound...
by PCUK Nurse Rachel R
Mon Jan 25, 2021 4:18 pm
Forum: General chat
Topic: tell us your experiences of diagnsis of pancreatic cancer
Replies: 17
Views: 84127

Re: tell us your experiences of diagnsis of pancreatic cancer

Hi homefield, It's Rachel here, one of the nurses at the charity. Thanks for your post and for telling us some of your experiences following your diagnosis of pancreatic cancer. I imagine the decision to stop treatment was a very difficult one, although it sounds in many ways you had no alternative....
by PCUK Nurse Rachel R
Tue Dec 22, 2020 11:18 am
Forum: Advanced pancreatic cancer
Topic: NanoKnife for stage IV inoperable?
Replies: 4
Views: 1553

Re: NanoKnife for stage IV inoperable?

Hi Vasil, It's Rachel here again. Thanks for your questions. I'm sure some people will offer their thoughts here soon. In the mean time though if you did wish to contact us on support line we would more than happy to discuss these things with you. Best wishes, Rachel Rachel Richardson Pancreatic Can...
by PCUK Nurse Rachel R
Tue Dec 22, 2020 11:15 am
Forum: Advanced pancreatic cancer
Topic: CA 19-9 and treatment
Replies: 1
Views: 835

Re: CA 19-9 and treatment

Hi Vasil, It's Rachel here, one of the nurses. No need to apologise for your posts. In terms of the Ca19-9 level, it's important to remember that this is just one clue so to speak when assessing a persons' response to treatment. Usually an Oncologist will base response predominantly on a CT scan res...
by PCUK Nurse Rachel R
Tue Nov 24, 2020 2:32 pm
Forum: Family, friends and carers
Topic: Roses?
Replies: 1
Views: 657

Re: Roses?

Hi Celeste, It's Rachel here, one of the nurses. I'm glad to hear your Husband is back home. There could be a few things this may be linked to. It might be easier for you to give us a call or send us an email then we can talk through these? I appreciate though too that you are wanting to hear from t...
by PCUK Nurse Rachel R
Wed Nov 18, 2020 12:07 pm
Forum: Family, friends and carers
Topic: Hello - first post
Replies: 8
Views: 1465

Re: Hello - first post

Hello Essee11, It's Rachel here, one of the support line nurses. Welcome to the forum and thanks for posting about Dad. I'm so sorry to hear of Dad's diagnosis, I can completely appreciate why you feel so upset and angry. I agree that now should be a time that is special for Mum and Dad considering ...
by PCUK Nurse Rachel R
Wed Nov 18, 2020 11:51 am
Forum: Family, friends and carers
Topic: Gemcap and side effects
Replies: 1
Views: 651

Re: Gemcap and side effects

Hi Jess, It's Rachel here, one of the nurses from the support line. Experiences of side effects tends to be quite specific to each individual, however people often tell us that they begin to experience side effects once their 'take home' medications stop. So this may fit with what your Husband is ex...
by PCUK Nurse Rachel R
Thu Nov 05, 2020 2:09 pm
Forum: Treatment & side effects
Topic: Side effects Folfirinox vs Abraxane/Taxane/Gemcitabine
Replies: 2
Views: 758

Re: Side effects Folfirinox vs Abraxane/Taxane/Gemcitabine

Hi PKSwed, It's Rachel here one of the Nurses at the charity. I am sorry to hear of your Father's diagnosis and that his pancreatic cancer has progressed despite having Folfirinox. I imagine this is a very hard time for you all. You will be especially worried if Dad is not the type to complain about...
by PCUK Nurse Rachel R
Mon Nov 02, 2020 2:30 pm
Forum: Treatment & side effects
Topic: Folfirinox protocol - 12 or more
Replies: 1
Views: 722

Re: Folfirinox protocol - 12 or more

Hi Vasil, It's Rachel here, one of the nurses. Generally speaking yes that is correct, however there are some exceptions. It's really about each individual case; taking into consideration how an individual person responds to treatment, how they tolerate treatment and what their wishes are. We'd be m...
by PCUK Nurse Rachel R
Sat Oct 31, 2020 12:03 am
Forum: Ask the nurse
Topic: I don’t know what to do
Replies: 4
Views: 1645

Re: I don’t know what to do

Hi JustMe1985, It's Rachel here, one of the Nurses. I'm very sorry to hear that you are going through such a difficult time at the moment. As Borobi suggests please do give us a call or email us directly if you would like to discuss things in more detail, we'd be more than happy to try and help offe...
by PCUK Nurse Rachel R
Thu Oct 22, 2020 11:21 am
Forum: General chat
Topic: EPI but no known cause
Replies: 1
Views: 1480

Re: EPI but no known cause

Hi Richietosh, It's Rachel here, one of the nurses. That is great news that your investigations have not shown any cause for concern. I'm sure this came as a massive relief to you. PEI, or pancreatic exocrine insufficiency (or EPI!) can be associated with other conditions too, less common ones are c...
by PCUK Nurse Rachel R
Tue Oct 13, 2020 12:51 pm
Forum: Ask the nurse
Topic: Picc line
Replies: 3
Views: 4391

Re: Picc line

hi Jennypennyroll65, It's Rachel here, one of the nurses at the charity. Great to hear that you have had a very good response to Folfirinox. This could possibly be something like phlebitis, i.e. inflammation of the vein where the PICC was inserted. It would just be a case of keeping an eye on this, ...
by PCUK Nurse Rachel R
Tue Oct 06, 2020 3:26 pm
Forum: Ask the nurse
Topic: Pancreatic cancer stage
Replies: 7
Views: 4132

Re: Pancreatic cancer stage

Hi, It's Rachel here, one of the nurses. Thanks for your question Sangavasre and thanks for folks' replies. Standard practice is for Patients to have post surgical chemotherapy, also called adjuvant chemotherapy, after surgery to remove pancreatic cancer. This is because giving chemotherapy post ope...

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