Search found 11 matches

by Kevin
Thu Nov 03, 2016 11:48 am
Forum: General chat
Topic: Immunotherapy for Pancreatic Cancer
Replies: 1
Views: 8001

Re: Immunotherapy for Pancreatic Cancer

Hi JED, thank you for sharing this webinar. Not only was it really informative regarding developments around immunotherapy but I also found that it gave a good insight into other sub topics relating to Pancreatic Cancer. The presenters explanation of how PC differs to other cancers was one of the be...
by Kevin
Mon Aug 22, 2016 10:16 pm
Forum: Advanced pancreatic cancer
Topic: Ascites
Replies: 216
Views: 122070

Re: Ascites

Hi Veema, I'm really sorry to hear of your husbands situation. I'm in a much more fortunate position in that my PC recurred locally but hadn't spread. I don't wish to give you false hope, but I can share my own experience with you. I had my whipple in May 2015. In Nov I started to notice distension ...
by Kevin
Sat Jul 09, 2016 3:38 pm
Forum: Patient Experience Forum
Topic: stage 4 long time survival without operation
Replies: 16
Views: 27538

Re: stage 4 long time survival without operation

Hi Patrigib. Thank you for the ‘heads up’ regarding Folfiri. I will speak to the chemo team about supplementary medication when I switch to it on Tuesday. I fully understand your husbands frustration with fatigue. It is the one thing that has severely impacted me since surgery. If you didn't know I ...
by Kevin
Thu Jul 07, 2016 4:48 pm
Forum: Patient Experience Forum
Topic: stage 4 long time survival without operation
Replies: 16
Views: 27538

Re: stage 4 long time survival without operation

Hi Patrigib. Thank you for sharing this with us. It gives real hope for those of us who are dealing with this awful disease. Sorry I can't answer your question directly as I'm not in the same situation. I'm very lucky. 20 years younger, had successful whipple in 2015, but local recurrence 11 months ...
by Kevin
Wed Jun 29, 2016 10:53 am
Forum: Treatment & side effects
Topic: Gemcitabine suggested...what to expect
Replies: 13
Views: 17594

Re: Gemcitabine suggested...what to expect

Hi Louise, I can only share my own personal experience of Gemcitabine and the most important message as others have said 'everyone is different and will react differently to the same chemo'. I was diagnosed with PC in April 2015 - aged 53 and pretty fit. I had whipple in May followed by 5 months (3 ...
by Kevin
Fri May 20, 2016 5:54 pm
Forum: Ask the Nurse Live Q&A – Clinical Trials
Topic: Welcome
Replies: 11
Views: 9030

Re: Welcome

Thank you Jeni, it is really useful to understand the position regarding PC and Nanoknife. Regards Kevin
by Kevin
Fri May 20, 2016 2:23 pm
Forum: Ask the Nurse Live Q&A – Clinical Trials
Topic: Welcome
Replies: 11
Views: 9030

Re: Welcome

Hi Jeni, Are you aware of any current trials in respect Nanoknife for pancreatic cancer. I understand that whilst it's been used for a while on other cancers, the evidence for its success on PC is still in its infancy. Hence I would be interested to understand where any evaluations / trials are bein...
by Kevin
Fri May 06, 2016 10:13 am
Forum: Treatment & side effects
Topic: Forums - Support and Shared Experience not medical advice
Replies: 4
Views: 11119

Forums - Support and Shared Experience not medical advice

I write this in support of the comments made by the PCUK Support Team on 29th April - Pancreatic Cancer UK Discussion Forum and Support Line Forum - regarding forum members posting 'medical advice'. http://forum.pancreaticcancer.org.uk/viewtopic.php?f=8&t=1758 I believe that these discussion boards ...
by Kevin
Sun Apr 03, 2016 3:46 pm
Forum: Treatment & side effects
Topic: Fatigue after Gemcitabine
Replies: 5
Views: 13106

Re: Fatigue after Gemcitabine

Thank you all for taking the time to reply to my post. I really appreciate it. Reading the experiences of others is very humbling and makes me even more grateful that I could have surgery. I’m sure there are many people out there who would gratefully put up with fatigue rather than their own prognos...
by Kevin
Fri Apr 01, 2016 8:29 pm
Forum: Treatment & side effects
Topic: White Blood Cell Count Low - advice for a newbie?
Replies: 9
Views: 15298

Re: White Blood Cell Count Low - advice for a newbie?

Hi, When I started my chemo I was told that it is not unusual for white cell count, especially nutrophils, to be affected whilst on chemo. Mine dropped significantly after my first session of Gemcitabine. I had to postpone /skip treatment the second week whilst they normalised again. I was then give...
by Kevin
Fri Apr 01, 2016 6:43 pm
Forum: Treatment & side effects
Topic: Fatigue after Gemcitabine
Replies: 5
Views: 13106

Fatigue after Gemcitabine

I would like to share my experience of adjuvant chemotherapy with Gemcitabine and hear about how it has affected other people following similar treatment. Specifically fatigue. Background: • 53 years old, fit and active prior to diagnosis. • Sudden onset of jaundice and diagnosed with PC end of Apri...

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