Search found 24 matches

by Helliemo
Mon Jan 02, 2017 12:49 am
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 176943

Re: Mum of 42 recently diagnosed inoperable PC

Yes, i didn't mention that SAMe is most notably used for depression in this country so there would be interactions. Fortunately for my grandma, she had only very recently begun a trial of an antidepressant and so managed to replace that with SAMe, it also meant she could wean off the urso acid aswel...
by Helliemo
Fri Dec 30, 2016 1:11 pm
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 176943

Re: Mum of 42 recently diagnosed inoperable PC

Hi Ruth, I haven't been on this forum for a long time but wanted to see how you were getting on as you were diagnosed the same time as my grandmother. Unfortunately she passed away in August because of liver Mets and poor liver function. But she was well until only two days before, so I am very grat...
by Helliemo
Wed May 11, 2016 2:25 pm
Forum: Patient Experience Forum
Topic: My Journey So Far
Replies: 215
Views: 122035

Re: My Journey So Far

Hi Mark,
My Grandmother had very similar symptoms and ended up having a stent fitted into the common bile duct. Her oncologist thinks it's scar tissue from the NanoKnife that caused the blockage. She is now feeling good again. Hopefully it will be the same for you.
by Helliemo
Thu Apr 21, 2016 11:29 am
Forum: Family, friends and carers
Topic: Thank you and our story... but we are not that far yet!
Replies: 433
Views: 142992

Re: Thank you and our story... but we are not that far yet!

You are like a whirlwind! Amazing! Your dad is so lucky to have you.
Lots of doctors have recommended a consultation with prof stebbings for immunotherapy advice.
Wish I could help you more xx
by Helliemo
Wed Apr 13, 2016 11:55 pm
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 176943

Re: Mum of 42 recently diagnosed inoperable PC

The mistletoe is given in a liquid form. We collected the prescription as we left the hospital and will return in 2months. My grandma takes 8dropsin themorning and 12 at night Monday to Friday. There is the option of doing injections yourself at home. It seems fantastic from what I've heard, I reall...
by Helliemo
Wed Apr 13, 2016 11:37 pm
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 176943

Re: Mum of 42 recently diagnosed inoperable PC

Hi MSH, I'm really only repeating claims from the doctors we've come into contact with. I was told that my grandma's tumour was the most likely cause for her indigestion and sudden onset of diabetes. Since nanoknife, her blood sugar reading have never been over 10 and she has halved her metformin do...
by Helliemo
Tue Apr 12, 2016 9:56 pm
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 176943

Re: Mum of 42 recently diagnosed inoperable PC

I took my grandma to the royal London hospital of integrated medicine today. She is now doing mistletoe therapy 5days a week. The doctor said that clinical trials have shown mistletoe to double survival in pancreatic cancer and improve life quality. Your doctor can refer you to the RLHIM hospital in...
by Helliemo
Sun Apr 10, 2016 10:28 pm
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 176943

Re: Mum of 42 recently diagnosed inoperable PC

You sound so healthy, Ruth. You'll beat this thing x
by Helliemo
Sun Apr 10, 2016 10:20 pm
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 176943

Re: Mum of 42 recently diagnosed inoperable PC

Amazing! My grandma takes those and more! I'm obsessed! We have an amazing oncologist who looks into all of these things too. Also going to London hospital of integrated medicine on Tuesday to try to find out about all complementary options as chemotherapy has been so dreadful for my gran. I'll let ...
by Helliemo
Sun Apr 10, 2016 9:53 am
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 176943

Re: Mum of 42 recently diagnosed inoperable PC

An oncologist told my grandma to drink a teaspoon of bicarbonate of soda dissolved in a glass of water 4 times a day. He showed me the research behind his suggestion and since doing this my grandma has had no indigestion problems. However, not sure if it's down to nanoknife or bicarb. She has also s...
by Helliemo
Sun Apr 10, 2016 9:48 am
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 176943

Re: Mum of 42 recently diagnosed inoperable PC

Hi Ruth, My grandma's tumour was inoperable and 3cm just before ablation. I wish I had arranged an earlier nanoknife appointment because by the time nanoknife went ahead, there were two tumours in her liver. Chemotherapy had done very little for my gran. But since nanoknife, everything seems to be b...
by Helliemo
Thu Apr 07, 2016 10:22 pm
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 176943

Re: Mum of 42 recently diagnosed inoperable PC

Hi Ruthus, I think you should email your CT scans over to prof leen and go for nanoknife. He can give you a second opinion on the scans and I think he can ablate tumours up to 5cm. It really is worth considering. And sending the scans over just to determine eligibility. My grandma's cancer had given...
by Helliemo
Fri Mar 04, 2016 10:15 pm
Forum: Treatment & side effects
Topic: any information or experiences very welcome
Replies: 18
Views: 21144

Re: any information or experiences very welcome

Hi, the nanoknife seems to have been successful, the cancer had spread to the liver but luckily the amazing prof leen managed to ablate them along with the primary tumour in the pancreas. Since nanoknife a lot of my gran's symptoms have subsided. She hasn't yet recommenced chemo as it seems that fol...
by Helliemo
Sun Feb 14, 2016 8:53 pm
Forum: Treatment & side effects
Topic: any information or experiences very welcome
Replies: 18
Views: 21144

Re: any information or experiences very welcome

Brilliant proudwife, what a quick reply! I think nanoknife and immunotherapy are the future for pancreatic cancer. I will definitely update after nanoknife. We did the consultation on Skype but I can remember most of what prof leen said so please feel free to ask me anything. I've also met an amazin...

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