Search found 93 matches

by PCUK Nurse Rachel R
Tue Dec 22, 2020 11:18 am
Forum: Advanced pancreatic cancer
Topic: NanoKnife for stage IV inoperable?
Replies: 4
Views: 860

Re: NanoKnife for stage IV inoperable?

Hi Vasil, It's Rachel here again. Thanks for your questions. I'm sure some people will offer their thoughts here soon. In the mean time though if you did wish to contact us on support line we would more than happy to discuss these things with you. Best wishes, Rachel Rachel Richardson Pancreatic Can...
by PCUK Nurse Rachel R
Tue Dec 22, 2020 11:15 am
Forum: Advanced pancreatic cancer
Topic: CA 19-9 and treatment
Replies: 1
Views: 462

Re: CA 19-9 and treatment

Hi Vasil, It's Rachel here, one of the nurses. No need to apologise for your posts. In terms of the Ca19-9 level, it's important to remember that this is just one clue so to speak when assessing a persons' response to treatment. Usually an Oncologist will base response predominantly on a CT scan res...
by PCUK Nurse Rachel R
Tue Nov 24, 2020 2:32 pm
Forum: Family, friends and carers
Topic: Roses?
Replies: 1
Views: 444

Re: Roses?

Hi Celeste, It's Rachel here, one of the nurses. I'm glad to hear your Husband is back home. There could be a few things this may be linked to. It might be easier for you to give us a call or send us an email then we can talk through these? I appreciate though too that you are wanting to hear from t...
by PCUK Nurse Rachel R
Wed Nov 18, 2020 12:07 pm
Forum: Family, friends and carers
Topic: Hello - first post
Replies: 8
Views: 996

Re: Hello - first post

Hello Essee11, It's Rachel here, one of the support line nurses. Welcome to the forum and thanks for posting about Dad. I'm so sorry to hear of Dad's diagnosis, I can completely appreciate why you feel so upset and angry. I agree that now should be a time that is special for Mum and Dad considering ...
by PCUK Nurse Rachel R
Wed Nov 18, 2020 11:51 am
Forum: Family, friends and carers
Topic: Gemcap and side effects
Replies: 1
Views: 436

Re: Gemcap and side effects

Hi Jess, It's Rachel here, one of the nurses from the support line. Experiences of side effects tends to be quite specific to each individual, however people often tell us that they begin to experience side effects once their 'take home' medications stop. So this may fit with what your Husband is ex...
by PCUK Nurse Rachel R
Thu Nov 05, 2020 2:09 pm
Forum: Treatment & side effects
Topic: Side effects Folfirinox vs Abraxane/Taxane/Gemcitabine
Replies: 2
Views: 437

Re: Side effects Folfirinox vs Abraxane/Taxane/Gemcitabine

Hi PKSwed, It's Rachel here one of the Nurses at the charity. I am sorry to hear of your Father's diagnosis and that his pancreatic cancer has progressed despite having Folfirinox. I imagine this is a very hard time for you all. You will be especially worried if Dad is not the type to complain about...
by PCUK Nurse Rachel R
Mon Nov 02, 2020 2:30 pm
Forum: Treatment & side effects
Topic: Folfirinox protocol - 12 or more
Replies: 1
Views: 349

Re: Folfirinox protocol - 12 or more

Hi Vasil, It's Rachel here, one of the nurses. Generally speaking yes that is correct, however there are some exceptions. It's really about each individual case; taking into consideration how an individual person responds to treatment, how they tolerate treatment and what their wishes are. We'd be m...
by PCUK Nurse Rachel R
Sat Oct 31, 2020 12:03 am
Forum: Ask the nurse
Topic: I don’t know what to do
Replies: 4
Views: 1402

Re: I don’t know what to do

Hi JustMe1985, It's Rachel here, one of the Nurses. I'm very sorry to hear that you are going through such a difficult time at the moment. As Borobi suggests please do give us a call or email us directly if you would like to discuss things in more detail, we'd be more than happy to try and help offe...
by PCUK Nurse Rachel R
Thu Oct 22, 2020 11:21 am
Forum: General chat
Topic: EPI but no known cause
Replies: 1
Views: 1284

Re: EPI but no known cause

Hi Richietosh, It's Rachel here, one of the nurses. That is great news that your investigations have not shown any cause for concern. I'm sure this came as a massive relief to you. PEI, or pancreatic exocrine insufficiency (or EPI!) can be associated with other conditions too, less common ones are c...
by PCUK Nurse Rachel R
Tue Oct 13, 2020 12:51 pm
Forum: Ask the nurse
Topic: Picc line
Replies: 3
Views: 4208

Re: Picc line

hi Jennypennyroll65, It's Rachel here, one of the nurses at the charity. Great to hear that you have had a very good response to Folfirinox. This could possibly be something like phlebitis, i.e. inflammation of the vein where the PICC was inserted. It would just be a case of keeping an eye on this, ...
by PCUK Nurse Rachel R
Tue Oct 06, 2020 3:26 pm
Forum: Ask the nurse
Topic: Pancreatic cancer stage
Replies: 7
Views: 3571

Re: Pancreatic cancer stage

Hi, It's Rachel here, one of the nurses. Thanks for your question Sangavasre and thanks for folks' replies. Standard practice is for Patients to have post surgical chemotherapy, also called adjuvant chemotherapy, after surgery to remove pancreatic cancer. This is because giving chemotherapy post ope...
by PCUK Nurse Rachel R
Wed Sep 23, 2020 11:52 am
Forum: Patient Experience Forum
Topic: Side effects of Folfirinox
Replies: 3
Views: 2518

Re: Side effects of Folfirinox

Hi Grace15, It's Rachel here, one of the nurses at the charity. I am sorry to hear that Mum has really been struggling since her first chemotherapy treatment. Thanks Clare for your helpful reply. These side effects are incredibly common with Folfirinox. I wonder whether you might consider giving us ...
by PCUK Nurse Rachel R
Thu Sep 03, 2020 3:19 pm
Forum: General chat
Topic: Stages
Replies: 2
Views: 2520

Re: Stages

Hi Sangavasre, It's Rachel here, one of the Nurses from the support line at the charity. It is good to hear that you were able to undergo Whipple surgery about a year ago. I hope you have recovered well despite the complications you experienced. I would imagine that as your post-operative staging st...
by PCUK Nurse Rachel R
Mon Aug 17, 2020 4:12 pm
Forum: Family, friends and carers
Topic: Frustrations about decisions
Replies: 3
Views: 3065

Re: Frustrations about decisions

Hi Debbiergn, It's Rachel here, one of the nurses. A big welcome to the forum although I know it's not a place you would hope to be. I'm really sorry to hear about your Dad's diagnosis and also about the difficulties and delays you've experienced. I can only imagine how hard things are currently for...
by PCUK Nurse Rachel R
Mon Aug 17, 2020 3:38 pm
Forum: General chat
Topic: Pancreatic Cancer and Whipple Procedures?
Replies: 2
Views: 2200

Re: Pancreatic Cancer and Whipple Procedures?

Hi Rht123, Welcome to the forum and thanks for your post. I'm Rachel, one of the nurses at the charity. I am sorry to hear about your Dad, I can imagine you will be very worried and anxious about the days ahead. I hope Dad's next scan goes smoothly and that an appointment is able to be organised soo...

Go to advanced search