Search found 30 matches

by Minstrel1
Fri Nov 13, 2015 11:01 am
Forum: Patient Experience Forum
Topic: Newbie Diagnosis Rollercoaster
Replies: 50
Views: 45233

Re: Newbie Diagnosis Rollercoaster

Update: Saw surgeon last night for follow up appointment. He was pleased with progress. I still get many of the symptoms I was having prior to surgery (but not quite as intense). He has arranged for me to have a follow up CT scan in January and hopes that the next appointment with him will be my las...
by Minstrel1
Fri Nov 06, 2015 3:04 pm
Forum: Family, friends and carers
Topic: Mum's diagnosis
Replies: 650
Views: 224496

Re: Mum's diagnosis

Good luck! I hope your mum gets a the attention she needs and deserves. Lisa x
by Minstrel1
Tue Nov 03, 2015 11:02 am
Forum: Patient Experience Forum
Topic: My convoluted diagnostic thread
Replies: 58
Views: 84371

Re: Please help me, scared witless

Hi, I am sorry u r having such a rotten time of it. This may seem a daft question but have u actually asked ur GP to send u for a scan? Does the GP know how worried u r and how this is impacting on ur daily functioning? As I said previously the scan might be worth doing if only to put ur mind at eas...
by Minstrel1
Fri Oct 30, 2015 5:15 pm
Forum: Patient Experience Forum
Topic: My convoluted diagnostic thread
Replies: 58
Views: 84371

Re: Please help me, scared witless

I've not heard that one before. I have had rectal bleeding off and on since January. Due to this I had a colonoscopy which came back clear. My GI doctor never mentioned that problems with poo may cause problems with urine. If you continue to be concerned keep going back to your GP until they take yo...
by Minstrel1
Fri Oct 30, 2015 3:10 pm
Forum: Patient Experience Forum
Topic: My convoluted diagnostic thread
Replies: 58
Views: 84371

Re: Please help me, scared witless

Hi Blacjac, First of all I would try not to worry. It sounds like you are doing the right thing by modifying your diet and are getting a positive result (more normal stools) from this. Changing your diet will not only give your digestive system a rest but will be good for your general health. A side...
by Minstrel1
Mon Sep 07, 2015 3:03 pm
Forum: Patient Experience Forum
Topic: Newbie Diagnosis Rollercoaster
Replies: 50
Views: 45233

Re: Newbie Diagnosis Rollercoaster

Seen surgeon today. My tumour was benign. It was a lymphagianoma. Apparently this type of tumour is very rare in the pancreas and abdomen. Because of this surgeon wants to do a further scan in a couple of months time. My recovery is going well. I am gradually getting my strength back. Continue to ex...
by Minstrel1
Sat Aug 29, 2015 11:23 am
Forum: Patient Experience Forum
Topic: Newbie Diagnosis Rollercoaster
Replies: 50
Views: 45233

Re: Newbie Diagnosis Rollercoaster

Thanks. I think the people around me, especially my husband have been amazing. My husband was with me continuously the first 2 weeks. He has been working from home as much as he can this week. He has had to go way out of his comfort zone giving me my injections (heparin) which I know he hates doing....
by Minstrel1
Thu Aug 27, 2015 11:11 am
Forum: Patient Experience Forum
Topic: Newbie Diagnosis Rollercoaster
Replies: 50
Views: 45233

Re: Newbie Diagnosis Rollercoaster

What a difference a week makes! I am now starting to get back to my old self. Have been able to ditch the stronger painkillers in favour of good old paracetamol. I am getting out of the house everyday for short walks around where I live. Main issues at moment are either feeling very chilled or to th...
by Minstrel1
Thu Aug 20, 2015 2:39 pm
Forum: Patient Experience Forum
Topic: Newbie Diagnosis Rollercoaster
Replies: 50
Views: 45233

Re: Newbie Diagnosis Rollercoaster

Hi sorry it's been a while. My surgery took place on 10th August. Just prior to surgery the surgeon told me that there may be a small chance that he may not have to perform the whip ole procedure but thought this unlikely. I came around in intensive care and was told that the surgeon had managed to ...
by Minstrel1
Sun Aug 02, 2015 10:26 am
Forum: Patient Experience Forum
Topic: Newbie Diagnosis Rollercoaster
Replies: 50
Views: 45233

Re: Newbie Diagnosis Rollercoaster

Thanks Pete. It's reassuring to hear positive stories. Had pre-op assessment on Thursday and surgeon has booked me in to critical care (icu) for 3 days post op so is being cautious which is good to know. Will let folks know how I get on! Lisa x
by Minstrel1
Fri Jul 31, 2015 1:15 pm
Forum: Family, friends and carers
Topic: Bad news
Replies: 107
Views: 41251

Re: Bad news

I am so sorry to hear the news. My thoughts are with you. Lisa x
by Minstrel1
Tue Jul 28, 2015 7:51 pm
Forum: Patient Experience Forum
Topic: Newbie Diagnosis Rollercoaster
Replies: 50
Views: 45233

Re: Newbie Diagnosis Rollercoaster

Thanks Sandra
It is encouraging to hear that Trevor made such a good recovery from surgery. I am going to try and take each day as it comes and not become too fixated on a timescale but would like to think I can follow your Trevor's example in this. Lisa x
by Minstrel1
Mon Jul 27, 2015 9:27 pm
Forum: Patient Experience Forum
Topic: Newbie Diagnosis Rollercoaster
Replies: 50
Views: 45233

Re: Newbie Diagnosis Rollercoaster

Thanks Didge. That's what I thought too, but fingers crossed hey! I have been following ur posts and my thoughts are with you and Rob. Lisa x
by Minstrel1
Mon Jul 27, 2015 4:17 pm
Forum: Patient Experience Forum
Topic: Newbie Diagnosis Rollercoaster
Replies: 50
Views: 45233

Re: Newbie Diagnosis Rollercoaster

My whipple surgery is now only 2 weeks away! Having my pre-op assessment this Thursday. The confirmation letter I got from the hospital stated expected stay will be 7 days. This cheered me up as I thought it would be longer. I know that I can't pin my hopes on this as the risk of complications has b...
by Minstrel1
Sat Jul 18, 2015 11:46 am
Forum: Patient Experience Forum
Topic: Newbie Diagnosis Rollercoaster
Replies: 50
Views: 45233

Re: Newbie Diagnosis Rollercoaster

Just a quick update. Had a relaxing break apart from call from surgeon mid holiday to say he was unable to get a scrub nurse for my surgery on 6th August. He said he would consider getting a scrub nurse from private hospital but wasn't keen on that idea as he usually brings a scrub nurse from nhs wh...

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