Search found 11 matches

by an_optom
Mon Dec 12, 2016 8:37 pm
Forum: Advanced pancreatic cancer
Topic: My beautiful Mum
Replies: 7
Views: 17855

Re: My beautiful Mum

Hello

I'm so sorry to hear this. Keep strong and have courage. We are here to support you.

AU
by an_optom
Tue Dec 06, 2016 7:20 pm
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 210876

Re: Mum of 42 recently diagnosed inoperable PC

Absolutely fantastic. Great job Ruth. Can't imagine a better source of inspiration than you. Makes me want to carry on fighting for mum.

Big smiley face!
by an_optom
Tue Dec 06, 2016 7:16 pm
Forum: Treatment & side effects
Topic: Abraxane side effects
Replies: 8
Views: 20599

Re: Abraxane side effects

Hey W&M. Thanks for the info. Looking into alternate therapies, it's quite interesting reading. Found lots of stuff on hyperthermia, must be some sound scientific reasoning as have found clinical trials in UK trying these. Immunotherapy seems plausible but not so effective, again as ruthus has said ...
by an_optom
Sat Dec 03, 2016 9:45 pm
Forum: Treatment & side effects
Topic: Abraxane side effects
Replies: 8
Views: 20599

Re: Abraxane side effects

Hello guys. Thanks for the replies. Well I've been doing loads of research, and came up with some interesting alternate therapies. Anyone heard of hyperthermia? Immunotherapy? Chemoembolization? Your thoughts would be great.

Also anyone doing special diets.... Ie Gerson or Budwig?

Thanks
by an_optom
Fri Nov 25, 2016 6:09 pm
Forum: Treatment & side effects
Topic: Abraxane side effects
Replies: 8
Views: 20599

Re: Abraxane side effects

I will try to get some prices. Mum had lots of fluid in her lungs, which the NHS consultant saw but didn't bother acting on. Was seen the following day privately, had the procedure to remove 1.5ltr of fluid! And they gonna try two more days! What do I say?!
by an_optom
Thu Nov 24, 2016 5:03 pm
Forum: Treatment & side effects
Topic: Abraxane side effects
Replies: 8
Views: 20599

Abraxane side effects

Hello guys. Not willing to give up too easily, I'm trying to find out some more information on abraxane. Whats the cost privately if anyone knows? Also how are the side effects? Are they as bad as Florfirinox?

All the advice and information would be great.

AU
by an_optom
Tue Nov 22, 2016 7:11 pm
Forum: Family, friends and carers
Topic: Mums diagnosis of pancreatic cancer, some guidance please.
Replies: 13
Views: 12006

Re: Mums diagnosis of pancreatic cancer, some guidance pleas

Such beautiful words marmalade. If only I had the like to reply with. Nonetheless, I'm not going to lose easily. I'll make sure my family and my mother fights this thing tooth and nail. I'm going to try and follow some pointers dandygal mentioned and push for the best my mother can have and cope wit...
by an_optom
Tue Nov 22, 2016 5:24 pm
Forum: Family, friends and carers
Topic: Mums diagnosis of pancreatic cancer, some guidance please.
Replies: 13
Views: 12006

Re: Mums diagnosis of pancreatic cancer, some guidance pleas

Thanks for the kind words dandygal and jeni. We have had an initial meeting And it's not good. She's been given palliative care. Absolutely shattered.
by an_optom
Tue Nov 22, 2016 10:37 am
Forum: Family, friends and carers
Topic: Mums diagnosis of pancreatic cancer, some guidance please.
Replies: 13
Views: 12006

Re: Mums diagnosis of pancreatic cancer, some guidance pleas

Thanks for all the advice. Im eternally indebted. Cant sleep.... read your reply Dandygal 5 in morn.

Ill do some research on forms of treatments and get second opinions. We have an initial appointment today, will report back.

thanks once again
by an_optom
Mon Nov 21, 2016 10:47 pm
Forum: Family, friends and carers
Topic: Mums diagnosis of pancreatic cancer, some guidance please.
Replies: 13
Views: 12006

Re: Mums diagnosis of pancreatic cancer, some guidance pleas

Thanks for all the support. I feared as much, what other options do I have? I don't want to lose her.

She single handedly bought me up since my father's demise, and is my closest friend. My tears aren't stopping.
by an_optom
Mon Nov 21, 2016 8:46 pm
Forum: Family, friends and carers
Topic: Mums diagnosis of pancreatic cancer, some guidance please.
Replies: 13
Views: 12006

Mums diagnosis of pancreatic cancer, some guidance please.

Hello, this is my first post. I have been reading the experiences of fellow PC patients and family members and have found support just by doing this. My Mother was diagnosed 2 weeks ago, PC on the tail and some lung metastases. We have a couple of appointments with consultants and will find out what...

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