Search found 86 matches

by PCUK Nurse Rachel R
Thu Oct 22, 2020 11:21 am
Forum: General chat
Topic: EPI but no known cause
Replies: 1
Views: 1011

Re: EPI but no known cause

Hi Richietosh, It's Rachel here, one of the nurses. That is great news that your investigations have not shown any cause for concern. I'm sure this came as a massive relief to you. PEI, or pancreatic exocrine insufficiency (or EPI!) can be associated with other conditions too, less common ones are c...
by PCUK Nurse Rachel R
Mon Oct 19, 2020 11:47 am
Forum: Ask the nurse
Topic: I don’t know what to do
Replies: 4
Views: 902

Re: I don’t know what to do

Hi JustMe1985, It's Rachel here, one of the Nurses. I'm very sorry to hear that you are going through such a difficult time at the moment. As Borobi suggests please do give us a call or email us directly if you would like to discuss things in more detail, we'd be more than happy to try and help offe...
by PCUK Nurse Rachel R
Tue Oct 13, 2020 12:51 pm
Forum: Ask the nurse
Topic: Picc line
Replies: 3
Views: 3877

Re: Picc line

hi Jennypennyroll65, It's Rachel here, one of the nurses at the charity. Great to hear that you have had a very good response to Folfirinox. This could possibly be something like phlebitis, i.e. inflammation of the vein where the PICC was inserted. It would just be a case of keeping an eye on this, ...
by PCUK Nurse Rachel R
Tue Oct 06, 2020 3:26 pm
Forum: Ask the nurse
Topic: Pancreatic cancer stage
Replies: 4
Views: 2688

Re: Pancreatic cancer stage

Hi, It's Rachel here, one of the nurses. Thanks for your question Sangavasre and thanks for folks' replies. Standard practice is for Patients to have post surgical chemotherapy, also called adjuvant chemotherapy, after surgery to remove pancreatic cancer. This is because giving chemotherapy post ope...
by PCUK Nurse Rachel R
Wed Sep 23, 2020 11:52 am
Forum: Patient Experience Forum
Topic: Side effects of Folfirinox
Replies: 3
Views: 2152

Re: Side effects of Folfirinox

Hi Grace15, It's Rachel here, one of the nurses at the charity. I am sorry to hear that Mum has really been struggling since her first chemotherapy treatment. Thanks Clare for your helpful reply. These side effects are incredibly common with Folfirinox. I wonder whether you might consider giving us ...
by PCUK Nurse Rachel R
Thu Sep 03, 2020 3:19 pm
Forum: General chat
Topic: Stages
Replies: 2
Views: 2182

Re: Stages

Hi Sangavasre, It's Rachel here, one of the Nurses from the support line at the charity. It is good to hear that you were able to undergo Whipple surgery about a year ago. I hope you have recovered well despite the complications you experienced. I would imagine that as your post-operative staging st...
by PCUK Nurse Rachel R
Mon Aug 17, 2020 4:12 pm
Forum: Family, friends and carers
Topic: Frustrations about decisions
Replies: 3
Views: 2778

Re: Frustrations about decisions

Hi Debbiergn, It's Rachel here, one of the nurses. A big welcome to the forum although I know it's not a place you would hope to be. I'm really sorry to hear about your Dad's diagnosis and also about the difficulties and delays you've experienced. I can only imagine how hard things are currently for...
by PCUK Nurse Rachel R
Mon Aug 17, 2020 3:38 pm
Forum: General chat
Topic: Pancreatic Cancer and Whipple Procedures?
Replies: 2
Views: 2000

Re: Pancreatic Cancer and Whipple Procedures?

Hi Rht123, Welcome to the forum and thanks for your post. I'm Rachel, one of the nurses at the charity. I am sorry to hear about your Dad, I can imagine you will be very worried and anxious about the days ahead. I hope Dad's next scan goes smoothly and that an appointment is able to be organised soo...
by PCUK Nurse Rachel R
Thu Aug 13, 2020 3:24 pm
Forum: Family, friends and carers
Topic: Total pancreatectomy
Replies: 1
Views: 1923

Re: Total pancreatectomy

Hi Jess, It's Rachel here one of the nurses. Welcome to the forum and thanks for posting. I am sorry to hear of your Husband's recent diagnosis. It's good news to hear that he is able to have surgery. I'm sure though you will be incredibly anxious about what lies ahead. Here at the charity we have a...
by PCUK Nurse Rachel R
Thu Aug 06, 2020 2:18 pm
Forum: Treatment & side effects
Topic: Pancreatitis 3 Years After Whipple?
Replies: 6
Views: 3279

Re: Pancreatitis 3 Years After Whipple?

Hi concerneddil, It's Rachel here, one of the nurses from the support line. I am sorry to hear that your MIL's pancreatic cancer has returned. I'm sure you must all be devastated. I'm glad to hear she's having further investigations and that a treatment plan will be agreed. Hopefully your MIL can ac...
by PCUK Nurse Rachel R
Thu Aug 06, 2020 2:12 pm
Forum: Patient Experience Forum
Topic: Newbie - Whipples upcoming, inconclusive biopsies
Replies: 8
Views: 3014

Re: Newbie - Whipples upcoming, inconclusive biopsies

Hi angelina27, It's Rachel here, one of the nurses at the charity. Thanks so much for your post and for being brave putting yourself out there. I'm sure people will comment to let you know of their experiences. I just wanted to say hi and welcome you here. If you would like a chat to us on the suppo...
by PCUK Nurse Rachel R
Fri May 01, 2020 1:03 pm
Forum: Patient Experience Forum
Topic: Recently diagnosed and concerned about surgery and chemotherapy
Replies: 7
Views: 6022

Re: Recently diagnosed and concerned about surgery and chemotherapy

Hi SandraW, Thanks so much for sharing yours and your Husbands' experience, I am sorry for your loss. I'm sure reading your post will be really helpful for folk. I'm sure you must still miss your Husband so much. Its sounds like you have so many special memories and made sure to make the most of his...
by PCUK Nurse Rachel R
Thu Apr 09, 2020 12:42 pm
Forum: Family, friends and carers
Topic: Newbie
Replies: 3
Views: 4311

Re: Newbie

Hi Pablo88 I know the waiting must be awful for you all, I hope you are further forward after your call later today. Please do contact us, it will be a pleasure to chat on the phone or over email. I’m afraid that our service is closed on Friday as it’s a bank holiday. We’re here today until 4pm on t...
by PCUK Nurse Rachel R
Fri Apr 03, 2020 3:11 pm
Forum: Family, friends and carers
Topic: Newbie
Replies: 3
Views: 4311

Re: Newbie

Hi Pablo88, It’s Rachel here one of the nurses from the charity. A big warm welcome to the forum, we appreciate it’s not where folk would want to me but I’m sure people on here will make you feel very welcome and support you. I am sorry to hear of what has been happening with Mum over recent weeks. ...
by PCUK Nurse Rachel R
Fri Mar 27, 2020 2:29 pm
Forum: Patient Experience Forum
Topic: Newbie
Replies: 8
Views: 4402

Re: Newbie

Hi dave b, Thanks for your post and providing a little more information. The plan that you have been given makes much more sense if you have been told that you have a NET, we did not know this was the case. I wonder if you’re aware of another charity called Neuroendocrine Cancer UK? Here at PCUK our...

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