Search found 8 matches

by HelenC
Sat May 13, 2017 5:28 am
Forum: Patient Experience Forum
Topic: IBS?
Replies: 11
Views: 14896

Re: IBS?

I'm going to have Folfirinox. I really hope it works because this thing is growing so fast it's terrifying me. The dietician suggested increasing my Creon. I'd stopped a lot of the cramping and diarrhoea on Tuesday/Wednesday, so I'm not sure it'll prove anything. However the increased size of the tu...
by HelenC
Thu May 11, 2017 6:19 pm
Forum: Patient Experience Forum
Topic: IBS?
Replies: 11
Views: 14896

Re: IBS?

Reeling slightly. The tumour was 3.5cm at my last CT scan in March. It's now 6.3cm. I also have 4 lesions in the liver. I'd no idea it would be so aggressive, and this news knocks the nanoknife idea on the head.

I'm being fitted with a central line next Friday and starting chemo a week later.
by HelenC
Wed May 10, 2017 2:01 pm
Forum: Patient Experience Forum
Topic: IBS?
Replies: 11
Views: 14896

Re: IBS?

Thanks again all who've replied. Rachel, I've a dietician who I see at my oncology appointments, so will speak to him about it tomorrow, as well as to the nurse specialist. In a way I'm glad it's a 'normal' symptom rather than a whole new problem!
by HelenC
Wed May 10, 2017 1:26 am
Forum: Patient Experience Forum
Topic: IBS?
Replies: 11
Views: 14896

Re: IBS?

Thanks for the replies. I'm on Creon and lansoprazole. I'm back to the oncologist on Thursday and should see a nurse then so will pick his or her brains - good idea.
by HelenC
Tue May 09, 2017 10:27 am
Forum: Patient Experience Forum
Topic: IBS?
Replies: 11
Views: 14896

IBS?

Has anyone else had really grim gastric symptoms with PC? I've had bloating for a while, for the last week it's been joined by diarrhoea and nasty gut spasms, which are quite painful. The bloating has also worsened. There are various over the counter options but I'm on so many drugs I don't know wha...
by HelenC
Tue May 09, 2017 10:27 am
Forum: Patient Experience Forum
Topic: IBS?
Replies: 0
Views: 7540

IBS?

Has anyone else had really grim gastric symptoms with PC? I've had bloating for a while, for the last week it's been joined by diarrhoea and nasty gut spasms, which are quite painful. The bloating has also worsened. There are various over the counter options but I'm on so many drugs I don't know wha...
by HelenC
Fri Apr 14, 2017 8:51 pm
Forum: Patient Experience Forum
Topic: Newly diagnosed
Replies: 9
Views: 12586

Re: Newly diagnosed

Thanks everyone for the advice. I'm still just feeling like it's a horrible nightmare that I'm bound to wake up from. Can't believe how much my life has changed in 2 months.
by HelenC
Wed Apr 12, 2017 8:39 am
Forum: Patient Experience Forum
Topic: Newly diagnosed
Replies: 9
Views: 12586

Newly diagnosed

I'm a 51 year old woman, in pretty good health except that I was diagnosed with PC on 1st March. I've a single tumour which (when last scanned) hadn't spread. On 6th March the surgeons attempted a Whipples but were unable to get the tumour out due to location of key blood vessels; they bypassed my b...

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