Search found 75 matches

by PCUK Nurse Rachel R
Fri May 01, 2020 1:03 pm
Forum: Patient Experience Forum
Topic: Recently diagnosed and concerned about surgery and chemotherapy
Replies: 7
Views: 2502

Re: Recently diagnosed and concerned about surgery and chemotherapy

Hi SandraW, Thanks so much for sharing yours and your Husbands' experience, I am sorry for your loss. I'm sure reading your post will be really helpful for folk. I'm sure you must still miss your Husband so much. Its sounds like you have so many special memories and made sure to make the most of his...
by PCUK Nurse Rachel R
Thu Apr 09, 2020 12:42 pm
Forum: Family, friends and carers
Topic: Newbie
Replies: 3
Views: 2070

Re: Newbie

Hi Pablo88 I know the waiting must be awful for you all, I hope you are further forward after your call later today. Please do contact us, it will be a pleasure to chat on the phone or over email. I’m afraid that our service is closed on Friday as it’s a bank holiday. We’re here today until 4pm on t...
by PCUK Nurse Rachel R
Fri Apr 03, 2020 3:11 pm
Forum: Family, friends and carers
Topic: Newbie
Replies: 3
Views: 2070

Re: Newbie

Hi Pablo88, It’s Rachel here one of the nurses from the charity. A big warm welcome to the forum, we appreciate it’s not where folk would want to me but I’m sure people on here will make you feel very welcome and support you. I am sorry to hear of what has been happening with Mum over recent weeks. ...
by PCUK Nurse Rachel R
Fri Mar 27, 2020 2:29 pm
Forum: Patient Experience Forum
Topic: Newbie
Replies: 8
Views: 1938

Re: Newbie

Hi dave b, Thanks for your post and providing a little more information. The plan that you have been given makes much more sense if you have been told that you have a NET, we did not know this was the case. I wonder if you’re aware of another charity called Neuroendocrine Cancer UK? Here at PCUK our...
by PCUK Nurse Rachel R
Thu Mar 26, 2020 12:50 pm
Forum: Patient Experience Forum
Topic: Newbie
Replies: 8
Views: 1938

Re: Newbie

Hi dave b I’m glad to hear you’ve discussed things with your Consultant and have answers to the majority of your questions. Can I ask have you had a biopsy of the tumour taken? I see you mention in an earlier post that the tumour is malignant but I just wanted to clarify that this is correct and tha...
by PCUK Nurse Rachel R
Mon Mar 23, 2020 12:34 pm
Forum: Patient Experience Forum
Topic: Public v private information
Replies: 2
Views: 1288

Re: Public v private information

Hi dave b, I do appreciate where you’re coming from in wanting to find out answers to questions. We recognise that some people are not comfortable in sharing more than a certain level of information for public view, which is completely understandable and we have to maintain people’s privacy. Sometim...
by PCUK Nurse Rachel R
Fri Feb 21, 2020 3:13 pm
Forum: Patient Experience Forum
Topic: Pale stool/low bile production
Replies: 1
Views: 1857

Re: Pale stool/low bile production

Hi JohnDoe60, It's Rachel here, one of the nurses. I am sorry to hear that Mom is still having ongoing issues with her stools and is struggling in maintaining, or gaining weight. It's great to hear Mom's scan was all clear. I'm sure this was a big relief. I wonder whether you might consider contacti...
by PCUK Nurse Rachel R
Mon Feb 03, 2020 4:24 pm
Forum: Family, friends and carers
Topic: Hiccups
Replies: 4
Views: 7107

Re: Hiccups

Hi Annieb, I'm Rachel, one of the specialist pancreatic nurses. I am sorry to hear that things are so tough at the moment for your Husband and you. Annabelle has given you some great advice, especially about trying to contact a specialist nurse. In terms of the hiccups, it would be good to try and e...
by PCUK Nurse Rachel R
Mon Feb 03, 2020 4:05 pm
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 85
Views: 194448

Re: My mum - Stage 4 PC with liver mets

Hi Dee123, Very sorry to hear the news of your lovely Mum's passing. She sounds like such an incredible Mum and you have been so blessed to have her in your life. I'm sure that she too felt remarkably fortunate to have a Daughter that has loved and cared for her as you have over the last 18 months (...
by PCUK Nurse Rachel R
Fri Jan 03, 2020 3:20 pm
Forum: Ask the nurse
Topic: Creon
Replies: 9
Views: 16404

Re: Creon

Hi there hiljohn, Rachel here - one of the nurses. The recommendation is to take Creon with water but if this is the only way that you're managing it then I would think taking it with a small amount of milk would be fine. I see you mention its cold milk as heat will deactivate the enzymes. If you wi...
by PCUK Nurse Rachel R
Tue Dec 24, 2019 9:50 am
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 85
Views: 194448

Re: My mum - Stage 4 PC with liver mets

Hi Dee123, I am sorry too to hear that Mum's chemotherapy has been stopped. I know these won't be easy days. I really hope Mum is comfortable and getting the support and care she needs. You know where we are if you'd like to chat or email. We're closed the bank holidays but open 10am -2pm the other ...
by PCUK Nurse Rachel R
Wed Nov 27, 2019 3:57 pm
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 85
Views: 194448

Re: My mum - Stage 4 PC with liver mets

Hi Dee123, Sorry to hear this news about Mum, I hope now that she has a had a few days worth of antibiotics that she is feeling slightly better and that there is a plan about the replacements stents. You know where we are if you's like to chat, or if there's anything we can help with. Kind wishes to...
by PCUK Nurse Rachel R
Wed Nov 27, 2019 3:53 pm
Forum: Patient Experience Forum
Topic: Newbie.
Replies: 7
Views: 16064

Re: Newbie.

Hi Pete, Welcome too to you on behalf of the nursing team here. Glad you have found this forum and that you are finding it beneficial. We are here too for anything that you may like to discuss, whether it's questions about chemotherapy or difficult to manage certain symptoms, or even if you just nee...
by PCUK Nurse Rachel R
Thu Oct 24, 2019 2:13 pm
Forum: Ask the nurse
Topic: Creon
Replies: 9
Views: 16404

Re: Creon

Hi StPancreas, It's Rachel here, one of the other nurses. Yes we would usually encourage folk to take the PPI medication regularly, most people tend to take this as a once daily medication or for some that continue to struggle with absorption it may be appropriate to divide this into 2 doses, this w...
by PCUK Nurse Rachel R
Mon Sep 30, 2019 2:46 pm
Forum: Family, friends and carers
Topic: Chemo for the older patient
Replies: 12
Views: 19010

Re: Chemo for the older patient

Hi StPancreas, It's Rachel here, one of the nurses. I'm really pleased to see that you've had a positive conversation and hopefully now will see movement. Well done on providing the time line - I think this is a really powerful way to get the message across. You know where we are if you need to chat...

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